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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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My recovery story

Messages
44
@Helen
I appreciate your response. I have been tested for Lyme and it came back negative. The test was done by an infectious diseases specialist. I have not seen a neurologist, although seeing a neurologist still might be beneficial for a fresh outlook on the symptoms. Cheers.
 

SB_1108

Senior Member
Messages
315
I've noticed that a lot of the cavitation discussions have dead links. Specifically anything about the Cavitat scanner. Has the Cavitat scanner been removed from the market? Its difficult to research cavitation surgery/procedures - not finding a lot of recent information (most of it is about 10 years old). Its impossible to find local dentists that can even discuss the procedure. Has the procedure become too dangerous or too costly with no benefit?
 

Daffodil

Senior Member
Messages
5,875
@Helen
I appreciate your response. I have been tested for Lyme and it came back negative. The test was done by an infectious diseases specialist. I have not seen a neurologist, although seeing a neurologist still might be beneficial for a fresh outlook on the symptoms. Cheers.

did you get the LTT test?
 
Messages
17
I've enjoyed reading your story Ian, it sure throws a spotlight on dental cavitation's and how deadly they can be.

My story was unbelievable journey. I suddenly became ill with a brain fog, fatigue , nausea, wheezing, heart palpitation, shortness of breath, light and sound sensitivity, dizziness, dry heaves, weight loss rash and flu like feeling. Sometime things would go very light like an watching an x-ray, seemed like my brain was short circuiting I felt like I was going crazy.
I stopped working for over three years, while I dealt with this.


Anyhow, I have this theory that healthy people just do not all of sudden get sick and stay sick. There must be a cause and if there is a cause , then there is a solution .

When I was sick one doctor thought I had Chronic fatigue. Seriously ? This was unbelievable to me. I had what seemed like hundreds of tests. I had heavy metal testing, seven Lyme tests ( two Lyme test were done through IGENEX), many parasite checks, I believe you need ten tests to get 100% accuracy . Since I had traveled internationally. I was sent to the head professor of infectious disease doctor more tests. Nothing was found. Then I went to , three rheumatologist, neurologist, endocrinologist and the list goes on. We had flown out the country for stem cell, hydrogen peroxide IV's, UV light therapy, vitamin C IV'S daily chelation for two weeks, and hyperbaric oxygen chamber. More procedure ensued after I returned home, I had 3 MRI's ,CAT , colonscopy , endoscopy, pelvic exploratory surgery and thermography which noticed some inflammation in my neck. Then my new rockstar doctor put me on a drink to get the radiation out of my system from the cumulative effect of all the procedures and it was under his care that some symptoms fell away.

Regarding, my dental issue, I saw four dentist , had more CAT scans and one did micro magnification no infections found . Next, my rockstar MD refers me to a TAI CHI master, after one session she goes the problem is a hidden infection in the jaw!

I had decided to remove all the mercury fillings and extract root canals, replace with all porcelain which is not covered by dental insurance ran about $35,000. I had the Clifford test as well. The cavitation dentist opened up every extraction site he located a massive infection in my jaw bone where apparently 20 years earlier the dentist had forgotten gauze at the wisdom tooth extraction site. Apparently. a lipoma, benign fat mass had formed in my temporal jaw joint as well. I began to read about the vagus nerve is the master nerve and the lipoma was interfering with the nerve which runs through the TMJ area and nerve impulses to my brain were being disrupted, it is way more complicated than that, but simplified here. Some believe lipoma fat mass is a natural defense response , a walling off of the infectious toxins and then slowly releasing it into the bloodstream as to not overwhelmed the body.

I spent hours researching solutions, and talking with doctors as well. I found a way to dissolve lipomas, I used clove oil, cold pressed castor oil and DMSO externally with a heating pad, to dissolve the lipoma and for my sinus I used same above, but added Ponaris this is an oil created by Nasa for the astronauts . This cured my two year relentless sinus issue straight away. I put the mixture on every daily three to four times day with a heating pad on my entire face of never on my eyelids or in my eyes. Heat causes the oil penetrate deeply into the tissues. I also when on Gerson juice cleanse for thirty days, and did a homeopathic line of lymphatic, kidney and liver drainage, this is vital for clearing toxins.
After cavitation surgery, the key to is to increase blood flow in the jaw. I used a near infra red light I shined on my jaw throughout the most sensitive post surgery stages( 4 - 6 weeks).


During my search I spoke with two dentist that had CAVITAT machines .First, dentist felt it was inaccurate compared to blown up CAT scan and he relied on the bone density in the jaw to identify infection sites, he found this more reliable, in detecting infection than CAVITAT. The other dentist office had a CAVITAT, but thought it was outdated and did not use. I kind of wonder if the dentists are uneasy discussing CAVITAT therefore, avoiding scrutiny of dental board. Perhaps the fear of being reprimanded. Most MD use Volumetric CAT SCAN for a bone infection. I have read about spiral MRI, being very useful tool.

There is military sonar technologically that is used for deep sea submarines. This technology is being utilized to replace the soon to be outdated x- ray machines, this technologically is supposed to be not a step forward, but a quantum leap forward. I assume the cost will be high for the equipment so expect it in the places that can afford it. Perhaps this will be the medical universities or where the dignitaries go.

A bone infection in traditional medicine you are given antibiotics for months or antibiotic IVS for months is prescribed for bone infections. Now, I wonder as you stop the course of antibiotics if all or some of the symptoms return. I think I may be of the belief that once the jaw bone becomes infected, the infection is a locked pocket of infection that your immune system cannot get to it so it slow systemic poisoning. Low level sepsis is how my MD put it . Best to have the infection removed.

Once the jaw bone has been compromised , it becomes necrotic. The jaw bone infection may result in systemic infection process, very unpleasant devastating effects on the body. I asked my regular dentist about dental root canals procedures and he said, most people immune system should be able to fight off an infection after a dental procedure, but if Price is right, and root canal are leaking infection all the time. When your really healthy your body fights it , what happens once you get ill? Can this slow leaking lower your immunity and to what degree? I also read that some dentist give antibiotics to women with breast implants during routine teeth cleaning .

As many of you know that once you go through an illness of this magnitude and scope you are forever changed . If you are ill do not ever let it win, keep fighting, keep looking and keep the trust, and faith . I believe there is a cure for everything.

If I had to go through this again I would of just flown to a clinic in Germany, one of my good friends is a ER doctor and he suggested Germany a couple times. In fact, this is where Cher goes for her treatment for her condition.



Wishing all Good Health
 
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Wayne

Senior Member
Messages
4,300
Location
Ashland, Oregon
@GRACED, welcome to the forum, and thanks for your great first post. So much I'd like to ask you, but I'm winding down at the moment. One question however, how did you go about finding a good oral surgeon that was able to proficiently do your cavitation surgery?

I had a Cavitat done many years ago, and was disappointed by the dentist who didn't evaluate it for me, or recommend what I should do. I guess he just thought he'd show me some pretty pictures and let me do with it what I wanted. So any input you could provide on how to find competent professionals would be appreciated. Thanks!

Again, welcome!

Wayne
 
Messages
17
Thanks, Wayne. I'm happy to be here and to contribute. Hope this information may help others.

Here is what good friend that has gone through cavitation process wrote to me .
The way to locate a cavitation is not just having one test.The ideal and most accurate way to check for cavitation is by getting all of those 3 machines, because in some difficult and unique cases :
- sometimes the cavitat machine showed no cavitation, but electrodermal showed cavitation
- or sometimes electrodermal showed no cavitation, but cavitat machine showed cavitation
- or sometimes cavitat machine and electrodermal showed no cavitation but 3D cone beam showed cavitation
- or sometimes 3D cone beam showed no cavitation , but cavitat machine showed cavitation
but if you have a cavitation based on one of those 3 machine, it already indicates that you do have a cavitation.

At the medical university here, the specialist I saw says, he relies on high resolution CAT scan, which your MD can order through the hospital. The doctor said, he starts with high resolution CAT scan to locate CSF leaks. In fact he said, my dentist CAT scan was not useful for him, because it not sensitive enough.

The other point worth noting is that I after cavitation surgery the dentist sent the content from one extraction site to the pathology lab. When my MD got the pathology report he said, this was not useful information. The only way this test would be useful is if the lab identified the actual strains that way he would know what were fighting.

The dental cavitation support groups are the mercury group and NICO cavitation group, there are more than 3000 members in the Cavitation(NICO) group, and they can assist people in finding dentists in your area as well as being a great resource for information.

I believe the top expert for cavitation is in England. A couple more of cavitation dentist in the states, Dr. Shankland, in Ohio , Dr. Michael Margolis DDS, Mesa Arizona, Dr. Bryanna on neurotalk is in Maryland she seems to really possess extensive knowledge on the subject, in fact she would be my first choice, but she is too far away.

The Grand Lux Hotel in Mexico Tijuana if price is an issue. Some people are uneasy about traveling to these places my friend says it easy they have a cab that picks you up on the border and whisks you to the hotel When I traveled I visited a rejuvenation health clinic in Mexico, and these places are filled with Americans, Canadians, and Amish this in and of it self is very telling .

The cavitation dentist I was referred to here in the states, is located in a very small town. His assistant uses a electro-dermal type of machine used to identify the sites and level of infection. Once the infection is cleaned out the assistant checks the area again with machine to see if any infection is present if any is the dentist continues to scrape and clean the area.

However, this machine was highly inaccurate , in that the worst infection tested as the least infected site! The worst infected site was the last site that was opened several months down the road, due to this experience I did not list this dentist. In all fairness, the dentist is very good at cavitations, great bed side manner and very meticulous in his work. He also uses centrifuge technique This of course accelerate recovery and diminishes almost all of the pain. However, when your super ill and completely debilitated you cannot wait up to a year for the full cavitation process! Therefore, he is not listed here .
 
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Wayne

Senior Member
Messages
4,300
Location
Ashland, Oregon
The dental cavitation support groups are the mercury group and NICO cavitation group, there are more than 3000 members in the Cavitation(NICO) group, and they can assist people in finding dentists in your area as well as being a great resource for information.

Thanks much for your great report @GRACED. This topic has been on my mind for years, but despite some efforts, I've not been able to find an oral surgeon. It's a HUGE undertaking for me, so I've often gotten discouraged in the past when things didn't fall into place relatively easily. But I will check out the resources you posted, and see if things flow a bit better this time around.

You might find THIS ARTICLE interesting by "The Better Health Guy". It's on his website and chronicles his own journey through cavitation surgery. His website is also a gold mine for many other articles, many of them on novel approaches to many of the chronic health issues that are discussed on this board.

Thanks again for listing the NICO resources! :thumbsup:

Wayne
 

Ian

Senior Member
Messages
282
Hi @Ian,

I just clicked on your link, and discovered it doesn't work. Do you still have an active website? -- Thanks.

Wayne

Hi Wayne, I uploaded it here -> www.caviscan.com

If you are wondering about the the domain name it's because I've working on building a replacement for the cavitat scanner for a while now in my spare time. This is the original cavitat scan I had done, loaded in my new software :)

http://i.imgur.com/iw3KYpp.png
 

Wayne

Senior Member
Messages
4,300
Location
Ashland, Oregon
Hi Wayne, I uploaded it here -> www.caviscan.com

Thanks @Ian. I did a quick perusal, and am looking forward to reading it all more thoroughly. I think the extraordinary efforts you're making to disseminate this information is a unique service that will be a valuable resource for people for years to come. Well done!
-
BTW, I had an appointment yesterday with a health care practitioner who I just started seeing recently. He uses kinesiology in his practice, and I asked him to check whether I might have any significant cavitation/oral infection issues going on. Indications are that I do.
 
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Ian

Senior Member
Messages
282
I think the extraordinary efforts you're making to disseminate this information is a valuable service that will be a valuable resource for people for years to come. Well done!

Thanks, it also chronicles the absolutely ridiculous journey I've been on to get my health back.
 
Messages
17
I read your story, Wayne, and it sounds like an all to familiar crazy roller coaster ride!

The saddest and shocking part about our stories is that the medical doctors have no idea
about the devastating health effects, from a jaw bone infections! I was utterly shocked that the majority of doctors could not help me figure out what was making me so sick. Well, maybe it was just the first 45 medical doctors that I just happened to see that didn't know about jaw bone infections. LOL


My good friend was an ER doctor for over 16 years and he basically told me when all the tests keep coming back normal for patients, "I suggest anti-depressants because it may just snap someone back. " Now what if a patient believes that the MD is right and lives there entire life on prozac and sick because they never investigated other options? That is really a great tragedy... this is people lives we're talking about!

Just a side note, a CAT scan may not be the test you want for a bone infection . You actually need the doctor to order the bone scintigraphy for bone infections. Interesting reading if you have time http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2884909/
 
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Ian

Senior Member
Messages
282
Bone scintigraphy is fairly useless for finding jawbone cavitations, unless of course half your face is rotting away. The images are simply too low resolution.
 

PeterPositive

Senior Member
Messages
1,426
@Ian Arent' there any blood markers that can be used to at least suspect such an infection? I know it's hard to have conclusive evidence without the specific test(s), but I'd imagine there could be some clues from specific markers that could suggest the problem. As in all other infections.

thanks
 

Ian

Senior Member
Messages
282
Maybe if they knew what to look for, something might show up. But I was extensively blood tested and basically nothing showed up. But even if it shows up on a blood test, you still have to find the infection.
 
Messages
17
Wow! I guess back to the drawing board.

You know I was diagnosed by a TAI CHI master that I had a hidden infection in jaw, that was because all the CAT scans and the MRI's had all failed in locating the source of my infection !
 
Messages
17
The Munro Hall clinic in Bedfordshire in England,
Dr. Graeme is the supposed to be one of the few
top dental cavitations experts, in the world. I'm going to assume
that all of the dentist there are educated on cavitations surgeries, but
I would see Dr. Graeme.
 

Ian

Senior Member
Messages
282
that's where I had surgery. It took 3 surgical attempts over 3 years to get rid of mine. I also had every type of scan I could get to find the problem, x-ray, ct, thermal imaging, mri and cavitat. The cavitat and mri in my cases were the most effective tools. Pressing on the bone to see it hurts is also a crude but reliable way of finding bone infections.