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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I have very severe ME and recently have been allocated a community Physio.
In the past any Physiotherapy intervention has only made me worse, so am naturally concerned.
How can I make use of physiotherapy input without harming myself?
They might have suggestions about how to do essential things more efficiently, which could be useful.That's part of the problem everything I do causes me problems....but having been funded for a physio I want to see how I can use his knowledge... There must be something...
Drop foot is present in some nasty and recognized disease, but not something I've heard about with ME patients. Have other diagnoses been ruled out properly?I do what I can when I can all ready but there is serious muscle wastage problems developing and drop foot - where you can't put your foot flat on the ground.