aimossy
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I liked that he was clear about contradictory results. I was interested in a fair amount of the talk. Also about the fact that they have been looking at some autoantibodies I think regarding the hypothalamus? I cant remember now if I am using the correct word. I thought this was at proposal stage still based on something I read in a not long past. It looks like they have been doing some investigation.
@Jonathan Edwards he talks about the B cell work at UCL although I don't think he says too much about it considering its being worked on. I have just tagged you to let you know this was here if you were interested about this talk happening. I still cant figure out where this conference came from except that it was in Stockholm by the looks of it. There are some other youtube videos from this conference.
I still cant figure out where this conference came from except that it was in Stockholm by the looks of it. There are some other youtube videos from this conference.
Just having cortisol resistance shouldn't make sensory stimuli intolerable should it?' But maybe it can. Maybe if one part of the brain thinks there is enough cortisol and another part is getting messages saying there is none it flags up some sort of automatic danger message. An autoantibody to some link in the HPA axis would be such a simple explanation.
Thanks for that Helen. FYI, your second link is broken.Seminar program:
http://www.meassociation.org.uk/201...seminar-on-paediatric-mecfs-12-november-2014/
Talks presented in English are posted in this thread:
http://forums.phoenixrising.me/inde...minar-on-paediatric-me-cfs-12-nov-2014.32335/
Thanks aimossy. I only know the details presented in the slide. The slide is right at the end of the presentation if that's any help for you. Like you, I've got to re-watch the video to try to absorb some of the info. I might make some notes and post them here later.@Bob some of that work is through IiME with UCL, with Prof involvement and the leaky gut through IiME and I forget the name of the institute. Do you know where he is doing this other work or where its through? Is any of it being funded by MRC I wonder..
Delighted to hear that a lab (rather than clinical trial) is blinded. I got the impression blinding wasn't that common, certainly it doesn't usually get mentioned in papers - but is this sort of thing now standard practice?The collaborative B cell work is still blinded
Very interesting, do you have a link to this work?Let me add that we already know that genetic defects in cortisol binding globulin induce a CFS-like syndrome. I was in one of those studies but did not have one of the suspect snps.