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Reducing sleep aids experiment

Discussion in 'Sleep' started by xchocoholic, Oct 5, 2013.

  1. xchocoholic

    xchocoholic Senior Member

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    It's funny you mention getting stuck for words.
    That happens to me all the time.

    I'm usually ok following my train of thought but easily
    derailed by others. I wonder what people think when
    I'm derailed.
  2. xchocoholic

    xchocoholic Senior Member

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    I lowered my melatonin down to .5 mg and 5htp down
    to 50 mg and klonopin down to .1 mg and slept
    like a baby from 11 pm until 4 am. I took candidase
    and virastop and am falling back to sleep now. I've
    found that sometimes I can't sleep because I have
    undigested food in my upper digestive tract.

    I'm seeing now why I got into taking these aids
    to begin with. The ability to sleep is in itself a reward.

    g nite. x
  3. peggy-sue

    peggy-sue

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    I've been taking the pain meds for pain. (sciatica) :)
    It's just they have loads of beneficial side effects. (as well as potential bad ones)

    There is a ton of anti electronic-cigarette hype circulating out there.:p

    Governments are worried about loosing tax income.
    Big Pharma is worried about loosing its highly profitable (and not very successful) "nicotine replacement therapy" stranglehold.

    Control freak puritanicals will not be happy until there are no mild stimulants available to anybody - unless its the high they get from being in church... watch out for your tea and coffee next.:rolleyes:

    There are no "other weird" or "dangerous" chemicals in them.
    Odd things were found in the early, cheap, badly made ones which came from China - as did the much over-hyped single one which exploded.

    (sorry if i seem a bit curt - I'm not awake yet....:redface: )
    xchocoholic likes this.
  4. xchocoholic

    xchocoholic Senior Member

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    I'll have to look at the e cigs again sometime. I don't
    trust anyone to tell the truth about their product
    anymore. I haven't tried chewing tobacco either yet.
    ; )

    No problems. I don't hold pwcs accountable for how
    we say things.

    So I was wide awake at 3 am.Took candidase and virastop
    but still awake. These always help my digestion tho.

    I took 1/4 tap children dye free benadryl and was out
    in 20 minutes. Awoke at 7.

    So it seems like the more sleep deprived I am the less
    chemicals it takes to put me to sleep. Maybe.

    I only had appr 10 mg mel, 50 mg 5htp and .1 mg
    klonopin. Hoping to get off mel within next two days.
    Even tho I read this wasn't addictive, in a sleep
    deprived state, I would've decided I needed it.

    fwiw, I had correlated 5 htp with my mood but it
    seems that junk food, probably containing gluten,
    was the problem. Still not sure tho.

    tc ... x
  5. xchocoholic

    xchocoholic Senior Member

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    I forgot to mention that I stopped taking
    25 mg of dhea about 5 days ago. I saw 2 dark
    brown whiskers along with fuzzy whiskers
    above my lip. Aagh !

    I'd only been on it for 3 - 4
    weeks this time because I'd already experienced
    fuzzy hair above my lip from it the last time I tried
    it.

    I think this may have been making me feel intense
    anger at times too. I'm almost back to my relaxed self
    again.
  6. peggy-sue

    peggy-sue

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    I have to tackle a couple of weird sprouting wiry things on my left upper lip too, but that's just my age (55) and being well past my "Climate Eric" - I did that early. Tweezers, when I remember.

    I've never been able to get tested to see if I do need DHEA.

    I cannot be doing with anything that makes me anxious or angry, though.

    I have stuck to my 5 tablets a day. I had a rotten night last night (didn't go to bed until 3, tossed and turned, but must have dozed here and there).

    The worst is my guts. I feel nauseous and am really struggling to eat anything at all.

    I don't need to loose weight right now.
    I have bought myself some Complan.:thumbsup:

    chocolate... "flavour"... :(
    xchocoholic and rosie26 like this.
  7. xchocoholic

    xchocoholic Senior Member

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    Sorry to hear you're having digestion problems.
    Have you been tested or treated for food intolerances
    or pathogens ? Have you tried digestive enzymes either
    natural found in papaya mangos or pineapple or
    store bought ?

    I've been using enzymes for 8 years now.
    It sucks but I can't stop without feeling crappy.

    So I took 10 mg mel, 50mg 5htp and .1 mg klonopin
    and slept from 10 - 3. Took camdidase and virastop and
    1/4 tap children's benadryl and slept from 5 - 9. Nine
    hours is a good length of time for me to sleep.

    I'm not all here tho. It feels like my benadryl reaction.

    Probably have some pem too from cleaning.

    Gotta go eat. Hope you feel better. X
  8. peggy-sue

    peggy-sue

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    I have not been tested for any "intolerances" and most certainly not treated for any.

    I don't have any that I am aware of; my brother is lactose intolerant. I'm not.

    It's not something that is in any way mainstream medicine in the uk - it's left to the folk who make money out of dodgy and expensive "tests".

    My current gut and nausea problems are purely because I had got accustomed to the effects of the codeine on my gut, I've cut down, my guts don't like it.

    I don't have gut problems with my ME.

    (what's benadryl again? - is that the sleepy antihistamine diphenhydramine, in the states?)
  9. xchocoholic

    xchocoholic Senior Member

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    I didn't think I had problems with food until I eliminated
    all the common intolerances and felt better. It took
    a while year to get over my ataxia that was probably
    from gluten. I have the dq2 gene.

    I didn't realize digestive tracts could rebel when
    pain meds, codeine is removed. How do others
    recommend dealing with this ?

    I never really woke up today. Not sure what to take tonight
    if I'm awake in the middle of the night. So far Lack of sleep
    is just as bad for me mentally as the effects of these aids.
    Hope this changes soon.

    tc ... x
    peggy-sue likes this.
  10. peggy-sue

    peggy-sue

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    Codeine (and all opiates) affect the gut directly - they cause constipation and affect the motility of the intestines.

    I suspect I am quite sensitive to the side effects as well as the drug, but with the assistance of the magnesium citrate I take (which causes a bit of looseness) and taking psyllium husk at the beginning, I managed to get to a state of everything functioning normally with the dose of codeine I was taking.

    What's happening now is it is all going haywire with the dose reduction.

    And I'm a bit stressed - which puts me of my food too.
    xchocoholic likes this.
  11. xchocoholic

    xchocoholic Senior Member

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    bummer. I hope you get this worked out. I use mag
    citrate for bms too. Nothing else I tried worked. Like you
    I find it's tough to get the right balance.

    So I took my .10 mg melatonin, 40 mg 5htp and 1/2 of
    a .125mg klonopin at 8 pm and was sound asleep by
    9 - 9:30. And awake by 11:30. I took 1/4 tsp benadryl and 1/2
    of the .125mg klonopin and I slept till 7:30.

    When I wake up in the middle of the night nowadays, I'm wide awake. Not like
    before when I was taking more mel, 5htp and klonipin.
    And most of the time I also took benadryl. I'm still
    waiting for the mental sluggishness to fade. This is taking
    forever.

    tc .. x
    peggy-sue likes this.
  12. peggy-sue

    peggy-sue

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    I was able to eat a little bit more last night and the evening before - I think/hope I'm adjusting.

    Sleep was ok last night. Went to bed at 4 30am (after a nap on the sofa.)
    I find when I'm tired, I prefer to just sleep there and then. Getting to bed wakes me up again.
    I woke at 8.25am and 10.33am and got up at 11.
    xchocoholic likes this.
  13. xchocoholic

    xchocoholic Senior Member

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    Getting up wakes me up too. Got any ideas
    why ? I didn't wake up as easily on the sleep
    aids I was taking. But ... that's why I'm trying to get
    off them. I'm working at convincing myself that
    not sleeping like a log is ok.

    So you only got 6 hours of sleep. bummer. are you
    a night owl ?

    Tonight will be my first night in 5 - 6 years without any melatonin. eek.
    So just 40 mg 5htp and .1 mg klonopin. 5htp will be the
    next to go.

    g nite .. x
  14. madietodd

    madietodd Senior Member

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    Sleep is such a disaster for me that I'm rewriting my rules. You know how they say you HAVE to get x hours of sleep a night? Well......or what? I wake up 5 times a night and I've decided that if this is who I am for the rest of my life, that's just the way it is. It's my normal.

    Of course I'm endlessly trying things to get better sleep [sleep meds don't work for me]. But now that the bar isn't set so high, I feel more at ease with the whole process. I'm not failing at anything, every single night. I'm just in this place in this process in my life.

    I guess my point is that it takes as long as it takes, and your only standard is yourself.

    Sleep tight!
    peggy-sue and xchocoholic like this.
  15. peggy-sue

    peggy-sue

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    I am a night-owl, yes.
    I've never needed a whole load of sleep, 5-6 hours was always my normal before.
    More made me feel yukky.

    The timing of the melantonin is important, isn't it?
    That's not one you can take in the middle of the night to help a bit, if not taking it makes you feel bad.:oops:

    It's only tonight.:hug:
    If you have a very bad time, you can start it up again.

    Maddie, you are completely correct.:thumbsup: We have to establish what is normal for ourselves, individually.
    xchocoholic likes this.
  16. xchocoholic

    xchocoholic Senior Member

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    I've always needed about 9 hours of sleep in order
    to feel refreshed in the morning. That's great you don't
    need as much. I wasn't sleeping well when I came down
    with cfs/me. My DD was 2 and I got up in the middle of
    the night with her often.

    I've taken melatonin in the middle of the night before.
    After a few years of experimenting with mel, 5htp, theanine
    and later Klonopin, I decided to take all my sleep aids
    again if I woke up. With my seizure disorder, I feel
    jittery if I don't sleep well. I'm just taking Klonopin
    for this now.

    So I slept from 11 - 5. Took 1/4 of the .125mg klonopin
    and slept from 6 - 9. Nine hours.

    I'm not quite awake but working on it.
    madietodd and peggy-sue like this.
  17. peggy-sue

    peggy-sue

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    You survived :thumbsup: - and you slept!:balloons:

    brilliant - I'm really pleased for you.:)

    I wish I could sleep a lot more... I get very, very bored trying to fill in the hours I am awake.....:sluggish: .
  18. xchocoholic

    xchocoholic Senior Member

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    I've recently gotten into watching old tv series
    on dvd. It's almost like I never saw these. lol.

    So I took 40 mg 5htp and .125 mg klonopin. Slept
    from 9:30 till 11:30. Took virastop at 12:30 and was
    asleep quickly.

    I woke up after that but not sure when with a little headache in my temple area
    which is new. Fell back to sleep until 6:30 tho.

    Gotta eat. Blood sugar is low. tc .. x
  19. peggy-sue

    peggy-sue

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    Bad night last night for me.:(
    Went to bed at 3.30 (no sofa nap) no sleep until ~ 6.35 ish, saw 7.10, then 7.45, then suddenly it was 10.30.

    Woke up in sweats then cold, sweats then cold... not fun.

    But I'm eating properly again. My guts do seem to have adjusted to the lower dose, my pain is controlled.

    Just sleep is elusive and difficult.

    Sleep and I have never been comfortable bedfellows.:p
    xchocoholic likes this.
  20. madietodd

    madietodd Senior Member

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    Did I miss that you're sick? Or did I miss that Virastop helps you with sleep?
    Little Bluestem likes this.

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