Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I used to joke my syndrome could be called chronically f***ed syndrome or six pint syndrome now I just say I feel like im addled by something
I apologize if you've already mentioned this. Have you been evaluated for a seizure disorder? Mine was under-treated for 20 years. It masked the absence seizures, but my brain kept having seizures that I didn't recognize. It's amazing how much my brain has healed in the few years that the seizures have been under control.