fibrodude84
Senior Member
- Messages
- 191
Anyone else like me? I'm so exhausted that it's painful from head to toe. It's like my lack of energy and exhaustion makes me hurt. I want to sleep but I can only sleep at night and it's never refreshing.
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
That's it, that's just how I feel right this minute!I wish i had a personal masseuse to gently rub me down.
Yes. Every time I up my dose all my symptoms seem to flare in a cycle. Wednesday evening I didn't have the energy to walk from my kitchen to my bedroom (maybe 10 feet). I was just leaning against the fridge for 5 min. Couldn't even talk when my husband asked me what he could do. All my joints ache when I get like that. Ice on my sacrum helps with my joint pain and migraines.Anyone else like me? I'm so exhausted that it's painful from head to toe. It's like my lack of energy and exhaustion makes me hurt. I want to sleep but I can only sleep at night and it's never refreshing.
Yes. Every time I up my dose all my symptoms seem to flare in a cycle. Wednesday evening I didn't have the energy to walk from my kitchen to my bedroom (maybe 10 feet). I was just leaning against the fridge for 5 min. Couldn't even talk when my husband asked me what he could do. All my joints ache when I get like that. Ice on my sacrum helps with my joint pain and migraines.
I am a LMT and can give you some easy self massage tips if you would like.
A good general technique is to use a ball, tennis or racquet balls work well. You can lean against a wall or put it under you on the bed to work on points. Be careful not to stay in one place too long. It works on most body parts. If you have a specific area I can give you more specific advice.Just speaking for myself, but I would love to hear of some tips if you don't mind. I always feel like I need a massage when everything feels so bad, although I never do have one so would love something that I could do.