swollen throat
Not Sore. swollen. Maybe swollen bfore rtxn but much worse after. , it's been 8 months on rtxn and over two months since last infusion.
Causing (worse) apnea. Had a home sleep study and apnea is significant.
Anyone else? Any ideas?
gargle with salt water helps the swollen throat a bit.
This seems to help as well:
http://www.1cascade.com/ProductInfo.aspx?productid=4333
Will try this next:
http://www.1cascade.com/ProductInfo.aspx?productid=2726
"Red root is a lymphatic stimulant useful in tonsilitis, sore throats, swollen lymph nodes and fluid-filled cysts. "
Any problems with these? If echinacea stimulates immune sys, bad idea aftr rtxn?
bad sleep
6/12
Pre-rituxan I used to usually sleep through the night, at least the majority of the time, even if not the same quality of sleep as I got pre-CFS. I haven't slept through the night once in the 5.5 months since RituxanIt's getting to be a pretty bad situation. I wake up a lot, and often can't get back to sleep after only 4 hours. I'm really sleepy during the day. When I don't actually wake up, I almost always toss and turn and sort of "half wake up" all the time.
D Ribose didn't used to affect my sleep, but since Rituxan, if I take it during the day (last dose way before bed time) or even in AM only, I lay in bed in a kind of half sleep state where I can't get all the way to sleep.
I had mild sleep apnea before Rituxan, and tha'ts gotten worse. But I think there is something more going on here as well given the "half sleep" (worsened by sugar).
There was a change immediately after Rituxan.
9/12
(update- been 8 mnths and slp a bit better BC of no sugar/carbs for 6hrs bfr bed). But still nt good. Apnea worse.
Curious if anyone else has noticed this?
CFS also wrse
I can't talk. Can't type/text enough to communicate. Haven't had a conversation with someone in 8 months...
.
Not Sore. swollen. Maybe swollen bfore rtxn but much worse after. , it's been 8 months on rtxn and over two months since last infusion.
Causing (worse) apnea. Had a home sleep study and apnea is significant.
Anyone else? Any ideas?
gargle with salt water helps the swollen throat a bit.
This seems to help as well:
http://www.1cascade.com/ProductInfo.aspx?productid=4333
Will try this next:
http://www.1cascade.com/ProductInfo.aspx?productid=2726
"Red root is a lymphatic stimulant useful in tonsilitis, sore throats, swollen lymph nodes and fluid-filled cysts. "
Any problems with these? If echinacea stimulates immune sys, bad idea aftr rtxn?
bad sleep
6/12
Pre-rituxan I used to usually sleep through the night, at least the majority of the time, even if not the same quality of sleep as I got pre-CFS. I haven't slept through the night once in the 5.5 months since RituxanIt's getting to be a pretty bad situation. I wake up a lot, and often can't get back to sleep after only 4 hours. I'm really sleepy during the day. When I don't actually wake up, I almost always toss and turn and sort of "half wake up" all the time.
D Ribose didn't used to affect my sleep, but since Rituxan, if I take it during the day (last dose way before bed time) or even in AM only, I lay in bed in a kind of half sleep state where I can't get all the way to sleep.
I had mild sleep apnea before Rituxan, and tha'ts gotten worse. But I think there is something more going on here as well given the "half sleep" (worsened by sugar).
There was a change immediately after Rituxan.
9/12
(update- been 8 mnths and slp a bit better BC of no sugar/carbs for 6hrs bfr bed). But still nt good. Apnea worse.
Curious if anyone else has noticed this?
CFS also wrse
I can't talk. Can't type/text enough to communicate. Haven't had a conversation with someone in 8 months...
.
