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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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The final evidence review for P2P on ME/CFS has been published

Nielk

Senior Member
Messages
6,970
Today's meeting is starting in 10 minutes - 8::30 am HERE.

Today's agenda:


8:30 a.m. Evidence-based Practice Center III: Treatment: Medications and
Complementary and Alternative Medicine

Heidi D. Nelson, M.D., M.P.H.
Medical Director of Cancer Prevention and Screening
Providence Cancer Center
Providence Health and Service
Vice-Chair and Research Professor
Departments of Medical Informatics and Clinical Epidemiology
Pacific Northwest Evidence-based Practice Center
Oregon Health & Science University

8:50 a.m. Evidence-based Practice Center IV: Treatment: Counseling Therapies and
Exercise

M.E. Beth Smith, D.O.
Associate Professor
Department of Medical Informatics and Clinical Epidemiology
Pacific Northwest Evidence-based Practice Center
Oregon Health & Science University

9:10 a.m. Reducing Patient Heterogeneity by Subgrouping
Benjamin H. Natelson, M.D.
Director
Pain and Fatigue Study Center
Mount Sinai Beth Israel
Professor of Neurology
Icahn School of Medicine at Mount Sinai

9:30 a.m. Measures: Patient-Reported and Physiologic
Elizabeth R. Unger, Ph.D., M.D.
Chief
Chronic Viral Diseases Branch
Division of High-Consequence Pathogens and Pathology
National Center for Emerging and Zoonotic Infectious Diseases
Centers for Disease Control and Prevention

9:50 a.m. Innovative Approaches in Fatigue Research: Phenotyping, Biomarker
Discovery, and Statistics

Leorey N. Saligan, Ph.D., R.N., CRNP, FAAN
Investigator
Symptom Management Branch
National Institute of Nursing Research
National Institutes of Health

10:10 a.m. The Role of the Immune System in ME/CFS
Mady Hornig, M.D., M.A.
Director of Translational Research
Center for Infection and Immunity
Associate Professor of Epidemiology
Columbia University Mailman School of Public Health

Session 5: How are tools and measures used to distinguish subsets of patients with ME/CFS?
10:30 a.m. Discussion
11:30 a.m. Break
11:50 a.m. Identification of Subsets of Individuals
Nancy G. Klimas, M.D.
Director
Miami Veterans Affairs Gulf War Illness and ME/CFS Research Program
Professor and Chairperson
Department of Clinical Immunology
Scientific Director
Institute for Neuro-Immune Medicine
Nova Southeastern University

12:10 p.m. Subtypes of CFS/ME: New Discoveries and Unanswered Questions
Renée R. Taylor, Ph.D.
Vice Provost for Faculty Affairs
Licensed Clinical Psychologist
Professor
Department of Occupational Therapy
University of Illinois at Chicago College of Allied Health Sciences

12:30 p.m. What Outcomes Represent Improvement, Recovery, Prevention, Benefits,
or Harms?

Suzanne D. Vernon, Ph.D.
Scientific Director
Solve ME/CFS Initiative

12:50 p.m. Discussion
1:20 p.m. Workshop Wrap-Up/Next Steps
1:30 p.m. Adjourn