• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Thiamine and POTS - a possible remedy

Mary

Moderator Resource
Messages
17,335
Location
Southern California
I posted this yesterday on the autonomia/cardio board as I didn't see this board. You might find it interesting:

I've recently read about a thiamine deficiency or inability to properly utilize thiamine as causing autonomia, POTS and other ailments. Here are a couple of links:

http://www.hormonesmatter.com/thiamine-deficiency-causes-problems/
http://www.dinet.org/index.php/community/member-stories?start=28

I first started reading about thiamine, and its link to energy, here:
http://www.prohealth.com/library/showarticle.cfm?libid=18187

I have CFS, not FM, and I think I have mild POTS. I didn't tolerate high doses of thiamine but did okay on 50 mg. So if one were going to try taking high doses, I'd suggest starting slowly, 100 mg. at a time.

Mary
 

Mary

Moderator Resource
Messages
17,335
Location
Southern California
Thanks, uk. I did read a lot about thiamine recently along the same lines, I read the article about the person taking a very high dose of thiamine and getting her energy back. Actually I tried thiamine but could only tolerate 50-100 mg. But I don't have FM either, I do have CFS.

But - it was new information for me when I read that a thiamine deficiency, or an inability to properly use thiamine, could be a contributing factor in POTS. So that's why I posted this.

Mary