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UK: Jen Brea wants eyecatching stats re UK ME prevalence, diagnosis, research, treatment

Sasha

Fine, thank you
Messages
17,863
Location
UK
Looks like Jen with her Canary in a Coalmine documentary (can't wait!) is going to be mentioning the UK.

She just posted on FB:

https://www.facebook.com/canaryfilm/posts/438195219651550
Wanted: punchy, appalling, colorful, moving stats re: prevalence of ME in the UK, its diagnosis, research or treatment.

For example, over here we often say that there's more funding for male pattern baldness or allergies than for ME (not even mentioning the research definition issues). Are there similarly surprising stats that might help illustrate the situation in the UK?

I've got no reason to think that she reads Phoenix Rising or will see this thread so please post your responses on FB or presumably it's OK to use her main website contacts page:

http://www.canaryinacoalminefilm.com/#!contact/c24vq
 

Countrygirl

Senior Member
Messages
5,429
Location
UK
When reading the above, I ask what diagnosis,research and treatment????

We are mis-diagnosed, mis-treated and no funding has been given for medical research over the decades in the UK.