XMRV Information Center

 

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ME/CFS Professionals Talk on XMRV

 

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XMRV, Chronic fatigue Syndrome (ME/CFS) and CFS

The discovery of the XMRV retrovirus in most chronic fatigue syndrome (ME/CFS) patients could be a demarcating point in the history of this illness. The publication of the study in Science, the most prestigious scientific journal in the world, by a stellar cast of researchers from the National Cancer Institute, the Cleveland Clinic and the Whittemore Peterson Institute prompted a flood of stories across the major media outlets and scientific publications including Nature, Scientific American, the New York Times, (two articles), NPR, Fox News, LA Times, etc.

Amid concerns that the blood supply was contaminated the NIH officials announced they’d already held a conference on the issue. The Whittemore Peterson Institute rapidly conferred a new name for what it believes are a cadre of XMRV diseases they’re choosing to call XAND (X Associated Neuroimmune Diseases).

Questions were quickly raised concerning prevalence, transmission, testing, treatment, etc. Much is still unknown about this new finding with news coming in almost daily.

The Latest

XMRV and CFS: the XMRV Buzz PagePhoenix Rising has many resources on XMRV.

Check out the Phoenix Rising XMRV Buzz page for up-to-date information on the latest news and events.

Check out Treatment and Testingsections, transcriptions of talks, theResources section, an XMRV Studiespage and much more are available.

The ‘Bringing the Heat’ Blog and theFront Page section of the Phoenix Rising Forums frequently feature articles on XMRV. Of course  thePhoenix Rising Forums are the place to go to discuss XMRV.

 

Please post comments/suggestions to me using the contact box on the above left top of the page or at phoenixcfs@gmail.com.

 

The Phoenix Rising website is compiled by a layman. It is not a substitute for a physician and is for informational uses only. It does not present complete information on this drug. Please discuss any treatments in these pages with your physician.

 

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