Resources

PATIENT AND SUPPORT GROUP WEBSITES   - Click here to check other informative chronic fatigue syndrome (ME/CFS) websites.

CAREGIVER AND PARENT SUPPORT- click here

THE DOCTOR’S PAGES: ‘VISIT’ THE DOCTOR ON THE WEB  - Learn how prominent chronic fatigue syndrome (ME/CFS) doctor’s approach ME/CFS.

FORUMS - Join a group to get the latest patient talk on chronic fatigue syndrome (ME/CFS) treatment and research.

NEWSLETTERS  – Newsletters with regular updates on various aspects of ME/CFS are readily available on the net.

  • The Phoenix Rising newsletter provides up to date summaries of the latest ME/CFS research efforts as well as events, stories, interviews and more.
  • The CFID’s Association America’s monthly e-newsletter provides objective, reliable information on chronic fatigue syndrome (ME/CFS) straight to your mailbox
  • Sign up at the ‘World’s Largest Fibromyalgia and ME/CFS Syndrome Site” at Prohealth and regularly get short but well written and understandable updates on CFS research and treatment. ProHealth is run by ME/CFS patient, advocate and philanthropist Rich Carson
  • Sign up for Dr. Bell’s newsletter ‘The Lyndonville News’. Besides treating ME/CFS patients Bell has been an important advocate for many years. In his this rather irregularly distributed newsletter he supplies information in an informal and engaging manner.

BOOKS, BOOKS, BOOKS - There are more good books on chronic fatigue syndrome (ME/CFS) all the time. Click here to check out book reviews.

BLOGS, BLOGS, BLOGS, BLOGS, BLOGS - the CFS blogosphere has exploded in the last few years. Check out a list of ME/CFS blogs

VIDEOS – many videos on ME/CFS are now available including some by well known physicians such as Dr. Klimas, Dr. Enlander and Dr. Lerner. Check out videos here

ENGAGE IN PATIENT ADVOCACY - Patient advocacy is not difficult and it is necessary.  Given the poor funding of CFS  research only concerted patient efforts will ensure that the government provides funding necessary to overcome this disease.

JOIN A PATIENT SUPPORT ORGANIZATION

  • Invest in your future; the The CFID’s Association of America (CAA) is the largest patient advocacy and research organization in the U. S.
  • The IACFS/ME (International Association of Chronic Fatigue Syndrome/ME) is an ME/CFS professional/patient organization. The IACFS/ME puts on the biannual ME/CFS international conferences, lobbies government officials and provides reference material on ME/CFS. They recently produced the first Pediatric Definition of ME/CFS.

CLINICAL TRIALS

  • Interested in joining a clinical trial?  Click here to view the current and opening clinical trials in the U.S. from the CFID’s Association of America’s website.

GET TECHNICAL

  • Check out the abstracts on the latest research on CFS from the scientific journals at PubMed
  • Need some good reference material?  Check out the browse-able medical textbooks at PubMed
  • Drugs – want to learn more about the pharmaceuticals you’re taking? Keep up to date on a nice new site calledDrugWatch

SUGGESTIONS? Please contact us at Phoenixcfs@gmail.com

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