Photo of Patrick Johnson

Honouring the Memory of our Friend PatJ

by Jody Smith We want to celebrate the memory of PatJ here on Phoenix Rising. Many of our members knew him as a long-time friend on these forums. We received some sorrowful news about Pat on December 29, 2020 from his sister Shannon. “I wanted to inform you that my brother Patrick Johnson of Whitehorse, Yukon, Canada ended his suffering

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Never Enough Hours in a Day With ME/CFS

by Jody Smith ​ There just aren’t enough hours in the day for the person with ME/CFS. At least, it’s been like this for me. It’s not that I’m so terribly busy. Indeed, I am not. Not like I used to be busy, before illness. The complicating factor and really, the only factor I have any control over, is the

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Why Is it so Hard to Learn New Things With ME/CFS?​

by Jody Smith​ On good days, I mostly operate on cruise control, with the occasional moment of brilliance and quite a bit of vegetative regeneration. I can handle most things especially if they are routine and familiar. Bring in something new, though, or something I haven’t dealt with for awhile and it’s a whole new ball game. One I don’t

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ME/CFS and the Magic of the Canine Factor

Jody Smith has been taken by surprise by the value of having a dog when dealing with ME/CFS … There’s been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They’ve been fairly indifferent to my presence and

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ME/CFS: In Free Fall Through the Looking Glass

Jody Smith continues to try to put into words the horror of the altered state that hobbles the brains of those with ME/CFS …  If you’re not a fan of hallucinatory drugs you’re gonna hate ME/CFS. When I first became ill in March of 1992, the feeling of altered reality inside my head, the shaking which could not be seen

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No Longer Naive in the Ways of The Beast

After having lived for years with ME/CFS, Jody Smith learned there’s more to this beast of an illness than she realized, and that what might help one person may not help others … When I first got back online five years ago, I was naive in the ways of this beast we call ME/CFS. I guess I thought that whatever it

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Time Change Equals Jet Lag, ME/CFS Style

Jody Smith marvels at how much difference one hour can make to those with ME/CFS, as much of the world has endured The Time Change in recent weeks …  Where I live, we recently went through a time change, compliments of Daylight Savings Time. Having ME/CFS, I don’t need to travel anywhere to get jet lag. I just need the clock

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