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Life on a Dead-End Street

Jody Smith considers how her life had become one of necessary isolation, and how a chance encounter with new neighbours and the possibility of having them in her home, led to feelings of fear and insecurity. Looking back she reflects on how these concerns have slowly improved and how the occasional visitor is now more welcome… I live in a cul-de-sac

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Introducing the Blue Ribbon Foundation

Ryan Prior recalls why he and Nicole Castillo decided to make a movie about ME/CFS, and explains why they’ve now decided to form the Blue Ribbon Foundation as a new non-profit organization A year ago, I wrote a story for USA Today about my experience with ME/CFS that changed the trajectory of my life. The response to my story taught

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The Holiday Season vs. ME/CFS

By Jody Smith In North America, the end of November traditionally kicks off the holiday season which runs till the beginning of January. “Holiday season” may seem to be at best an ironic term, at worst a bad joke, for describing this most taxing of time periods, especially for people who are chronically ill, and often poor and isolated as

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Writing as Therapy: My ME/CFS Story

Jody Smith reflects on how vital she has found the slow return of her writing ability – how it has helped with the expression of feelings and experiences, contributed to reestablishing a sense of self, and has proved such an important and productive means of social interaction… In my life before ME/CFS, I did a lot of writing. I kept

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Living the Half-life of ME/CFS

Jody Smith relates how tiny victories helped her regain a life despite her limitations. What is it about situations that are unfamiliar that make our brains feel lumpy and our bodies feel like they are moving (or trying to) in another dimension? When I was at my sickest with ME/CFS, this wasn’t much of a problem, because I was spending

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How Do You Handle Autumn?

Jody Smith explains how autumn sends her body into hibernation mode, and it’s time to slow down – or else. I read recently that the term “autumn” is predominantly used in the U.K. “Fall” is more commonly used in the U.S. I’m Canadian, though, so I guess I can use either one. And I choose “autumn” simply because it causes

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