Posted by Cort Johnson We’re going to try something new, live coverage of the workshop. Since this is last minute, we need volunteers to help cover the event. Let us know if you’d like to help with a comment here or via reply in the forum article that I’m posting. You can watch the event here or in the forums.
ContinueMonth: April 2011
(Sometimes Live) NIH State of Knowledge Workshop Coverage
Posted by Cort Johnson Discuss this article on the forums We’re going to try something new, live coverage of the workshop via our community. Since this is last minute, we need volunteers to help cover the event. Let us know if you’d like to help (or think that this is a good idea) with a reply. You can watch the
Continue[Liveblog] NIH ME/CFS State of Knowledge Workshop (Day One, 7 Apr 2011)
Posted by Cort Johnson Here’s a slightly ‘kludged’ transcript of Day one of the NIH ME/CFS State of Knowledge Workshop. Some off-topic chat posts have been removed for clarity, but no remaining lines of the transcript have been altered. NIH SoK Workshop Coverage (Day 1, 7 Apr 2011)
ContinueMajor Research Funding Opportunity from the CFIDS Association
Posted by Cort Johnson The CAA released the first funding opportunity for ME/CFS researchers in three years; $600,000 in grant money to go to approximately six pilot studies to explore the physiological basis of ME/CFS. The CFIDS Association has had some success in turning it pilot studies into major NIH grants with three of its researchers (Dr. Shungu, Dr. Huber
ContinueState of the Knowledge Workshop / 2010 Research Overviews
Posted by Cort Johnson The State of the Knowledge Workshop is here and it’s a good one. A hearty congratulations to Pat Fero, Mary Schweitzer, Ken Friedman, Dr. Jason, Dr. Klimas, Dr. Vernon and Dennis Mangan for what they’ve produced. The last NIH Workshop/Conference of this sort was the Neuroimmune Conference of eight years ago and was filled with NIH
ContinueXMRV Buzz – Spinal Fluid Study/ NIH Workshop
Posted by Cort Johnson Spinal Fluid Study Negative for XMRV and other Pathogens – A couple of weeks ago a Schutzer study found abnormal levels of proteins in the spinal fluid of people with ME/CFS but this NIH funded study found no evidence of either XMRV or common pathogens in the spinal fluid of people with ME/CFS. Dr. Schutzer stated
ContinueNIH International Workshop
Posted by Cort Johnson Dennis Mangan had made good big time on his NIH makeover thus far. First it was the impromptu meeting with patients at the CFSAC meeting. Then there was the name change (ME/CFS), the ListServ, then using patients and researchers to produce the first NIH Research Workshop/Conference in 8 years. The Workshop is every bit as good
Continue2010 ME/CFS Research Overview Pt III: Immune and Pathogen Studies (excluding XMRV)
Posted by Cort Johnson CYTOKINES Cytokines have held a special interest for CFS researchers for many years because of their ability, when we have the flu, to produce many of the symptoms found in CFS. Cytokine are not easy to measure, however, and cytokine studies have had decidedly mixed results. Since they play a key role in immune activation, however,
Continue2010 ME/CFS Research Overview Pt II: The Exercise Studies…Validation and Progress
Posted by Cort Johnson Researchers are finally starting to look at what is probably the key problem in CFS – an inability to ‘exercise’ without relapsing. Following the publication of a Pacific Fatigue Lab paper which suggested that a reduced ability to produce energy following exercise might be at the core of the post-exertional relapse (PER) problems in CFS researchers
Continue2010: the Year in ME/CFS Research – A Pre- International Workshop Overview Pt I
Posted by Cort Johnson As the International Workshop on Chronic Fatigue Syndrome (ME/CFS) approaches now is a good time to look at where we are. The Workshop is just two days but it’s a big deal because it will present where the state of XMRV, of course, dominated our interest last year but quite a bit of other research took
ContinueChronic Fatigue Syndrome: A Novel – A Review
Posted by Cort Johnson “And it all began just one year from today”…. So begins Edward Abbey’s classic subversive ecoclassis “The Monkey Wrench Gang” focusing on a gallant but quirky group of environmentalists that band together to stop the ravages of big Coal in the Southwest. Caroline Anderson’s gripping portrayal of a small communities fight for health (and justice) in
ContinueA Fibromyalgia Doctor Steps Out: Dr. Dantini on Antivirals for CFS and FM
Posted by Cort Johnson Caroline Anderson’s gripping novel “A Chronic Fatigue Syndrome Novel” portrayed a small communities fight for health (and justice) in the face of a mysterious disorder. When the lead character went searching for answers she stumbled into a shadowy and even, at times, dangerous world of tainted government agencies and big corporations doing what they need to do
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