reeves

2009 In Review

Posted by Cort Johnson EVENTS Biggest Event – what else? XMRV takes the spotlight as no research finding has before, retrovirologists across the world clamor for samples, worry mounts about a tainted blood supply, Hilary Johnson blows into the New York Times Op Ed section, and patients gasp and cross their fingers in hopes that it will all work out. See XMRV

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A Dark Vision

Posted by Cort Johnson Hilary Johnson, beloved CDC headhunter is raking  the CFIDS Association over the coals again.  Once again she’s taking no prisoners. In her last blog on the CAA she called the organization the Bechtel of the CFS community and accused them of inciting a ‘pogrom’. In this blog she proclaims CAA is the CDC and vice versa .

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Phoenix Rising Researcher of the Year Pt. 1

Posted by Cort Johnson The Researcher of the Year analysis doesn’t just take research into account; it also includes their outreach into the patient community and their impact on how the research field is functioning. This year the Researcher of the Year was an easy choice. Dr. Vernon excelled in all three categories in 2008. (As she did in 2009.

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Atlanta Journalist Smacks the CDC

Posted by Cort Johnson The CDC Problem – The CDC attempted to explain away the patients explosion of frustration at their Chronic Fatigue Syndrome (ME/CFS) program as the result of a well organized  plot by the CFID’s Association of America.  They haven’t yet come up with a good explanation for the avalanche of criticism visited upon them by the professional community.  Instead of responding to

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Teflon Woman

Posted by Cort Johnson With her smile and her ingratiating matter Dr. Hanna is the NIH’s Teflon woman for ME/CFS. As Dr. Reeves punches up his next dazzling 20 minute PowerPoint presentation Dr. Hanna throws her few tidbits into the mix and shuts up. It’s remarkable how little interest there has been in what is arguably the most important federal

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CFSAC Nominations in Play

Posted by Cort Johnson The CFSAC is the  federal advisory committee on chronic fatigue syndrome. It advises the Secretary of Health on the federal response to ME/CFS including research, treatment and disability. Among the agencies it interacts with are the Centers for Disease Control, the National Institutes of Health and the Social Security Administration. FIve slots are open, one of

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Good Morning America Gets It Right!

Posted by Cort Johnson Its nice to see chronic fatigue syndrome (ME/CFS) well represented on the national stage. Dr. Donnica Moore was comfortable and poised on Good Morning America as she clearly enunciated many of the major aspects of ME/CFS.  Early on she focused on post-exertional malaise – something we really need to get across. The inevitable depression question didn’t

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Missed Opportunities Dog Efforts at Change

Posted by Cort Johnson The CFIDS Association of America generated a shockwave when Kim McCleary stood up at the federal advisory committees November 2008 meeting and accused the CDC’s CFS research program of wasting millions of dollars and engaging in poor research and said the program’s leader, Dr. Reeves had to go. The CAA would go on to slam the

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CDC Grows MORE Isolated

Posted by Cort Johnson It’s seems that the CDC has  figured this disease out. How else to explain their absence at the 3-day CAA/NIH sponsored brainstorming session recently held at Cold Harbor (“From Infection to Neurometabolism: a Nexus for CFS”). Thirty researchers from across the US and Canada were there but not one showed up from the biggest CFS team-

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CDC Quickly Breaks First Promise

Posted by Cort Johnson CDC/CFSAC BLOGS #2   International Workshop – Clinical Management of CFS The aim of this workshop (to be held summer 2009) is to establish a collaborative international consortium of investigators who will present and discuss evidence- and practice-based findings related to the treatment, and management of CFS. CDC’s Five Year Strategic Draft Plan – May 2009

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