Posted by Cort Johnson In collaboration with Dr. Klimas, Dan Moricoli of the ME-CFS Community and Knowledge Center has created a video series focusing on using VO2 max and heart rate measures to create a relapse free ‘exercise’ program to enhance ones health. Part I focuses on using the VO2 max test to determine at what heart rate patients enter
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A Fibromyalgia Doctor Steps Out: Dr. Dantini on Antivirals for CFS and FM
Posted by Cort Johnson Caroline Anderson’s gripping novel “A Chronic Fatigue Syndrome Novel” portrayed a small communities fight for health (and justice) in the face of a mysterious disorder. When the lead character went searching for answers she stumbled into a shadowy and even, at times, dangerous world of tainted government agencies and big corporations doing what they need to do
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The Long Road: “Chronic Fatigue Syndrome: A Novel” Author Returns to ‘Health’
Posted by Cort Johnson Caroline Anderson’s gripping novel “A Chronic Fatigue Syndrome Novel” protray’s a small communities fight for health (and justice) in the face of a mysterious disorder. When the lead character goes searching for answers she stumbles into a shadowy and even, at times, dangerous world of tainted government agencies and big corporations doing what they need to
Continue[Phoenix Rising Newsletter] Comedown for XMRV at CROI/Hope for Ampligen/CFS Hits the Big Time…
Posted by Cort Johnson Welcome to the first Phoenix Rising newsletter with our new newsletter using the new Amazon ‘Simple’ Mail Service! CROI! — XMRV showed up in spades in the first major Retrovirology conference of the year, CROI (Conference on Retroviruses and Opportunistic Infections), occurring in Boston. The big news came from a study which suggested XMRV may have
ContinueA Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No …
Posted by Cort Johnson The biggest and the baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program alone was hundreds of pages
ContinueReviving the Broken Marionette: THE Drug Reference for CFS and FM
Posted by Cort Johnson Another treatment book I thought…….Dr. Teitlebaum’s books had pretty comprehensively covered the waterfront for me on that end. What more could a patient authored book offer? It turns out – a lot. Maija Haavisto is a Finnish writer with CFS who’s health was declining rapidly when she found a drug, low-dose Naltrexone. (LDN), that stopped the
ContinueThe Patient Side – WPI Clinical Director Dr. Deckoff-Jones Talks
Posted by Cort Johnson The XMRV finding has put the spotlight for the past year on the research side of the WPI (or the Center for Neuro-immune Disease) but that’s just half of the equation. When the Clinical side of the Center opens sometime in May it will bring an entire new entity to the ME/CFS Community…an integrated clinic/research facility.
ContinueThe Corinne – Dr. Peterson Chronicles: Followup #2 (Sept 2010)
Posted by Cort Johnson (Corinne returns for her second Followup visit since her first visit to Dr. Peterson in Sept. 2009. She had been on a protocol consisting of saline IV’s, amino acid IV’s, procrit, probiotics and Valtrex since April, 2010. How has this former fitness instructor but now mostly bedridden person with ME/CFS been doing?….Let’s find out!) Check out
ContinueBe-ing and Accepting (Quality of Life Blogs #2)
Posted by Cort Johnson In an exploration of be-ing it pretty quickly becomes clear that we are never alone in this world…we are always, always ‘in it’ with something. Whether it’s how our body feels or our thoughts about the person at the grocery store or the dishes in the sink or our general situation we’re always in the world
ContinueTreatment the UK way – the ME Association’s ME/CFS Treatment Survey
Posted by Cort Johnson In 2008 the ME Association conducted what maybe the most comprehensive survey of treatment effectiveness ever done in ME/CFS. Over four months 4,217 people took part, most of them online. It was by no means complete with twenty five treatments or treatment types covered but it did provide a broad overview of treatment effectiveness in the
ContinueGrading Ampligen – A Mid Term Report Card (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord I never liked report cards as a student, but since today marks the completion of 14 weeks on Ampligen, signifying that I’ve just passed the quarter-mile mark, I thought I’d give you an update on my progress, by way of some mid-term grades. After having 28 infusions of this amazing
ContinueNot So Fine After All: the FINE Trial Crashes to Earth
Posted by Cort Johnson A million and a half dollars, two hundred fifty patients and seven years later the UK government’s best hope for locking in its twisted approach to ME/CFS permanently, fell to earth with a crash. UK ME/CFS patients, certainly aren’t out of the woods, but they can breathe a sigh of relief that they dodged a massive
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