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Do You Have to Travel Far for ME/CFS Medical Visits?

An aisle in an airplane full of people.

by Jody Smith​ One of the things that can strike fear into the heart of a person with ME/CFS is the prospect of going to the doctor. Worse yet is the ordeal of having to travel a long distance for such an appointment. An hour or two traveling is bad enough but sometimes it’s necessary […]

Our Newly Ill Face Their First Holiday Season with ME/CFS​

Woman standing surrounded by ethereal falling stars.

by Jody Smith Don’t look now! The holiday season is on its way. I’ve lived through decades of them with ME/CFS. So have many of you in our chronically ill community. That’s beyond sad for all of us. But at least we have some idea what we’re contending with, and have learned our ways of […]

The advent of autumn can hit Jody Smith pretty hard. She’s learned a few ways to lessen the damage every year. How do you handle the change of seasons? Summer is my best season, hands down. Fewer ME/CFS symptoms get in my way. After a while, I tend to forget that this is a summer hiatus … […]

Person lying in bed with eyes closed.

Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.   Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example of […]

Empty shoes in a circle on the ground.

by Jody Smith Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world. […]

Candles at night, laid out as in a vigil.

by Jody Smith  The holiday season just doesn’t live up to the hype, especially for the chronically ill and their caregivers. You people with ME/CFS know all too well what I’m talking about. I am one of the lucky ones, and I know it. My symptoms are generally mild and while they keep my life […]

Person lying in bed, eyes closed.

Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 … Once again, August 8 is important for those of us with ME, especially for those whose illness is quite severe. I’ve seen Severe Myalgic Encephalomyelitis Day of Understanding […]

OverTheHills wraps up our series of articles on this year’s 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.  Friday the 2nd of June was a big day for me, I’d never been to a medical research conference before, […]

Logo of Invest in ME conference 2012.

MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London. The 12th Invest in ME International ME Conference (IIMEC12) was held at One Great George Street on Friday June 2nd, 2017. You can view the full conference agenda (with photos and biographies of […]

The 12th Invest in ME Conference, Part 1

OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London. The 12th Invest in ME International ME Conference (IIMEC12) was held at One Great George Street on Friday June 2nd, 2017. You can view the full conference agenda (with photos and biographies of […]

I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is only the epilogue that […]

Writer Never Give Up talks about Julie Rehmeyer’s new book “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t Understand” and shares an interview with Julie …  A riveting new book by science journalist, patient and ME/CFS champion, Julie Rehmeyer, has just hit the stands. “Through the Shadowlands: A Science Writer’s Odyssey […]