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An Interview with Marly Siliverman, the Founder of PANDORA, by Cort Johnson In a few years Marly Silverman has built P.A.N.D.O.R.A. into one of the most dynamic CFS patient organizations in the U.S. P.A.N.D.O.R.A. is co-sponsoring the IACFS conference in Florida taking place from Jan 10th-14th and is organizing the big patient conference taking place on January 10th and 11th.

Rik Carlson was a successful small businessman for many years before being struck by a severe case of CFS following a flu-like illness on New Years day in 1995. Two years later he had lost his business. He founded the first state Vermont CFS group, the Vermont CFIDS Association (VT CFIDS Association. In 2003, after six years of work he

  Dr. Ken Friedman on Chronic Fatigue Syndrome (ME/CFS) Part III: ‘Just Our Beginning’ Success at the State Level, the Name Change and The Future by Cort Johnson The Name Change The CFSCC initiated a discussion regarding a name change. A Name Change Workgroup was formed and it gathered a lot of input from chronic fatigue syndrome patients and eventually

  An Interview with Pat Fero of the Wisconsin Chronic Fatigue Syndrome Association The CFS/FM support groups perform a lot of vital functions for CFS/FM patients; they provide advice, physician and legal referrals, emotional support and they advocate for change usually on a bare bones budget. Often run by people who themselves have CFS/FM they are the bread and butter

A Report on the 8th IACFS Conference in Fort Lauderdale, Florida, 2007 by Rosamund Vallings, M.D. I was privileged to attend the 8thIACFS conference in Fort Lauderdale, Florida from 10-14thJanuary 2007. There was a larger number of presentations and attendees than at any previous CFS conference, and the quality of presentations and research achieved in the past 2 years was

  The 2007 PANDORA Patient’s Conference: PART I: Politics, Advocacy and the Media, Dr. Teitlebaum and D-ribose, Ask the Experts by Cort Johnson The patient conference was an overwhelming success. It has always been a kind of poor sister to the professional conference but this time with its strong program and top-notch speakers the patient conference was a success in

8th International IACFS Conference on CFS, FM, and Related Illnesses by Charles Lappe, M.D., Director of the Hunter-Hopkins Medical Center The 2007 meeting of the IACFS (formerly AACFS) has set new records for attendance, including more than 250 professionals and over 300 patients. An effort has been made to expand internationally, and over 21 countries were represented at this meeting!

AACFS Conference Oct. 8-10th, Madison Wisconsin Report by Dr. Rosamund Vallings A day of research presentations was followed by two clinical days with a patient conference running alongside. I felt privileged to attend the research and clinical segment RESEARCH CONFERENCE RESEARCH OVERVIEW, by A.Komaroff (Boston) – In Chronic Fatigue Syndrome, functional status is much reduced in all areas and $9

A REPORT FROM THE FIFTH INTERNATIONAL AACFS CONFERENCE by Dr. Rosamund Vallings From January 26-29, 2001, I was privileged to attend the AACFS 5th International conference for Chronic Fatigue Syndrome hosted by Sudhir Gupta, the President of AACFS. It was an exciting experience to once again learn of the great wealth of research currently taking place, and to meet with