Systemic Change Needed: CAA Hits CDC Again

Posted by Cort Johnson “The CDC’s CFS research group has lost it’s mojo” Kim McCleary Patient anger towards the CDC’s CFS research effort has been high for many years and the patient comments provided many heartfelt and cogent critiques of the group at the public comments meeting but the CFID’s Association of America is in a different position. For one,

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Patients Blast the CDC

Posted by Cort Johnson The public review session on Monday in Atlanta was part of the CDC’s ten-year review of the program. Thus far the research program has received several internal reviews and an external review and is now in the process of creating a Five-Year Strategic Plan. The public review session Atlanta was focused on suggestions regarding the CDC’s

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Dr. Cheney Goes His Own Way: the Virginia 2009 Lecture

Posted by Cort Johnson Dr. Cheney gave a lecture on ME/CFS (chronic fatigue syndrome) on April 25th, courtesy of the Northern Virginia CFS/ME/FM and OI Support group. According to a report of the talk posted by Chris on CFSFMExperimental Yahoogroup on April 27th, Dr. Cheney, a creative physician and provocative speaker, did not disappoint. In a three hour non-stop, often

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The Best, Worst, Biggest, Least…2008 in a Nutshell

Posted by Cort Johnson Most Remarkable Achievement (of the Decade) – As funding at the NIH and CDC plummets a major research/treatment center, the Whittemore-Peterson Neuro-Immune Institute – begins to rise out of the deserts of Nevada just over the hill from Incline Village. The WPI is a testament to the tenacious commitment of three people; Annette and Harvey Whittemore

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Dan Moricoli at the IACFS/ME Conference

Posted by Cort Johnson Dan Moricoli was no shrinking violet before he came down with chronic fatigue syndrome (ME/CFS) three years ago. A business owner, internet marketer, motorcycle racer, skiing enthusiast and deep-sea fisherman Dan was, in fact, something of an adrenaline junky. At sixty Dan’s idea of coming down from the stress of work was to race motorcycles. But

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The NIH On the Clock Pt. III: It’s Raining Money

Posted by Cort Johnson That’s right – in the midst of the greatest economic contraction since the depression the NIH has, all of sudden, found itself in the greatest single expansion in its history. How and why demonstrates how much influence one Senator can have. Desperate to get Arlen Spectors vote on the stimulus package, the Obama administion acceded to

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Roadtrip – Reno Conference

Posted by Cort Johnson I didn’t intend to blog about my trip to the conference but the trip was for me, like for other ME/CFS patients, half the battle. Several people I talked to at the conference noted how difficult travel was. My ability to travel has increased greatly over the past few years. I no longer worry about being

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