The ME/CFS Disability Pages on Phoenix Rising Helpful Hints Getting The Diagnosis Documenting Your Limitations Resources Books and Articles How to Apply for Social Security Disability Benefits If You Have Chronic Fatigue Syndrome (CFS/CFIDS)” – compiled by Kenneth S. Casanova – is available free from the Massachusetts CFIDS Association website. Easily the best single disability resource on ME/CFS. Scott Davis’s Papers
Search Results for: disability resources
Disability Financial Support
Disability comes with large costs. Besides having an income that’s usually far lower than what the patient is used to, disability can also lead to social isolation as well. For patients no longer able to withstand the rigors of work, however, a disability pension can provide a financial lifeline and a chance to recover at least some of their health.
Living With a Disability
This new page on Phoenix Rising highlights resources that assist people living with a disability in their day-to-day lives. We welcome your comments and suggestions :). Finances Housing and Mortgages – a how-to guide to buying a house for people with disabilities
Disability III: Documenting Your Limitations
The ME/CFS Disability Pages on Phoenix Rising Helpful Hints Getting The Diagnosis Documenting Your Limitations Resources Most patients are able to verify that they have chronic fatigue syndrome. The really tricky part lies in proving that the limitations that this disease places on you make it impossible for you to work. “Your case is won or lost based on the
Disability II: Getting The Diagnosis
The ME/CFS Disability Pages on Phoenix Rising Helpful Hints Getting The Diagnosis Documenting Your Limitations Resources Your Physician’s Role Finding a doctor knowledgeable in chronic fatigue syndrome (ME/CFS) and in disability matters is crucial. Your doctor is responsible for documenting that you have chronic fatigue syndrome (ME/CFS) and clearly stating that the nature and severity of your illness keeps you
ME/CFS Buzz: Med Students/Chromosomes/Disability/Growth Hormone/FM Everywhere? (April 17, 2012)
Posted by Cort Johnson RESEARCH A Real Disease or What? Medical Student Survey Suggests Younger Generation Starting to Get It BMC Med Educ. 2012 Apr 3;12(1):19. [Epub ahead of print] Do you think it’s a disease? A survey of medical students. Erueti C, Glasziou P, Del Mar C, Van Driel ML. Almost 200 medical students at Bond University in Australia were polled as to
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Part 1: Millions Missing in Mexico
In the first of a three-part series, people describe the challenges of living with neuroimmune diseases in Mexico. The science of these diseases is also discussed, and we try to understand why the latest science is not informing proper medical treatment. Versión en español • Versão em português By Eric Pyrrhus “On days when the symptoms are manageable, I walk
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Doctors with ME Confront the Taboo of Suicide
By Bronc It was a warm summer evening and I was looking forward to watching one of my favourite films, when I received a text from my best friend. I expected the text to be a question asking me what film I was going to watch. Instead, he informed me that the night before he had attempted to kill himself.
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Invisible Disabilities Week Is Oct. 13 – 19, 2019
by Jody Smith The ME/CFS community is all too familiar with the realities of invisible disabilities. As a matter of fact we are rife with them. For this reason, we’re happy to make some noise for Invisible Disabilities Week. If you have an invisible disability, you’re living with one or more physical, mental or neurological challenges that other people might
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Julie Rehmeyer’s ‘Through the Shadowlands’
Writer Never Give Up talks about Julie Rehmeyer’s new book “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t Understand” and shares an interview with Julie … A riveting new book by science journalist, patient and ME/CFS champion, Julie Rehmeyer, has just hit the stands. “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t
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Professor & patients’ paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS … Recently, Professor Jonathan Edwards, with patients and carers as co-authors (including me), published a peer-reviewed editorial in the medical journal Fatigue: Biomedicine, Health & Behavior. The article became their most-viewed paper within a few days. The editorial highlights
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Dr. Bateman answers IOM questions from the community: Part 2
Clark Ellis brings us Part 2 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community … The Institute of Medicine recently published its report into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). One of the committee members, Dr. Lucinda Bateman, graciously agreed to answer questions submitted by members of the patient community. Questions were submitted
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