Dr. Klimas was raked over the coals recently for being a co-author of a study on stress management that brought symptomatic relief to some people with CFS. In the upset of the moment the rest of Dr. Klimas’s work – her uncovering of the central immune dysfunction in ME/CFS (NK cell dysfunction), her numerous research papers, her advocacy work as President of the IACFS/ME, IACFS/ME Board member, CFSAC member, Fair Name Committee Member and her decades of work as a physician specializing in ME/CFS, was mostly forgotten.
Now it’s Dr. Vernon’s turn to be at the end of a ‘guilt by association’ charge.… Read More
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Guilty!
Dr. Klimas was raked over the coals recently for being a co-author of a study on stress management that brought symptomatic relief to some people with CFS. In the upset of the moment the rest of Dr. Klimas’s work – her uncovering of the central immune dysfunction in ME/CFS (NK cell dysfunction), her numerous research papers, her advocacy work as President of the IACFS/ME, IACFS/ME Board member, CFSAC member, Fair Name Committee Member and her decades of work as a physician specializing in ME/CFS, was mostly forgotten.
Now it’s Dr. Vernon’s turn to be at the end of a ‘guilt by association’ charge.… Read More
CBS News was in Miami yesterday filming the Miami Coral Gables CFIDS Group meeting with Dr. Klimas. According to reports Dr. Klimas met with them after the meeting to do an interview about the PACE trial and Dr. Natelson’s new study validating a previous study finding abnormal proteins in the spinal fluid of ME/CFS patients indicating neuroinflammation.
If this is a validation of the Dr. Baraniuk’s spinal fluid study we’re in real luck because we’ve heard that his own validation of the study should be coming out shortly. Thus we may have two studies coming out one after another indicating neuro-inflammation is present in the brains of people with chronic fatigue syndrome.… Read More
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CBS News was in Miami yesterday filming the Miami Coral Gables CFIDS Group meeting with Dr. Klimas. According to reports Dr. Klimas met with them after the meeting to do an interview about the PACE trial and Dr. Natelson’s new study validating a previous study finding abnormal proteins in the spinal fluid of ME/CFS patients indicating neuroinflammation.
If this is a validation of the Dr. Baraniuk’s spinal fluid study we’re in real luck because we’ve heard that his own validation of the study should be coming out shortly. Thus we may have two studies coming out one after another indicating neuro-inflammation is present in the brains of people with chronic fatigue syndrome.… Read More
The biggest and the baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program alone was hundreds of pages long.
The stakes were high. The big Belgian government funded CBT study to end all CBT studies failed miserably last year leading CBT advocates to sputter that the trial had not failed but that expectations were simply too high – as if a return to health was an unreasonable expectation.… Read More
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The biggest and baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program alone was hundreds of pages long.
The stakes were high. The big Belgian government funded CBT study to end all CBT studies failed miserably last year leading CBT advocates to sputter that the trial had not failed but that expectations were simply too high – as if a return to health was an unreasonable expectation.… Read More
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In an abrupt break with past history, the new Chief of the CDC’s CFS research program, Dr. Unger agreed to meet with ME/CFS reps to discuss concerns about the CDC’s CFS program. Her predecessor Dr. Reeves had refused several efforts by patient reps to meet. The meeting was prompted by a collective effort by 11 patient advocacy organizations – lead by PANDORA – to marshall their forces to produce change at the CDC.
The meeting, therefore, is notable for two reasons;
a) this is the first time in memory that a large group of patient advocacy organizations have worked together to maximize their voice and it worked; Dr.… Read More
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Written by Cort
The Quality of Life Blogs
This is the start of a series of blogs on Toni Bernhardt’s book “How to be Sick: A Buddhist Inspired Guide for the Chronically Ill and Their Caregivers”. I will supplement my background with a more Western approach with Toni’s Buddhistic approach – and see what happens.
Tony came down with CFS during a ‘romantic’ or at least planned for romantic trip to Paris in 2001. Unfortunately whatever she got she got on the plane ride over. I’m going to skip Chapter I and II on how much fun it is to spend your long awaited European vacation watching trashy French TV (the only kind apparently!) while stuck in your bedroom and then the progression of her illness (got better/got worse/stayed worse) in California.… Read More
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Written by hildevdh
(Dark Days in Europe - Not long after Dr. Myhill was attacked (and got reinstated) two physicians in Belgium are threatened with the loss of their license as well.)
“Chronic fatigue is a rubbish-dump” – The battle for the CFS patient.
Original (Dutch): http://www.standaard.be/artikel/detail.aspx?artikelid=3835C9OL&subsection=3
By Griet Plets, in De Standaard, 24 Jan 2011
Brussels – Yes or no, psychosomatic or more than just ‘all in the mind’? The discussion about chronic fatigue (CFS) rages on since many years. This afternoon the matter will be pushed to the extreme, as Francis Coucke appears before the Order of Physicians.… Read More
