Photo of Dr. Mark Zinn in front of his computers with brain images on the screens.

Central Autonomic Network Disturbance in People with ME: A Conversation with Dr. Mark Zinn

by Bronc Dr. Mark Zinn and his late wife Dr. Marcie Zinn co-founded the NeuroCognitive Research Institute. He has expertise in quantitative and tomographic methods of electro-encephalographic analysis, in order to test theoretical premises in research involving neurocognitive disorders. From 2011-2014 he served as research consultant at the Stanford University School of Medicine, where he studied cognitive impairment in infection-associated chronic

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Photo of Dr. Anthony Komaroff, smiling outside.

Where Exactly does ME/CFS Research Stand in 2021? Dr. Komaroff Explains

From the central nervous system to Long COVID to energy impairment, Dr. Anthony Komaroff provides his perspective on over 30 years of scientific research into myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) and post-acute viral illnesses. Versión en español • Version française By Bronc and Eric Pyrrhus Dr. Anthony Komaroff is really on a roll. For a sometimes reserved academic, he’s been

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Photo of demonstration in Pamplona.

Invisible Disability: A Tough Fight and a Big Win for Patients in Spain

In Spain, patients with neuroimmune diseases such as fibromyalgia or myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) have been disgusted at their government’s refusal to recognize them as seriously disabled human beings. This week brought news of a big step forward. By Eric Pyrrhus Versión en español • Version française • Deutsche Version In 2019 the Spanish government agency that oversees

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Image of an extracellular vesicle with potential contents

Extracellular Vesicles and Micro-RNAs in ME/CFS

A conversation with Dr. Elisa Oltra and Dr. Jesus Castro By Eric Pyrrhus Versión en español In 2020, there were three different scientific publications about “extracellular vesicles” and four different scientific publications about “micro-RNAs” in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). What exactly are extracellular vesicles and micro-RNAs and why are they both such exciting fields of research? A vesicle

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Photo of Patrick Johnson

Honouring the Memory of our Friend PatJ

by Jody Smith We want to celebrate the memory of PatJ here on Phoenix Rising. Many of our members knew him as a long-time friend on these forums. We received some sorrowful news about Pat on December 29, 2020 from his sister Shannon. “I wanted to inform you that my brother Patrick Johnson of Whitehorse, Yukon, Canada ended his suffering

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Image of rose with the word "Sorry".

The Apologizers of the ME/CFS World

by Jody Smith I’m Canadian, so I hear a lot of good-natured jokes about how Canadians apologize all the time. It’s funny in part because … in part, it’s true. But you know who else apologizes a lot? Chronically ill people. And that ain’t so funny. Now some of us were probably like that before becoming ill. But what’s particularly

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