April 2011

Posted by Cort Johnson

Dennis Mangan had made good big time on his NIH makeover thus far. First it was the impromptu meeting with patients at the CFSAC meeting. Then there was the name change (ME/CFS), the ListServ, then using patients and researchers to produce the first NIH Research Workshop/Conference in 8 years. The Workshop is every bit as good as we’d hoped and congratulations must go to the planning committee composed of Pat Fero, Mary Schweitzer, Ken Friedman, Dr. Jason, Dr. Klimas and Dr. Vernon.

What a difference eight years makes. Yes, funding is still abysmal but something at the NIH has changed.… Read More

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Posted by Cort Johnson

CYTOKINES

Cytokines have held a special interest for CFS researchers for many years because of their ability, when we have the flu, to produce many of the symptoms found in CFS. Cytokine are not easy to measure, however, and cytokine studies have had decidedly mixed results. Since they play a key role in immune activation, however, groups keep looking. This year was no different from others with researchers coming up with, once again, mixed results.

A small Lloyd Australian study http://cid.oxfordjournals.org/conten….full.pdf+html underscored the difficulty of getting clear and unambiguous finding from immune studies when the most comprehensive analysis yet of cytokine levels in ME/CFS (35 tests) failed to find any correlation between cytokine levels and CFS.… Read More

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Posted by Cort Johnson

Exercise Studies for CFS 2010Researchers are finally starting to look at what is probably the key problem in CFS – an inability to ‘exercise’ without relapsing. Following the publication of a Pacific Fatigue Lab paper which suggested that a reduced ability to produce energy following exercise might be at the core of the post-exertional relapse (PER) problems in CFS researchers have begun to focus more on exercise and stress testing.

2010 indicated that this subject has taken hold in the small ME/CFS research community.

First we take a look at validation studies – a key, key issue for any ME/CFS topic.

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Posted by Cort Johnson

ME'CFS Research 2010As the International Workshop on Chronic Fatigue Syndrome (ME/CFS) approaches now is a good time to look at where we are. The Workshop is just two days but it’s a big deal because it will present where the state of XMRV, of course, dominated our interest last year but quite a bit of other research took place and this is the research that will take center stage at the Workshop. That is what this overview will focus on.

Let’s see how ME/CFS researchers are putting the pieces together 25 plus years into this illness. The Workshop should lead to a major grant opportunity from the NIH.… Read More

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Posted by Cort Johnson

“And it all began just one year from today”…. So begins Edward Abbey’s classic subversive ecoclassis “The Monkey Wrench Gang” focusing on a gallant but quirky group of environmentalists that band together to stop the ravages of big Coal in the Southwest.

Caroline Anderson’s gripping portrayal of a small communities fight for health (and justice) in the face of a mysterious disorder in “A Chronic Fatigue Syndrome Novel” is not far removed from Abbey’s creation. When the local country doc, Alistair, goes searching for answers she stumbles into a shadowy and even, at times, dangerous world of tainted government agencies and big corporations doing what they need to do to ensure their bottom line is met.… Read More

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Posted by Cort Johnson

Dr. Dantini on treating fibromyalgia and chronic fatigue syndrome with antivirals

Caroline Anderson’s gripping novel “A Chronic Fatigue Syndrome Novel” portrayed a small communities fight for health (and justice) in the face of a mysterious disorder. When the lead character went searching for answers she stumbled into a shadowy and even, at times, dangerous world of tainted government agencies and big corporations doing what they need to do to ensure their bottom line is met.  

Caroline herself has been looking for answers for decades and her fight, fraught with misdiagnosis, confusion and even doctor neglect, has been every bit as tumultuous. Unlike many people with ME/CFS, however, it does have a happy ending and the reason for that is Doctor Dantini.

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Posted by Cort Johnson

Caroline Anderson’s gripping novel “A Chronic Fatigue Syndrome Novel” protray’s a small communities fight for health (and justice) in the face of a mysterious disorder. When the lead character goes searching for answers she stumbles into a shadowy and even, at times, dangerous world of tainted government agencies and big corporations doing what they need to do to ensure their bottom line is met.

Caroline herself has been looking for answers for decades and her fight, fraught with misdiagnosis, confusion and even doctor neglect, has been every bit as tumultuous. Unlike many people with ME/CFS, however, it does have a happy ending and such provides Unlike many people with ME/CFS, however, it does have a happy ending and such provides hope.Read More

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Posted by Cort Johnson

I missed the meeting and the video is not up yet but got Dr. Mikovit’s slides and Alex provided a summary as well. (This is a little late but we’ve had trouble posting to the website lately). The high point of Dr. Mikovits talk was her report of finding an human signature of infection in her XMRV samples.

Dr. Mikovits slides clearly state that XMRV is not an endogenous retrovirus but a new human virus but there appears to be a little twist (?) as one of her opening slides now states that “How XMRV got into humans is unclear” (or did I just not pick that up before?).… Read More

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5287-puzzle-lg.jpgAs the International Workshop on Chronic Fatigue Syndrome (ME/CFS) approaches now is a good time to look at where we are. The Workshop is just two days but it’s a big deal because it will present where the state of XMRV, of course, dominated our interest last year but quite a bit of other research took place and this is the research that will take center stage at the Workshop. That is what this overview will focus on. Let’s see how ME/CFS researchers are putting the pieces together 25 plus years into this illness.… Read More

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