It’s hard to beat a three for one deal – you put a dollar in for ME/CFS research and the McGrath Family Foundation will match it with three more dollars. It’s particularly hard to ignore when it’s going to a research team with a proven record of success. The CAA’s research team is nothing if not innovative. They are determining
- if ME/CFS patients brains are functioning as anerobically as their bodies seem to be
- if standing up causes a flare of free radicals that causing you to tip over, grow dizzy or at the very least ditch several points of IQ
- if exercise causes CFS patients gut microflora to go bananas – spiking an immune response – and causing post-exertional fatigue
- if exercise causes sensory, immune and endocrine genes involved in pain, fatigue and blood vessel functioning to spike resulting in pain, fatigue and you know the rest
- if immune and other gene expression networks hold the key to subsetting CFS
- a computer program that develops novel theories for CFS using existing research
That’s not all.… Read More
In Part II of the XMRV section of the conference we look at the Coffin/Mikovits presentations, Hanson’s update on her XMRV work and look at the recent XMRV research findings.
The pMLVs Strike Out – Hanson Disavows Former Results
“The sensitivity of the PCR assays used requires extreme caution in interpreting results
Dr. Maureen Hanson”
Background – Dr. Hanson’s was one of two labs (Lo/Alter) to find not XMRV but closely related murine leukemia viruses called pMLV’s, in CFS blood samples. Dr. Mikovits heralded the findings as proof that a family of murine leukemia viruses were present in chronic fatigue syndrome but the their similarity to endogenous retroviruses raised a red flag.… Read More
Pt. IA: XMRV: the Big Test – the Blood Working Study (Taken From the Ottawa Conference/CFIDS Association Webinar)
The Blood Working Group was a large group (25) made of federal officials from various agencies (CDC, NIH, FDA), the Red Cross, several laboratories including the WP, several Universities and put together just a month after the XMRV Science paper published in Oct 2009.
The CAA brought together three members of the BWG – none of whom were employed by the federal government to explain the results in their latest webinar.… Read More
Dr. Judy Mikovits has had a difficult couple of months. First the BWG study indicated the tests she developed for XMRV were not valid, then evidence of contamination resulted in a partial retraction of the original Science paper, then she was accused of doctoring a photo at a conference and in the original Science paper prompting several investigation, then she was terminated from her job at the WPI, then she was served with a lawsuit claiming that she had stolen data from the WPI and since last week, she’s being in the Ventura County jail waiting arraignment as a fugitive from justice.… Read More
We started out with seven CFS non-profits in the running for $175,000 in the Chase Community Giving Contest. We knew the contest was going to get really volatile in the last couple of days and it has with four organizations dropping like rocks.
With only 22 hours left in the contest only three organizations appear assured of taking home any money; the IACFS (AACFS), the CFSKnowledge Center and Mass CFIDS.
Rocky Mountain and Wisconsin have dropped precipitously and are in the last few hours have dropped out of the top 100 (and the $25,000 prize).… Read More
The RMCFA is one of six CFS organizations in the running for from 25K in the Chase Community Giving Contest running until Aug 22nd. Chances are,though, that after being in contention for 2 weeks, on the last day of being in the Chase Community Giving contest, the RMCFA will drop out of the top 100 and come up penniless.
We don’t want this to happen. We have 22 hours to make sure that it doesn’t happen.
Incorporated in 1991, the RMCFA provides regular speakers, a monthly email newsletter and an Action Center.… Read More
Discuss this article on the forums
The Chase Community Giving Contest is virtually the only way for penny-poor CFS non-profits to come up with easy cash. With four days left in the contest two non-profits – the New Jersey CFS Association (#93) and the Enterovirus Foundation (#81) – are hanging on by the skin of their teeth. The next couple of days will make or break them.
Let’s take a look at these two organizations
The New Jersey CFS Association
A Leader Struggles – That the NJCFSA is struggling in the Chase Contest is a bit strange since it may be the most dynamic state CFS non-profit support group in the country.… Read More
Only Four days left for Chase Community Giving and two of our most important CFS non-profits are in the running. Check out why your vote for these organizations will make a difference for ME/CFS.
CFS Knowledge Center The CFSKnowledgeCenter is actually two sites: a thriving Community Center with blogs, research surveys and CFS support groups and a knowledge base containing articles and video’s
The CFSKnowledgeCenter already easily had the biggest ME/CFS video collection on the web at but Dan Moricoli, the owner of the site, has taken it one step further and has been collaborating with Dr.… Read More