Posted by Cort Johnson Getting Social Security Disability/Supplemental Income (SSD/SSI) can be a lifeline for financially beleaguered people with CFS (ME/CFS) but the application process is often lengthy and difficult. Anecdotal reports from physicians and patients suggest getting disability may be more difficult for CFS patients yet documentation of success rates is lacking and little hard data exists on what
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Posted by Cort Johnson RESEARCH A Biological Cause of ‘Poor Stress Management’ Found in ME/CFS? Brain Behav Immun. 2012 Mar 6. Stress management skills, neuroimmune processes and fatigue levels in persons with chronic fatigue syndrome. Lattie EG, Antoni MH, Fletcher MA, Penedo F, Czaja S, Lopez C, Perdomo D, Sala A, Nair S, Fu SH, Klimas N. Its certainly not clear that everyone with ME/CFS reacts poorly to stress but anecdotal reports suggest that
ContinuePosted by Cort Johnson Discuss this article on the forums Many researchers think the problems in the brain or central nervous system probably play a key role in ME/CFS. Some of the most interesting research in the past couple of years has focused on the brain and the Ottawa conference was no exception. At the conference we saw research findings
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Posted by Cort Johnson The recent blog on Hemispherx’s Ampligen study has been amended to take account of the fact that the study involved an analysis of data from a 1998-2004 study. The blog in its original state suggested that this was a new study done in response to the FDA’s 2009 concerns. That was not true. Hemispherx may have
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Posted by Cort Johnson Short-take: Hemispherx provides added proof of Ampligens efficacy in ME/CFS and allays safety fears but is it enough? Hemispherx has published a major study on the effects of Ampligen (Rintatolimod) on CFS. Ampligen has been under the gun since the FDA’s refusal to approve the drug in 2009, pending more study. A Big Blow – In
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Posted by Cort Johnson Many researchers think the problems in the brain or central nervous system probably play a key role in ME/CFS. Some of the most interesting research in the past couple of years has focused on the brain and the Ottawa conference was no exception. At the conference we saw research findings begin to focus on specific areas
ContinuePosted by Cort Johnson Discuss this article on the forums Written by Cort The Phoenix Rising Forums are moving :Retro eek:….to a new Forum package called Xenforo. The move did not come easy (particularly for me); VBulletin has been good to us but after taking a close look at both packages it became clear which way we should go…Xenforo is
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Posted by Cort Johnson RESEARCH GROUPS ON THE MARCH….. CAA Spells Out Approach in Research Ist Webinar I believe we are at the cusp of a revolution in how CFS is viewed, researched and treated. I don’t know it’s a year or 5 years but the future has never been brighter. Kim McCleary With 471 people enrolled, participation in a
ContinuePosted by Cort Johnson After looking at private/non-profit research efforts in 2012 we turn to what the Feds (CDC, NIH, DOD) will be doing…. Centers for Disease Control The CDC approach to ME/CFS under Dr. Unger is changing and for the better. Increased outreach and collaboration have become hallmarks of Dr. Unger’s CFS CDC program. Physician Education Three Continuing Medical
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Posted by Cort Johnson As part of a treatment overview Phoenix Rising is documenting what has worked for individuals who have gotten well or nearly well. While recovery is not common it does happen and we want to find out how. If you’ve recovered or have mostly recovered please give us your stories. If you know someone who’s recovered please
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Posted by Cort Johnson The CFIDS Association of America (CAA) released a list $2 million dollars worth of new CAA funded studies last week. There’s something of a ‘gestalt’ to a CAA study; the CAA likes to fund studies that gather enormous amounts of information and then use data mining techniques to ferret out new patterns, they like to ‘smush’ researchers
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