by Cort Johnson “Other patients suffer a severe, long lasting illness, for which treatment is ineffectual, and even after the parasite has finally been eliminated, some sequelae persist, affecting quality of life and continuing to cause the patient discomfort or pain” (LJ Robertson et al, 2010) Giardia is an interesting bug. Perhaps the most common intestinal parasite in developing areas,
ContinueMonth: November 2012
Press Conference Celebrates One Year Anniversary Support of ABLE Act
by Jody Smith A year ago, on Nov. 15, 2011, the Achieving a Better Life Experience Act (ABLE Act – HR 3423/S 1872) was introduced in Congress. On the one-year anniversary of the introduction of the bill, a press conference was held to build on the continuing support to make changes to the U.S. tax code. Since its introduction last
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Your $1 is worth $40 in Simmaron’s biomarker funding challenge
by Sasha I saw 10 pence on the pavement yesterday. It was lying in some mud so I didn’t pick it up. I wish I had now: I’d forgotten it was really worth four quid. How come? Because if the Simmaron Research Foundation can get $225,000 for a pilot study, it will bag them a guaranteed $800,000 from an Australian
ContinueStanford Antiviral Chronic Fatigue Syndrome Trial Promises Hope, But More Study Needed
by Cort Johnson Before XMRV was Kogelnik/Montoya…the 2006 unblinded Kogelnik/Montoya study, finding that 6 months of Valcyte use returned 75% of participants to full health, hit the community like a lightning bolt. Yes, the study was very small (12 people) and it was unblinded, but the stories of recovery were so dramatic that it was hard to imagine they hadn’t
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Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Webinar: Working Together for Change
by Jody Smith The FDA held the Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Webinar: Working Together for Change on November 15, 2012. An invitation had been issued earlier to Phoenix Rising and anyone interested in attending. There was not much mention of ME/CFS until well into the webinar, which surprised me and left me dismayed at first. Instead, speakers talked about
ContinueThis Sunday, Nov 18: Memorial Teleconference for Rich Van Konynenburg
This Sunday November 18th, members of the ME/CFS, Lyme and MCS communities are invited to join together in a teleconference to say “Thank you; We love you; Goodbye” to Rich Van Konynenburg. All are invited to the ME/CFS, Lyme and MCS community’s Memorial Service for Rich Van Konynenburg on November 18, 2012 On Sunday, November 18, 2012, please join
ContinuePut Some Gas in ME/CFS Patients Tanks: Help Two Non-Profits Bring Home 5K in Citgo Refueling Contest
by Cort Johnson It’s no fun when your ‘gas tank’ is empty. In fact it’s crazy how many of us are running on fumes on so many levels…personally, medically, financially…How nice it would be, out of the blue, to have a little fill up once in a while. With the winners of the contest riding away with a cool $5,000
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Role of Krebs Cycle and ATP Production in ME/CFS
By Jody Smith Energy. It’s defined by Merriam-Webster.com as the force that drives and sustains mental activity, and the capacity for doing work. ME/CFS is noteworthy for a dearth of it. Anyone with ME/CFS knows all too well what it’s like to be so exhausted that we can’t lift our heads. We have very likely had the experience of being
ContinueWhat the Obama/Biden Victory Means For the Chronic Fatigue Syndrome Community
by Cort Johnson The results of the Presidential election leave the ME/CFS Community with a chance and some hope, but no guarantees of major change… Research With President Obama in office, the National Institutes of Health (NIH) will remain as budget challenged as ever, and the chances of getting significantly more funding remain low at best, but as the country
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Adaptogens for Adrenal Fatigue
by Jody Smith Adrenal fatigue may respond favorably to the use of adaptogenic herbs. An adaptogenic herb helps the body to normalize after times of stress. It decreases hormone secretions when levels are too high, and increases hormones when levels are too low. Many athletes like adaptogens because the herbs enable their bodies to recover faster from an intense workout
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Adrenal Fatigue: A Possible Element of ME/CFS?
By Jody Smith ME/CFS is not the only condition that the medical community can’t seem to reach a consensus about. Adrenal fatigue is another topic that raises conflicting opinions from different quarters. Is it a valid diagnosis? Is it not? Is this the paradigm of how the adrenals work? Is that paradigm closer to the truth? The debate goes on.
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