Aviva! Your vote can help fund a year of ME/FM awareness in Canada!

October 2, 2013

It will cost you nothing more than an online vote to help see the National ME/FM Action Network enter the second round of the Aviva community competition to win $100,000. Voting in this round closes 14th October and you can vote every single day until then – so please join us and cast your vote now! By Firestormm.

National ME FM Action Network - Aviva 2013 (3)Join us in sending the National ME/FM Action Network of Canada through to the second round of the Aviva Community Fund competition so that they can win $100,000 to be used to help raise awareness on 12th May 2014.

This is the first of three qualifying rounds of the online competition. At the time of writing we have 12 days left until all the votes are totted up and the National ME/FM Action Network will move hopefully a little closer to winning $100,000.

Voting is so darned simple even I could do it!

Go here to register.

Click the button, Vote Now.

Complete the simple voting registration form (the one on the left) with your email address and provide a password.

Or, you can vote via your Facebook account (the blue button above), and simply skip the permission request to access your profile etc.

You only need to register the first time and you don’t need a Facebook account to vote in this competition.

You can vote every single day (using the same link will redirect you to the right place – or click the pictures above and below which are also linked to the voting page) and you can ask to be reminded to vote automatically.

Voting for the first round ends on 14th October at which time we’ll aim to publish another article when they are successfully through to the next round.

But your support is needed. So please help give a fighting chance for the National ME/FM Action Network of Canada to win $100,000 so that they can ensure May 12th 2014 begins a spectacular year for raising awareness of our disease and bringing much needed attention to those like us who are most affected by it.

The Action Network has already made it into the top ten in its size category of this round and if it maintains that position and is then able to repeat its performance in subsequent qualifying rounds, it will go through to the semi-finals in December. All finalists in each round win $5,000. The leaderboard can be found here.

Please consider sharing this article on your own Facebook page to help bring greater awareness to the competition. Use our share link (the green pop-out located on our Home page version of this article), to ‘like’ on Facebook, to ‘tweet’ or to recommend the article on other applications.

The National ME/FM Action Network of Canada

The Action Network’s contest statement is as follows:

Our dream begins with awareness. May 12th Awareness Day is a chance for the 750,000 people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) to be seen and heard! These illnesses are real; the people are real; and they need help NOW!  

ME/CFS and FM are chronic and severely disabling illnesses. They are as disabling as MS and are more prevalent in Canada than breast cancer, MS and AIDS combined! People are frequently bedridden and become isolated from friends and family – invisible in their own communities.  

Dr Nancy Klimas, an expert in both ME/CFS and AIDS, was quoted as saying “A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS. If I had to choose between the two illnesses I would rather have H.I.V.

These illnesses do not discriminate. All races, men and women, rich and poor, adults and children can be afflicted. It is devastating when a child is forced to cope with such a disabling illness.  

National ME FM Action Network - Aviva 2013We are on a mission to bring awareness in Canada for this community of people living with these illnesses and to set the stage for fundraising for research and more physician education.   To date our volunteer efforts have been handcuffed as not only is our community very disabled, many are in financial distress. The illness limits our ability to raise the substantial amounts required to mount a large scale awareness event and to fund the desperately needed research. It is the dream of our community to erase stigma and finally be taken seriously by friends, family, researchers, government and those in our local communities.  

This contest gives us a chance to fund a nation wide awareness campaign for 2014, the 22nd Anniversary of May 12th Awareness Day.  It will also define Canada as a world leader in raising awareness as this day is also an international event. It will not only benefit 750,000 Canadians, but it will indirectly benefit the 20 million people that suffer worldwide.  

We will use the funds to hold events in as many communities across Canada as possible which will lay the foundation for a strong network of organizations in Canada and future fund raising for education and research.  We’ll connect with every MP and provincial/territorial representative in Canada and have May 12th proclaimed in cities nationwide. We’ll sport t-shirts, carry signs and have engaging speakers in as many communities as possible. Each event will have its own venue but will share elements common to all. In order to unite the larger community across Canada we’ll also advertise in national and local papers, and, if funding permits, on TV and radio. As education is so critical, we will also target physicians, medical students and other health professionals with our letters and/or advertising.  Brochures and a white board medicine video are planned.  

We believe with awareness, will come action! Our community is desperately in need of treatment facilities and funding is required to support research and our scientists.  A successful May 12th will bring many rewards for years to come. These activities will not only benefit us today, but they will be an investment in our future.  

Aviva’s gift will help to unite our national and local communities and make a difference to the lives of many Canadians. It will give us credibility in our quest for treatment and a cure and hope for a better tomorrow.  

To quote Helen Keller – “Alone we can do so little; together we can do so much.”

 

81 comments

{ 81 comments… read them below or add one }

Firestormm October 2, 2013 at 12:47 am

Voted. 443 votes now :thumbsup:

Sasha October 2, 2013 at 1:41 am

Just voted!

Edit: In response to a question, Kina has double-checked with Aviva that non-Canadians can vote, and we can – so let's all get voting!

FogLeg October 2, 2013 at 5:31 am

The terms and conditions have this to say:

To participate in the Aviva Community Fund competition, you need to be residing in Canada, and be a permanent Canadian resident or citizen of Canada

So I'm out.

FogLeg October 2, 2013 at 6:32 am

http://www.avivacommunityfund.org/about/voting says:

Who can vote?

Anyone in Canada who is registered ? on the Aviva Community Fund website can vote for ideas during the Idea Entry and Semi-Final phases of the competition.

I think that's pretty clear :(

Bob October 2, 2013 at 6:40 am


Voting Process

Everyone registered on the Aviva Community Fund site can vote for their favourite idea(s) during the Idea Entry and Semi-Final phases of the competition. These votes will determine which ideas will become finalists in the Aviva Community Fund competition, and will contribute to a percentage of the final score allocated by the judges.

The Idea Entry phase from noon Sept. 23, 2013 EST until noon Nov. 25, 2013 EST will be held in 3 qualifying rounds. During each qualifying round, the top 10 ideas with the most votes from each size category will move on to the Semi-Finals for a total of 30 ideas in each qualifying round. The remaining ideas from the first 2 opening rounds that don't make it to the Semi-Finals will have their vote count reset to 0 (zero) and are automatically re-submitted to be voted on during the next qualifying round.

http://www.avivacommunityfund.org/about/termsandconditions

Nielk October 2, 2013 at 7:53 am

:balloons:519:balloons:

snowathlete October 2, 2013 at 11:46 am

I voted yesterday and today.

Bob October 2, 2013 at 11:47 am

I've voted as well.

waiting October 2, 2013 at 11:58 am
Battery Muncher October 2, 2013 at 2:24 pm
Tuha October 2, 2013 at 5:24 pm

everyone can vote. So even if you live outside of Canada you can vote

Firestormm October 2, 2013 at 6:48 pm


Sasha

Thanks, Tuha, but how do you know this? The terms and conditions seem to indicate otherwise. Has anyone checked with Aviva?

Here's Bob's post on the terms and conditions:

http://forums.phoenixrising.me/inde…-me-fm-awareness-in-canada.25603/#post-391903

Sasha, as Bob's post indicates – you only need to be resident to compete in the competition. Anyone anywhere can vote for those in the competition :)

Firestormm October 3, 2013 at 12:47 am

As I said above – and you might still want to email (but as I and others in the UK have had their votes accepted I do wonder why we are still talking about this) – you needed to be resident to submit an idea, and to compete. Once in the competition anyone can vote for you. Never at any time are you asked to declare the country in which you reside.

That is my read of what has been posted, and from what I read there myself.

Just vote :)

691 votes this morning :balloons:

Battery Muncher October 3, 2013 at 5:00 am

Votes seem to register even though I reside outside Canada. That's good enough for me – as Sasha says, Aviva can 'clean out' the votes if need be. I don't think we should waste our energy worrying about this.

Voted again – 740.

Bob October 3, 2013 at 5:54 am

I agree. Just vote. We're not lawyers! If anyone thinks it would be helpful to remove any of my posts, then please just remove them.

I've voted. :)

Kina October 3, 2013 at 5:55 am

I just voted again. :)

I have sent an email to Aviva to ask them to clear up the above confusion. I will post what they say if they answer.

Kina :)

Kina October 3, 2013 at 8:20 am


Kina

I just voted again. :)

I have sent an email to Aviva to ask them to clear up the above confusion. I will post what they say if they answer.

Kina :)

I got a very short answer which translates into go ahead and Vote! :)

We are up to 781 votes :thumbsup:

Bob October 3, 2013 at 8:34 am

Thanks Kina :thumbsup:

Sasha October 3, 2013 at 8:38 am

Kina, Bob, FogLeg – I think we need to remove posts that put international voting into doubt, in that case, and have a positive statement that you've checked, Kina, and that international voting is allowed.

I'll delete my earlier posts on this now (and this one later once it's been seen.

Thanks for raising this, FogLeg and Bob – important question – and thanks for checking, Kina!

Bob October 3, 2013 at 9:00 am

I've deleted or edited my posts. I don't mind if the remaining edited post is deleted as well:
http://forums.phoenixrising.me/inde…-me-fm-awareness-in-canada.25603/#post-391903

waiting October 3, 2013 at 9:08 am
Little Bluestem October 3, 2013 at 10:37 pm

Well, I think I voted. The resulting page is just text. It says that the vote date is October 4, 2013 at 12:33am. It is October 3, 2013 at 11:33 pm here, so I missed a day of voting.

Firestormm October 3, 2013 at 10:40 pm

963 votes :balloons:

Firestormm October 3, 2013 at 11:08 pm

I mean I know dogs are cool and everything, but when compared to helping people with ME, there really is a need to prioritize! See the Leader Board

Only 10 days left to go in this round… Imagine how much awareness can be raised with $100,000… A strong awareness campaign in Canada next year WILL have positive impact around the world!

Please share the main article with instructions on your Facebook pages and let's keep voting!! :)

Battery Muncher October 4, 2013 at 2:03 am

992 votes

Sasha October 4, 2013 at 2:24 am

Just voted.

We're holding 10th place, by 20 votes at the moment – and we need to be in the top 10 to reach the semi-final.

So keep voting and tell your friends!

Nielk October 4, 2013 at 7:32 am

Have you voted yet today?

Bob October 4, 2013 at 7:46 am
Kina October 4, 2013 at 8:23 am

Voted – 1070 votes. Still in 10th place.

waiting October 4, 2013 at 8:40 am
May12th October 4, 2013 at 10:27 am

Thanks for clearing this up and thanks to everyone for voting.

caledonia October 4, 2013 at 1:37 pm

I voted, and will try to remember to vote every day.

Firestormm October 5, 2013 at 12:33 am

1264 votes this morning :balloons:

But…

We've slipped into 11th place! Please keep voting as we need to get back into 10th position to retain qualification!!

Tuha October 5, 2013 at 2:02 am

I communicated with Mark (admin) about sending out an email to PR subscribers – we did it already for many contests in the past and it always helped to bring many votes. He agreed but unluckily he has holidays now. He said that he will try to manage it but it´s not sure.
Is here maybe another admin who could do it?

Anyway I dont know where is mistake with this contest but we are getting only something more than 200 daily votes. It´s far behind what we were able in the past, which was around 1 000 daily votes. We are sleeping somehow so if you are able to do some more efforts, just do it – we need money for our organisations. Contact your support groups, friends, family members,… I have good experiences if I am on facebook and I see there a friend on-line – I do a small chat with him and I ask him to vote – noone refused. But if you only send an email to your friends – only few will vote, which is of course also good – we need every vote.

Jools October 5, 2013 at 3:54 am

OK! One a day.

Firestormm October 5, 2013 at 4:51 am


Tuha

I communicated with Mark (admin) about sending out an email to PR subscribers – we did it already for many contests in the past and it always helped to bring many votes. He agreed but unluckily he has holidays now. He said that he will try to manage it but it´s not sure.
Is here maybe another admin who could do it?

Anyway I dont know where is mistake with this contest but we are getting only something more than 200 daily votes. It´s far behind what we were able in the past, which was around 1 000 daily votes. We are sleeping somehow so if you are able to do some more efforts, just do it – we need money for our organisations. Contact your support groups, friends, family members,… I have good experiences if I am on facebook and I see there a friend on-line – I do a small chat with him and I ask him to vote – noone refused. But if you only send an email to your friends – only few will vote, which is of course also good – we need every vote.

I am seeing what can be done. I know the newsletter went out the other day and I think it contained this article; but if we can follow-up with a specific email then we will.

Yeah I don't know why people aren't voting. It's so easy to do. Doesn't cost anything, and there's nothing else around at the moment. So no distractions – well apart from the HHS stuff – but that shouldn't stop people from doing this!

I'll get back to you :)

Battery Muncher October 5, 2013 at 6:10 am

1332 votes.

Battery Muncher October 5, 2013 at 6:16 am

Incidentally, we seem to have surged back up to 9th! Good work people!

There's only a couple of votes in it tho, so we need to keep going

Firestormm October 5, 2013 at 12:14 pm


Aviva! Your vote can help fund a year of ME/FM awareness in Canada!

Join us in sending the National ME/FM Action Network of Canada through to the second round of the Aviva Community Fund competition so that they can win $100,000 to be used to help raise awareness on 12th May 2014.
This is the first of three qualifying rounds of the online competition. At the time of writing we have 9 days left until all the votes are totted up and the National ME/FM Action Network will move hopefully a little closer to winning $100,000.

You do not need to be resident in Canada to vote, but your vote can help to ensure that one of the more proactive organisations in the world is better able to raise effective awareness of our disease beginning on international awareness day 2014.

Remember Niagara Falls being turned blue? That was the May 12th initiative from the National ME/FM Action Network of Canada, and they have similar plans for next year, if we can all come together and help keep them in this competition.

Voting is simple. Our Phoenix Rising article tells you all you need to know. You can initially register and then place a vote each and every day, at the click of a button, for as long as the Action Network remains in the competition.

The Action Network are currently in 10th position and we really need to keep them inside the top 10 in order that they might qualify.

Please join with thousands of others from around the world and help raise awareness of your disease!

Tuha We sent the above email to our 3,000 + subscribers. Hopefully, that might get people voting :balloons:

A tweety-bird told me you might be planning to light Niagara up again as well as other monuments in Canada.

A most excellent notion :)

Firestormm October 5, 2013 at 8:03 pm

1546 votes and in 9th position!! :balloons: :thumbsup:

aimossy October 5, 2013 at 9:05 pm
rosie26 October 6, 2013 at 2:50 am

I have just voted first time ! Will continue each day.

Tuha October 6, 2013 at 6:53 am


Firestormm

Tuha We sent the above email to our 3,000 + subscribers. Hopefully, that might get people voting :balloons:

A tweety-bird told me you might be planning to light Niagara up again as well as other monuments in Canada.

A most excellent notion :)

Thanks firestormm – it always helped in the past. Btw. did you already send the email because I think I am on your mailing list but I didnt get anything

Firestormm October 6, 2013 at 7:04 am


Tuha

Thanks firestormm – it always helped in the past. Btw. did you already send the email because I think I am on your mailing list but I didnt get anything

No problem. Yes the emails have gone out to all those who receive/are signed up for our newsletter. I received my copy – so I'm not sure why you haven't had one. Did you get the newsletter the other day from Mark?

Nielk October 6, 2013 at 7:50 am


Firestormm

No problem. Yes the emails have gone out to all those who receive/are signed up for our newsletter. I received my copy – so I'm not sure why you haven't had one. Did you get the newsletter the other day from Mark?

I got the e-mail.

Battery Muncher October 6, 2013 at 8:24 am

1688 votes. We seem to have picked up some more voters – well done to all those getting the word out!

Nielk October 6, 2013 at 5:05 pm

1808 – in 9th place:thumbsup:

Firestormm October 6, 2013 at 10:59 pm


Nielk

1808 – in 9th place:thumbsup:

1901 9th place!! :thumbsup:

beaker October 7, 2013 at 2:37 am


Tuha

Thanks firestormm – it always helped in the past. Btw. did you already send the email because I think I am on your mailing list but I didnt get anything

If you light the falls, please give lots of warning. It's an hour away, but maybe I could get a group to go.
Got to get some papers to cross the border though.

May12th October 7, 2013 at 8:06 pm

We plan to submit the request to light the falls again in 2014. Thanks everyone for voting. We're holding on at 9th place but need everyone voting so we stay in the top 10.

Battery Muncher October 8, 2013 at 3:35 am

2336. We're now up to 8th – just! It seems like we've picked up ~130 independent supporters since two days ago (613–>743) so well done to people recruiting.

Nielk October 8, 2013 at 5:47 am

If you have some time, please leave a comment at the bottom of the page when you vote. I was told that we need 100 comments and we have 61 so far.

May12th October 8, 2013 at 7:44 pm

Thanks for mentioning comments Nielk. Yes we want lots of comments. They want to see at least a hundred. There is a judging round so the comments will help sell the entry.

We need everyone to vote. It's not just so we win the prize but just being in the contest gives us exposure. If all of us where to vote we'd be way out in 1st place and people would be looking to see who we are. The prize would be a bonus.

Right now we're behind a beagle sanctuary and
a children splash pad. We deserve to be ahead of entries liked this. So anything you can do to help get the vote out would be greatly appreciate and beneficial to all of us.

Battery Muncher October 9, 2013 at 3:30 am

2702. 803 independent 'supporters' – another ~50-60 voters since yesterday :thumbsup:

aimossy October 9, 2013 at 3:56 am

oh geeze, I didn't notice the comment bit, will do with tomorrows vote!

anniekim October 9, 2013 at 8:36 am

Am voting daily. What rank do they need to be to get through to the next round? Thanks

Firestormm October 9, 2013 at 12:17 pm


anniekim

Am voting daily. What rank do they need to be to get through to the next round? Thanks

Within the top 10 I believe :)

May12th October 9, 2013 at 5:43 pm

In the top 10 of the medium budget category. The rank they are showing doesn't appear to have much meaning other than 30 entries more on to the semi finals. I find it misleading but were still in the top 30 too so I guess that's a good thing.

Little Bluestem October 10, 2013 at 2:16 am

If You Have Unused Votes

I have missed a couple of days of voting and will miss one more. I still get 15 votes, so I have some extra. I found this group that does outreach to women caught up in the sex trade. They are seeking funds for a van. That struck me as a little more worthwhile than animals and playgrounds.

Sasha October 10, 2013 at 3:13 am

Just voted – we're in 8th place, but not very safely.

Nice to see on the graph that our pool of voters has increased every day – let's hope that keeps up and that they're all ready to go once the semi-finals start!

Battery Muncher October 10, 2013 at 4:22 am

3130. There are now 880 independent supporters – about ~260 more than 3-4days ago! Great recruiting :)

PS: Is anyone else having problems posting a comment? On the one hand, the thing seems to recognise me (i.e. it says 'Posting as _____ ' with a comment button beside it). Yet every time I click the comment button, I get '
You are not logged in. Please login and try again.'??

May12th October 10, 2013 at 11:14 pm

I think it wants you to be logged into Facebook.

Little Bluestem October 11, 2013 at 1:39 am

I have been watching the contestants below us down to 18th place because I thought they were the greatest threat. Three days ago Cultural Café came into 15 place from below that and is now 7th. We are still vulnerable to last minute surges from those close behind us. Everyone needs to keep voting through the week-end. That is sometimes when others slack off.

Sasha October 11, 2013 at 2:51 am

Just voted – I agree, the weekend will be very important so we must all remember to vote!

rosie26 October 11, 2013 at 3:01 am

I vote usually around 7pm at night.
When it finishes I think it will take me a week to forget that I don't have to vote. :)

Battery Muncher October 11, 2013 at 3:50 am

3610 votes and 8th place in our category. Now 945 independent supporters! That's another 50-60 voters since yesterday!

May12th

Thanks for the reply. The problem is that I'm logged in but still can't comment.

Battery Muncher October 12, 2013 at 4:47 am

4030 votes. We're in 7th place now!

helen41 October 12, 2013 at 8:06 am

we are doing well. One group (Cultural Cafe) has dropped way down. I saw this on their FB page "Hi all, sad to inform you that we will loose over 1000 votes from our Aviva project. Unusual voting method has been used to vote for us. I know this is a good project to support, however, let us do it in a proper way according to the rules. Although we will drop out of top 10, but we still have the chance to make back in. I just need everyone of you to cast your vote everyday for the remaining 3 days. We can do it! Let us vote, vote, and vote!"
I am glad to see Aviva is watching!

Keela Too October 12, 2013 at 8:16 am


Little Bluestem

If You Have Unused Votes

I have missed a couple of days of voting and will miss one more. I still get 15 votes, so I have some extra. I found this group that does outreach to women caught up in the sex trade. They are seeking funds for a van. That struck me as a little more worthwhile than animals and playgrounds.

Thank you. I missed one day, and so have used that extra vote for this cause.

Sasha October 13, 2013 at 3:38 am

Bump!

Just voted.

Firestormm October 13, 2013 at 3:41 am


Sasha

Bump!

Just voted.

Yep. We're almost into the last day's voting.

I picked this up on their Facebook page earlier this morning:

$650,000 and counting!
October 12, 2013 at 6:36pm
Did you know that since 2011 when our Facebook fund raising group started entering contests to win money for ME and FM, we have won in excess of $650,000? That’s substantially more money than many countries are spending to help us.

Not only have we won the money, but we’ve made many people aware of our illnesses just by being in the contests. It’s free advertising that is priceless! In one contest where we just missed winning a prize, we had such an impact on the contest organizer that they made a donation of $5000 to our cause!

Your votes make a difference!

We need everyone to vote again in the current Aviva contest where we are hoping to win another $100,000. Please go to the Aviva site and cast a vote for http://www.avivacommunityfund.org/ideas/acf17388. It’s simple and quick to do. Voting is daily to Oct 14th but if you only have the energy to vote once that’s OK – just please vote! There are just 2 1/2 days of voting left and we need every vote.

VOTE and then LIKE and SHARE this notice. Ask everyone you know to vote too. We can win this! Voting ends at noon EST Oct 14th.

Thank you

Individually we are one drop
Together we are an ocean”
Ryunosako Satoro

So what happened to all that money?

May 12th – International ME/CFS & FM Awareness DaySome went to research (WPI, Simmaron, CFIDS, UK research). Some used in support of IACFSME conference and IACFSME Primer. Some was gas cards that have gone to people in need.

Nielk October 13, 2013 at 6:10 am

Thanks for all your votes. They are really counting up. Let's keep up the momentum. We need to stay in the top ten.

Vote here

Battery Muncher October 13, 2013 at 6:14 am

4412 votes. We now have over 1005 independent supporters who voted for us! :thumbsup:

Having said that, some people have stopped voting over the past two days – we need to keep going, just in case we get overtaken in the last day (it's happened before!).

rosie26 October 13, 2013 at 11:45 am

Just voted, bit late doing it today. 4540 votes now

Kina October 13, 2013 at 11:48 am

Just voted. 4542 votes. :)

snowathlete October 13, 2013 at 1:09 pm

I voted earlier

Battery Muncher October 14, 2013 at 3:55 am

4817 votes. Final day – I think we may be able to break 5000 votes by the end of this round :)

May12th October 17, 2013 at 10:30 am

Thanks everyone for your support. It's OFFICIAL – we made it to the semi-finals!

Next round of voting starts Dec 2nd.

Little Bluestem October 18, 2013 at 3:55 am

Do you know what place you finished in? When I looked at the rankings page it already had the entrants for the next contest.

I did find the page with the 30 finalists. Of the 30 finalist, excepting one in French that I couldn't figure out, 10 (that's 1/3!) are for domestic animals, 2 are for wild animals, and 7 are for playgrounds and/or pools.

Animals and children seem to be the vote-getters. Maybe you need some children with ME in your promotions!

helen41 October 28, 2013 at 1:24 pm


Little Bluestem

Do you know what place you finished in? When I looked at the rankings page it already had the entrants for the next contest.

I did find the page with the 30 finalists. Of the 30 finalist, excepting one in French that I couldn't figure out, 10 (that's 1/3!) are for domestic animals, 2 are for wild animals, and 7 are for playgrounds and/or pools.

Animals and children seem to be the vote-getters. Maybe you need some children with ME in your promotions!

we ended up in 7th in our category (medium)

Little Bluestem October 29, 2013 at 12:20 am


helen41

we ended up in 7th in our category (medium)

:balloons: I'm glad to hear that we held on at the end. :thumbsup:

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