Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFS NIH Grant Panel (SEP) Feb 2010

February 3, 2011

Posted by Cort Johnson

Back to the Past – The CFS SEP Panel reverts. Seeing Dr’s Klimas, Ruscetti, Fletcher, Broderick names on the last NIH grant review panel for CFS was an almost giddy experience after watching years of dental and pain researchers sign off on (and usually decline) CFS grants.

Things have changed.  Some CFS researchers do remain but the big names are mostly gone and it’s mostly back to a panel dominated by pain researchers plus a surprise…one Myra McClure from the UK. Check out who’s on it

via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFS NIH Grant Panel (SEP) Feb 2010.

2 comments

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John February 3, 2011 at 10:23 pm

I don’t think patients getting worked up about Dr. McClure’s presence is worthwhile and I think it’s a waste of time and energy to do some campaign about her presence. She’s a legitimate and qualified researcher and I think it’s great that she’s willing to give of her time, energy and expertise to help review grant proposals. Her presence is kind of morbidly funny in the context of XMRV research though!

I’m glad you mentioned the fact that the SEP Panels have constantly rotating membership as I thought I remembered Dr. Klimas saying that that was one of the big problems with getting CFS grants funded, namely that when an applicant submits a grant proposal and potentially gets rejected, the rejection is accompanied by recommendations to improve the grant. Then when the applicant re-submits their application the panel membership has changed in the meantime and it’s a whole new drawing board, so to speak. How would we go about trying to establish a panel with consistant membership? Maybe ask the CFSAC to make a recommendation? I guess it could be a blessing or a curse depending on whose names showed up should such a panel’s membership be made constant.

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Cort February 5, 2011 at 11:11 am

Thanks, John – Dr. McClure certainly is qualified – she is a quite busy retrovirologist. I think there are two main problems; it’s hard to imagine given her past statements that she will support any more research into XMRV and she’s a lightning rod; whether she’s qualified or fair and balanced or not – she is a red flag to many in the ME/CFS Community and, given that, and the distrust many feel, it’s unfortunate they couldn’t have found someone who was not such a hot potato.

You’re right a blessing or a curse. The panel is supposed to be flexible – probably because of the wide range of topics it deals with – I would be surprised if they would change it. Of course that can be a problem with returning grants – as you point out.

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