Aviva Community Fund Semi-Finals – Vote Daily for the National ME/FM Action Network!

December 1, 2013

Your help ensured the National ME/FM Action Network of Canada romped through to the Semi-Finals of the Aviva Community Fund competition. Now we need to vote again and see them through to the Finals and a chance at that all important $100,000! Vote online, each and every day from 02 – 11 December 2013!

May 12 AvivaYou did it! Your online votes helped get the National ME/FM Action Network of Canada through to the Semi-Finals of the Aviva Community Fund competition.

Now it’s time to vote again. You can make your vote each and every day, between 2nd and 11th December, and together we can try and get them through to the Finals and a real chance at that $100,000 jackpot!

Voting is so darned simple even I could do it!

Not voted before? Not a problem:

Go HERE and click on REGISTER in the top right corner.

You’ll be asked to enter your email address and a password. If you prefer, you can register using your Facebook account.

A message will inform you that an email has been sent to confirm your registration. Go to your email inbox, select the email and click the link provided to confirm your registration.

Now you can either use the competition search function to find our entry, “May 12th”, or click HERE. Then click on the VOTE button and you are done for the day.

If you have voted before:

If you have voted before then just go HERE, click VOTE and you are done – just don’t forget to come back again on the following day!

You might need to SIGN-IN with your email address and password or if you can’t remember your password, ask to change it and an email with a link will be sent to your in-box.

After voting, you might also like to leave a comment at the foot of the page, one that perhaps speaks of the importance of raising awareness for your disease in a world that remains largely ignorant of its existence not to mention the personal and societal impact.

To date the May 12th Fundraising Group has won over $10,000 for the National ME/FM Action Network of Canada and worldwide over $650,000 for charities. All has been made possible just by having the support of people like you to vote for our nominated causes in competitions like this one. Your votes can help make such a difference – so please vote every day.

Please consider sharing this article to your own Facebook page and help bring greater awareness to the competition:

You can use the share link (the green pop-out located on the left-hand side of the Phoenix Rising Home page version of this article), to ‘like’ on Facebook, to ‘tweet’ or to recommend the article on other applications.

Or, if viewing this article on the Phoenix Rising Facebook page, then simply ‘share’ and your friends and family might see it and perhaps they will be inclined to vote as well – especially if you add a message of encouragement.

Thank you all for your continued support.

The National ME/FM Action Network of Canada

The Action Network’s contest statement is as follows:

Our dream begins with awareness. May 12th Awareness Day is a chance for the 750,000 people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) to be seen and heard! These illnesses are real; the people are real; and they need help NOW!  

ME/CFS and FM are chronic and severely disabling illnesses. They are as disabling as MS and are more prevalent in Canada than breast cancer, MS and AIDS combined! People are frequently bedridden and become isolated from friends and family – invisible in their own communities.  

Dr Nancy Klimas, an expert in both ME/CFS and AIDS, was quoted as saying “A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS. If I had to choose between the two illnesses I would rather have H.I.V.

These illnesses do not discriminate. All races, men and women, rich and poor, adults and children can be afflicted. It is devastating when a child is forced to cope with such a disabling illness.  

National ME FM Action Network - Aviva 2013We are on a mission to bring awareness in Canada for this community of people living with these illnesses and to set the stage for fundraising for research and more physician education.   To date our volunteer efforts have been handcuffed as not only is our community very disabled, many are in financial distress. The illness limits our ability to raise the substantial amounts required to mount a large scale awareness event and to fund the desperately needed research. It is the dream of our community to erase stigma and finally be taken seriously by friends, family, researchers, government and those in our local communities.  

This contest gives us a chance to fund a nation wide awareness campaign for 2014, the 22nd Anniversary of May 12th Awareness Day.  It will also define Canada as a world leader in raising awareness as this day is also an international event. It will not only benefit 750,000 Canadians, but it will indirectly benefit the 20 million people that suffer worldwide.  

We will use the funds to hold events in as many communities across Canada as possible which will lay the foundation for a strong network of organizations in Canada and future fund raising for education and research.  We’ll connect with every MP and provincial/territorial representative in Canada and have May 12th proclaimed in cities nationwide. We’ll sport t-shirts, carry signs and have engaging speakers in as many communities as possible.

Each event will have its own venue but will share elements common to all. In order to unite the larger community across Canada we’ll also advertise in national and local papers, and, if funding permits, on TV and radio. As education is so critical, we will also target physicians, medical students and other health professionals with our letters and/or advertising.  Brochures and a white board medicine video are planned.  

We believe with awareness, will come action! Our community is desperately in need of treatment facilities and funding is required to support research and our scientists.  A successful May 12th will bring many rewards for years to come. These activities will not only benefit us today, but they will be an investment in our future.  

Aviva’s gift will help to unite our national and local communities and make a difference to the lives of many Canadians. It will give us credibility in our quest for treatment and a cure and hope for a better tomorrow.  

To quote Helen Keller – “Alone we can do so little; together we can do so much.”

53 comments

{ 53 comments… read them below or add one }

Firestormm December 1, 2013 at 5:42 am

Please note: The Semi-Final Competition begins tomorrow – 2nd December. This is advance notice and gives you a chance – like me – to check you are 'logged in' and/or registered and then we can let voting commence!! :thumbsup:

ggingues December 1, 2013 at 7:49 pm

Oh, I was looking an not seeing National ME/FM action Network, I do see something for
May 12th Awareness Day for ME/CFS and FM.

GG

rosie26 December 1, 2013 at 8:10 pm

Waiting for the okay to start voting. It's already the 2nd Dec, where I live x

Firestormm December 2, 2013 at 1:06 am
rosie26

Waiting for the okay to start voting. It's already the 2nd Dec, where I live x

I know. Looks like it wont begin until 8am Canadian time today (2nd December). Though I could be wrong – I am still half-asleep o_O

Still, 9 hours to go according to the link which means I can vote at 5pm UK Time:

https://www.avivacommunityfund.org/ideas/acf17388

Firestormm December 2, 2013 at 1:08 am
ggingues

Oh, I was looking an not seeing National ME/FM action Network, I do see something for
May 12th Awareness Day for ME/CFS and FM.

GG

You can click on the pictures in the article, or here: https://www.avivacommunityfund.org/ideas/acf17388 if you are registered.

Kina December 2, 2013 at 6:44 am
Firestormm

I know. Looks like it wont begin until 8am Canadian time today (2nd December). Though I could be wrong – I am still half-asleep o_O

Still, 9 hours to go according to the link which means I can vote at 5pm UK Time:

https://www.avivacommunityfund.org/ideas/acf17388

Voting starts at noon Canadian time.

Kina December 2, 2013 at 10:06 am

Voted — 15 votes total — 5 minutes after voting started.

Firestormm December 2, 2013 at 12:01 pm

Voted. 116 votes :)

Nielk December 2, 2013 at 12:49 pm
Kina December 2, 2013 at 2:06 pm
ggingues December 2, 2013 at 3:11 pm

292 votes.

GG

snowathlete December 2, 2013 at 3:48 pm

voted. 312 votes

rosie26 December 2, 2013 at 3:54 pm

wow, growing fast :)

May12th December 2, 2013 at 7:59 pm

Thanks everyone for voting

Firestormm December 3, 2013 at 1:41 am

509 votes :)

Kina December 3, 2013 at 5:06 am

Voted again — 566.

Valentijn December 3, 2013 at 6:01 am
ggingues December 3, 2013 at 9:30 am

727 votes.

GG

Tuha December 3, 2013 at 12:07 pm

your participation is great. anyway we will need much more votes. If you are in touch with your national ME organisations, ME bloggers and other ME patients – try to ask them to promote this contest. Try to ask also your family and friends. Sometimes it´s annoying but we need money for our organisations

Aileen December 3, 2013 at 3:16 pm

We need to be in the top 10 in our group (medium) to get to the finals. Currently we are lagging behind in 19th place. We need to make up a couple hundred votes today if we want to get in the game.

beaker December 3, 2013 at 5:33 pm

I voted. Don't know why there are so few voters.
Can those w/ blogs/websites/other such things post a link about this ?
I will email friends. I got some to vote for the first round. But sadly, most don't want to bother. I don't think they think it will make any difference or something. *sigh*

By helping the Canadian group w/ help all of us.

ggingues December 3, 2013 at 10:58 pm

1016 votes.

GG

Jools December 3, 2013 at 11:15 pm
Firestormm December 4, 2013 at 4:36 am
Aileen December 4, 2013 at 2:28 pm
beaker

I voted. Don't know why there are so few voters.
But sadly, most don't want to bother. I don't think they think it will make any difference or something. *sigh*

By helping the Canadian group w/ help all of us.

Thanks for the support beaker. It is much appreciated.

Unfortunately this is what happens when a Canadian group needs help. The rest of the mostly world ignores us. A number of us have been key players in helping many American groups win funds. They get the votes from our community. But when it is our turn, it's a different story. It is even more discouraging considering we gave the ME/CFS/FM community the CCC and the US has given us nothing but grief.

Here are the discouraging stats from this contest:

In 1st place so far: an animal charity — 4200 votes (approx)
2nd. playground — 3500
3 & 4th. animals – 3490 & 2730
5th. playground — 2400
6th. education — 2252
7th. aminals — 2150
8 & 9th. more playgrounds — 2115 & 2190

10 & 11& 12th. more animals — 2080, 1980 & 1940
13th. gym club — 1939
14th. playground –1875
15th. visually impaired — 1865
16, 17 & 18th. schools and camp — 1750, 1665 & 1625
19th. bus for school — 1475

20th. May 12th Awareness (that's us) 1415
21st. animals (again!) — 1412
22 & 23rd — more schools 1360 & 1357
24 & 25 — playgrounds 1320 & 1290
26. school — 1265
27. arts — 1144
28. school — 950
29. playgrounds — 920, 480 & 425

… and these dismal numbers despite the number of patients in this community who are online. :cry:

Nielk December 4, 2013 at 4:55 pm

Please vote guys. :thumbsup:

Firestormm December 5, 2013 at 4:32 am

1736 votes :)

Kina December 5, 2013 at 6:28 am
ggingues December 5, 2013 at 10:20 am
ggingues

1016 votes.

GG

1910 votes.

GG

Nielk December 6, 2013 at 7:32 am
May12th December 6, 2013 at 9:31 am

Thanks everyone for your votes.

Firestormm December 6, 2013 at 9:44 am

2378 votes :)

ggingues December 6, 2013 at 10:09 am
ggingues

1910 votes.

GG

2391 votes.

GG

ggingues December 7, 2013 at 12:20 am
ggingues

2391 votes.

GG

2623 votes.

GG

caledonia December 7, 2013 at 12:45 am

I've been voting.

Firestormm December 7, 2013 at 1:00 am

2637 votes – we don't have many days left! Keep the votes coming :)

Valentijn December 7, 2013 at 2:24 am
rosie26 December 7, 2013 at 11:49 am
Nielk December 8, 2013 at 8:42 am

3260.

Please remember to vote daily.

ggingues December 8, 2013 at 9:29 am
ggingues

2623 votes.

GG

3289 votes

GG

ggingues December 8, 2013 at 10:29 pm
ggingues

3289 votes

GG

3535 votes.

GG

Valentijn December 9, 2013 at 5:05 am
Firestormm December 9, 2013 at 5:12 am

Only 2 days left to vote!! :)

@ggingues the link in your signature isn't the right one I don't think. Use this: https://www.avivacommunityfund.org/ideas/acf17388

I meant to say the other day but forgot! Sorry about that.

rosie26 December 9, 2013 at 11:10 am
Nielk December 9, 2013 at 2:14 pm

3921.:balloons:

Little Bluestem December 10, 2013 at 2:12 am
Firestormm December 10, 2013 at 3:45 am

4197 votes :)

You know, with one day left to go, and having looked just now at the rankings, I am beginning to think you need to be able-bodied, a child, or a cute and cuddly animal, in order to gain maximum support.

Still, one day left, and we could get through. So don't forget to vote today and to use all your votes if you have any left from previous days! :)

Doesn't take much but could make all the difference in the world!! :thumbsup:

ggingues December 10, 2013 at 7:37 am
ggingues

3535 votes.

GG

4315 votes.

GG

rosie26 December 10, 2013 at 10:39 am
Nielk December 10, 2013 at 11:28 am

Your vote can make the difference.

waiting December 10, 2013 at 10:27 pm
Firestormm December 11, 2013 at 1:48 am

4705 :)

8 hours left to go!! :wide-eyed:

ggingues December 15, 2013 at 10:48 pm
beaker

I voted. Don't know why there are so few voters.
Can those w/ blogs/websites/other such things post a link about this ?

I will email friends. I got some to vote for the first round. But sadly, most don't want to bother. I don't think they think it will make any difference or something. *sigh*

By helping the Canadian group w/ help all of us.

Not sure what happened with this contest either, to bad we didn't win, and didn't really seem to be in the running!

GG

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