The Chronic Fatigue Initiative and Interview with Mady Hornig

In a follow-up article to the recent IACFS/ME conference presentation in San Francisco, and after speaking at length with Dr. Mady Hornig, ‘searcher’ delves deeper into the impressive work being completed by the Chronic Fatigue Initiative, and focuses in on those cytokine results … Members of the Chronic Fatigue Initiative (CFI) and Scott Carlson, the executive director of the Hutchins Family

Continue

California 2014: IACFS/ME Day Three: Translating Science into Clinical Care: 22 March 2014

Day Three, and Searcher continued to deliver the goods. We hear about the PANDORA national survey results, a very big familial case study from Spain, results from the Canadian Community Health Survey, more results from epidemiological studies (and a look at treatments and comorbidities), then perhaps the key section of the day: the science of exercise testing and post-exertional malaise… It’s Day Three

Continue

International Association for CFS/ME Spring Conference 2014: Translating Science into Clinical Care

The IACFS/ME Spring Conference promises to be one of the main events of 2014, and with ‘early bird’ tickets for patients still available, Searcher provides an overview of what we can expect, as well as interviewing the IACFS/ME President, Dr Fred Friedberg, before preparing to attend the conference herself… The 11th biennial IACFS/ME conference will be held in San Francisco

Continue

Ottawa III: The Most Expensive Disorder Facing the Medical Profession – Clauw on FM and CFS

Posted by Cort Johnson Ottawa Conference Reports III: The Most Expensive Disorder: Clauw on the Fibromyalgia and CFS-ness of Chronic Illness    Clauw is a fascinating figure. Clauw comes from the fibromyalgia side but if you don’t have FM don’t think there’s not something here for you as well. Clauw believes a very large group of people with chronic illnesses

Continue

2009 In Review

Posted by Cort Johnson EVENTS Biggest Event – what else? XMRV takes the spotlight as no research finding has before, retrovirologists across the world clamor for samples, worry mounts about a tainted blood supply, Hilary Johnson blows into the New York Times Op Ed section, and patients gasp and cross their fingers in hopes that it will all work out. See XMRV

Continue