Imaging of the brainstem showing differences between patients with Myalgic Encephalomyelitis and controls.

Scientific Findings Distinguish Between Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

By Bronc People living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) are definitely not “just a little tired.” But they are indeed tired of some things — such as dealing with medical ignorance, the very slow pace of research, and seemingly endless discussions over terminology and definitions. But in science, precise terminology and precise definitions are absolutely essential in order

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Photos of Dr. Amy Proal

What It Is To Be Human: Holobionts and the Microbiology of Myalgic Encephalomyelitis

By Bronc Dr. Amy Proal, of the PolyBio Research Foundation, is a microbiologist interested in the molecular mechanisms by which bacterial, fungal and viral pathogens dysregulate human gene expression, immunity and metabolism. She is especially interested in how dysfunction of the human microbiome and/or the human virome can contribute to chronic inflammatory disease processes. We sat down with Dr. Amy

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Woman sitting in a wheelchair on a busy sidewalk.

Part 1: Millions Missing in Mexico

In the first of a three-part series, people describe the challenges of living with neuroimmune diseases in Mexico. The science of these diseases is also discussed, and we try to understand why the latest science is not informing proper medical treatment. Versión en español • Versão em português By Eric Pyrrhus “On days when the symptoms are manageable, I walk

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Photo of Dr. Mark Zinn in front of his computers with brain images on the screens.

Central Autonomic Network Disturbance in People with ME: A Conversation with Dr. Mark Zinn

by Bronc Dr. Mark Zinn and his late wife Dr. Marcie Zinn co-founded the NeuroCognitive Research Institute. He has expertise in quantitative and tomographic methods of electro-encephalographic analysis, in order to test theoretical premises in research involving neurocognitive disorders. From 2011-2014 he served as research consultant at the Stanford University School of Medicine, where he studied cognitive impairment in infection-associated chronic

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Photo of Dr. Anthony Komaroff, smiling outside.

Where Exactly does ME/CFS Research Stand in 2021? Dr. Komaroff Explains

From the central nervous system to Long COVID to energy impairment, Dr. Anthony Komaroff provides his perspective on over 30 years of scientific research into myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) and post-acute viral illnesses. Versión en español • Version française • Nederlandse versie • Deutsche Version By Bronc and Eric Pyrrhus Dr. Anthony Komaroff is really on a roll. For a sometimes

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Photo of demonstration in Pamplona.

Invisible Disability: A Tough Fight and a Big Win for Patients in Spain

In Spain, patients with neuroimmune diseases such as fibromyalgia or myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) have been disgusted at their government’s refusal to recognize them as seriously disabled human beings. This week brought news of a big step forward. By Eric Pyrrhus Versión en español • Version française • Deutsche Version In 2019 the Spanish government agency that oversees

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