Photo of Dr. Mark Zinn in front of his computers with brain images on the screens.

Central Autonomic Network Disturbance in People with ME: A Conversation with Dr. Mark Zinn

by Bronc Dr. Mark Zinn and his late wife Dr. Marcie Zinn co-founded the NeuroCognitive Research Institute. He has expertise in quantitative and tomographic methods of electro-encephalographic analysis, in order to test theoretical premises in research involving neurocognitive disorders. From 2011-2014 he served as research consultant at the Stanford University School of Medicine, where he studied cognitive impairment in infection-associated chronic

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Photo of Dr. Anthony Komaroff, smiling outside.

Where Exactly does ME/CFS Research Stand in 2021? Dr. Komaroff Explains

From the central nervous system to Long COVID to energy impairment, Dr. Anthony Komaroff provides his perspective on over 30 years of scientific research into myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) and post-acute viral illnesses. Versión en español • Version française • Nederlandse versie By Bronc and Eric Pyrrhus Dr. Anthony Komaroff is really on a roll. For a sometimes reserved academic,

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Photo of demonstration in Pamplona.

Invisible Disability: A Tough Fight and a Big Win for Patients in Spain

In Spain, patients with neuroimmune diseases such as fibromyalgia or myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) have been disgusted at their government’s refusal to recognize them as seriously disabled human beings. This week brought news of a big step forward. By Eric Pyrrhus Versión en español • Version française • Deutsche Version In 2019 the Spanish government agency that oversees

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Image of rose with the word "Sorry".

The Apologizers of the ME/CFS World

by Jody Smith I’m Canadian, so I hear a lot of good-natured jokes about how Canadians apologize all the time. It’s funny in part because … in part, it’s true. But you know who else apologizes a lot? Chronically ill people. And that ain’t so funny. Now some of us were probably like that before becoming ill. But what’s particularly

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Sunset behind tree.

On the Absence of Light and ME/CFS

by Jody Smith​ On my side of the world, change is brewing. Here in North America, the cold and dark brooding of winter looms and glowers. In some areas it has already hit, hard. Temperatures dropping, days shortening … for someone like me who lives with ME/CFS and seasonal affective disorder, this is a daunting time. I am staring down

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Person looking through blinds out a window.

Invisible Disabilities Week Is Oct. 13 – 19, 2019

by Jody Smith​ The ME/CFS community is all too familiar with the realities of invisible disabilities. As a matter of fact we are rife with them. For this reason, we’re happy to make some noise for Invisible Disabilities Week. If you have an invisible disability, you’re living with one or more physical, mental or neurological challenges that other people might

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