Originator of H2S Theory Speaks

Posted by Cort Johnson Dr. DeMeirleir made a big splash when he announced at a press conference that he had uncovered a new and important factor in chronic fatigue syndrome (ME/CFS) called hydrogen sulfide. What was lost in the flurry that followed was the fact that if it was not for an inquisitive mother of a daughter with chronic fatigue

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A Fibromyalgia Cancer Connection?

Posted by Cort Johnson Whittemore -Peterson Neuro- Immune Institute researchers have uncovered a possible cancer subset in chronic fatigue syndrome (ME/CFS) (See The Hit of the Conference: IACFS/ME Conference II).  In this guest blog Yvonne Kenney, the founder of the Fibromyalgia Coalition International, reports on some preliminary evidence suggesting that the cancer problem may not be limited to ME/CFS.  More

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Annette Whittemore’s Next Big (BIG) Project

Posted by Cort Johnson Annette and Harvey Whittemore pulled off something of a miracle when they convinced the state of Nevada to help them build the first chronic fatigue syndrome (ME/CFS) research, treatment and eductation facility in the world. The medical establishment, after all,  has been almost as hostile to ME/CFS patients as the disease itself.  The Whittemore-Peterson Neuro-immune Institute

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Kim McCleary On the CDC’s Five Year Plan

Posted by Cort Johnson “I was sitting there yesterday (during the CDC presentation) feeling like my head was going to blow off my shoulders” The CFID’s Association of America has been leading the way on the CDC review. Kim McCleary sits through every CFSAC meeting – not an easy task in that often mostly empty room – and takes notes.

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The Big Breakthrough (!)(?)

Posted by Cort Johnson Some bloggers have jumped all over the announcement by Dr. De Meirleir that an important cause of ME/CFS has been found. This is, they say, the ‘big breakthrough’. But is it? With just the abstract in hand let’s take a look at what little we know. The Announcement – Dr. De Meirleir has been in this business

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Dr. Reeves at the CFSAC: Too Little Too Late?

Posted by Cort Johnson Dr. Reeves produced the five year plan for the CDC’s CFS research team.  He was in his element.  He seemed sincere and open; patients think of him as something of an ogre but you’d never get sight of that in his presentations.  Kim McCleary later noted that he’s a master at the art of presentation.  But one suspects

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IACFS: MIA or A Force? – The CDC Review

Posted by Cort Johnson The patient community and the CFIDs Association of America showed up for the comment session on the CDC’s CFS research effort but the research community didn’t. Except for Staci Stevens and Dr. Klimas and a brief statement on behalf of the IACFS/ME no other researchers spoke. Time for the IACFS/ME To Step Up – The review

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