Triumph! ME/CFS Community Propels Phoenix Rising and NIDA to Win in Chase!

September 20, 2012

The ME/CFS community wins $30,000 for NIDA and Phoenix Rising in the two-week Chase contest

It looked like Phoenix Rising was toast; we had dropped from 86th on Sept 10th to 136th and then all the way to 174th and had a meager 40 vote cushion with a day and a half to go……and then the ME/CFS Community erupted – propelling us all the way up to 133rd and allowing us to win $10,000.  It was an amazing jump and we can’t thank the ME/CFS Community enough for your efforts.

NIDA’s story was less dramatic but in the end they were on the edge, too, at 87th place in the last day with just a 9 place cushion before they fell into the $10,000 slot.  Again the ME/CFS community – from Norway and Sweden to Australia  to the US – jumped in, and solidified NIDA’s position in the last frantic hours of voting bringing them $20,000 for the exciting OMI-MERIT project that you’ll hopefully be hearing about soon in these pages.

Next Year – In the past three years, Chase has poured about $200,000 into the ME/CFS community’s coffers…With the Chase rules this year limiting the number of votes that could be cast it was a tough year for the smaller non-profits. Next year, though, Phoenix Rising, as it has done in the past two years, will use its resources to bring Chase money to more well-deserving chronic fatigue syndrome non-profits.   We’re committed to keeping the tradition of at least two ME/CFS organizations bringing home the bucks come Chase time and we’ve already come up with some new ideas :)

Thanks again for your help…

16 comments

{ 16 comments… read them below or add one }

Simon September 20, 2012 at 2:23 pm

Great result (nice article too). Thanks to everyone who helped make this happen.

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tomcy6 September 20, 2012 at 5:14 pm

Congratulations on the awards, Cort, it was you who rallied the community to make both of the wins possible. I’m sure you’ll find something worthwhile to spend that $10k on. Thanks for the work you do for all of us.

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BobM September 20, 2012 at 10:38 pm

Cort,We got worried as we did not see any recent updates on the Chase contest (hoped you were not too ill to cheer us on). Congratulations on Winning the Chase giving. As usual you rallied the ME/CFS community to make the CHASE win possible.Thank you for your articles and your ability to rally the troops as in the end we patients benefit from your work.

Thanks!!!!!

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cort September 21, 2012 at 3:15 am

Thanks everyone….Circumstances prevented me from getting on the website for about a week. My health is fine, though. It was sooo empowering and inspiring to see the community get behind PR.

Going into a contest like this for the first time – you never really know what’s going to happen. It was kind of like an acid test…I felt like PR was well-liked and supported but I still held my breath when we entered the contest….You never know until you know….We quickly zoomed up to 86th places then some issues happened that kept me from blogging – and man it was painful to watch us slide and slide, I have been looking forward to this contest for two years! – and I’m sure its was disconcerting to people on Phoenix Rising – but then we got back in the race and rocketed back up again at the last minute…

What a ride it was!

Thanks again for everyone’s help..

It was wonderful to see. Thanks for your support!

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MARGARITA COLOMBO September 23, 2012 at 5:02 pm

Cort hello, do you know if there are cfs groups in méxico? i have found couple of groups for fibromyalgia, but i suspect there are lots of people misdiagnosed around here, in fact i still have doubts about my real condition. The few doctors I have met until now really confuse me still more and frankly, I have found my best days following alternative ways, doing a lot of research and experimenting, going back to basics and natural ways of doing as much as I can, i.e. eating organic, paleo, gaps diet and each time more personalised diet. I have found a few but accurate findings, not absolutely “lineal” but in general, I have gotten to distinguish wich kind of protocol takes me to being able to stay almost fully active, which one allows me to have full and deep sleep and be without cognitive problems, for example. Do you know if there are support and information groups in méxico? since i saw you live in san miguel, i thought maybe you might know something. sorry if my english is not so good, my computer corrects spanish and changes a lot of what i write, into spanish!! i hope you have the time an patience for answering back. and congratulations, it seems you have had good results aroun here! thanks a lot.

Sasha September 21, 2012 at 12:30 am

Congratulations and well done – you’ve been leading from the front!

That’s amazing how much we’ve got from Chase over the years as a community.

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Faith Wong September 21, 2012 at 10:09 am

Eight ME/CFS nonprofits have now won big cash prizes through the Chase Contest! Here’s hoping next year’s contest (if they have it again) will not pit small nonprofits again those who are much larger and that each Facebook user will get a greater number of votes. Rocky Mountain, WI, NJ, and Enterovirus Foundation all competed brilliantly last year, but fell off the leaderboard in the last-minute flood of votes. O.F.F.E.R. is now eligible, there is also HHV-6 Foundation. Some others may become eligible, too. We have these great nonprofits doing tremendous things to help the ME/CFS community, and we have an estimated 17 million patients worldwide. If we could rally the vote sufficiently, we could easily have several winners!

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GcMAF Australia September 21, 2012 at 10:06 pm

Thanks Cort
I worked out that my 2 votes were $13.21
I am happy that i was able to help.
Of course i want to do so much more.
Hang in there EVERYBODY!!
You are all fantastic. GcMAF Australia

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ldhunter September 22, 2012 at 8:44 pm

Congrats! Happy to hear the good news!

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HTree September 22, 2012 at 9:46 pm

I am happy I did a last minute e-mail push and got 20 friends to vote. Good to be a part of something effective!! thanks to Cort, those who organized
~Htree

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Cort September 23, 2012 at 5:05 pm

Thanks HTree – if there was anything that I think really made the difference it was people getting their friends to vote. Because of people like you we made it to 133rd! What a climb :)… Thanks again.

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Joe September 25, 2012 at 4:45 am

Nice work Cort & Friends! Really appreciate all the efforts. Thank you!
Joe

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justinreilly September 27, 2012 at 6:47 pm

Congrats! so happy we won this much needed funding and that it is all going to good projects.

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Cort September 23, 2012 at 5:08 pm

Hi Margarita,

I’m afraid I don’t live in San Miguel anymore. When I’m able to I’ll get in there and change my location information..I’m in Raleigh, North Carolina now…I don’t know of any groups in Mexico unfortunately but they may very well be there…I just don’t know. It sounds like you’ve got a good protocol going…and I imagine that many doctors, in Mexico or here, know less than the patients….What protocol are you doing by the way…is it mostly diet. What part of Mexico are you in, by the way?

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MARGARITA September 25, 2012 at 8:23 pm

Hi Cort, it´s kind of late and I allways try to go to bed earlier but didn´t want to leave the forum without a response since you have been so kind of answering back so soon, I understand you must receive tons of messages at all times. Yes, I have done a lot with nutrition, but with a different point of view. I have been screening not only what I eat but also different aspects like at what time of the day I eat carbs for example, and I included not only eating habits but I have put much emphasis in bowel movements. Unfortunately to me, I have not found an integral solution to my symptoms, but as I will tell you in a later comunication, in one protocolo I found a way to do lots of exercise and be very active. (The pain is not so much of a problem anymore as it used to be long ago). In the latest protocol I am not as active and energized as I used to be, but I can sleep as deep and profound as probably didn´t sleep most of my life, it has been a hole experience! I will let you know which comlimentary medicines I have used, all over the counter ones, but nothing for pain in years, and little for sound sleep as well. Regards, and I hope you have a nice sleep today! ( And sorry again, my written english must be terrible by now, and I haven´t checked how to disable the spanish corrector).

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MARGARITA September 26, 2012 at 4:58 am

haha i wrote hole experience, i meant whole experience: sleeping profoundly at last!

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