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A Tribute To Rich Van Konynenburg

Rich Van Konynenburg’s generous support of the ME/CFS community will not be forgotten..

Long time chronic fatigue syndrome supporter and theorist, Rich Van Konynenburg died last night in his sleep. His wife Diana reported:

“There is no easy way to say this, and this message is very difficult for me to write. 

Rich died early this morning. It appears that he suffered a massive heart attack in his sleep. He did not have a history of heart disease, so this was sudden and quite unexpected. It doesn’t seem possible to me that Rich is gone. I am at a loss to express how profoundly I will miss him (I already do!)”

Rich Von Konynenburg was a unique figure. Many people have created theories and proposed treatments for ME/CFS but Rich, who did not have the disorder and was not a medical doctor, was able to uniquely engage the patient community in his ideas and protocols. Seemingly inexhaustible, few individuals have been as generous and forthcoming with their time and attention.

A physicist by training, Rich Von Konynenburg received a Ph.D. from the University of California Davis in 1974 and then worked at the Lawrence Livermore National Nuclear Laboratory for 30 years. He began studying ME/CFS about 15 years ago, and formally proposed a biochemical model of stress-induced glutathione depletion in the disorder in 2004.

Rich’s theory proposed that glutathione, the master anti-oxidant in the body and a key player in the cellular energy production system, was depleted in the cells of ME/CFS patients, and he believed this leads to many of the dysfunctions found in ME/CFS.

Even as Rich published his work he began readjusting it to take into account recent information implicating the methylation process in glutathione depletion and disease. After much research and attending numerous conferences and seminars Rich came to believe that a methylation block was at work in both ME/CFS and autism, two disorders he became convinced had similar underlying causes.

In 2007 he re-engineered his theory (now called the Glutathione Depletion – Methylation Cycle Block Hypothesis) to incorporate his new understanding, and he created a simplified methylation protocol specifically for ME/CFS patients based in part on Dr. Amy Yasko’s work.  Rich’s Simplified Methylation protocol has been used widely by patients.

An ever present figure at ME/CFS conferences, Rich, to his frustration, never got on the main stage at the IACFS/ME International conference, but his theories and treatment protocol spread quickly into physicians’ practices with Dr. Neil Nathan, Dr. Enlander and Dr. Myhill and others using it and with Dr. Myhill posting a page on his theory on her website.

Rich’s theory on the connections between autism and CFS was published in the Townsend Letters in 2006 and he collaborated with Dr. Neil Nathan on a 2009 study which found that 2/3rds of respondents had received positive effects.  He gave a three hour lecture at a conference in Sweden, was a main speaker at the Mt. Sinai conference in 2011, and was due to present at the International Lyme Conference before his untimely death in 2012.

Rich will be remembered in the ME/CFS Community for his creativity, his passion, and above all his generosity and willingness to carefully explain (in over 2700 posts on the Phoenix Rising Forums) his theories and treatment protocols.

Below are excerpts from a tribute from Sergio, an ME/CFS patient…

I first knew of him when I was 23, and bedridden 24/7. I had fallen sick 1.5 years ago…..
I asked him for professional advice several times, and we corresponded both publicly and privately many times over the last years.

He definitely saved my life. He diagnosed a cyanide poisoning I was suffering from taking cyanocobalamine. I think very few people on the earth would have been able to arrive at that conclusion… I was astonished and followed his advice (supported by my Doctor), and I did overcome that acute situation…

Then he helped me to move to the States to follow a treatment. I could not have done it without his help…. In some way, following Rich’s advice, I got to find my current treatment, which so far has improved me from being bed-bound to being at about my 60%. This allowed me to enroll in medical school last year.

Now I am studying the second year of medical school, and I am, more than ever, determined to become a Doctor, no matter what, in order to try to help people with these kinds of neuro-immune diseases.

Rich, as a scientific and an exceptional person, not only gave me the strength and hope to go on when life did not make any sense to me, but certainly guided my life and helped me to find a purpose, a goal, that I am going to pursue until we finally find out what’s going on with these conditions.

Sergio

Looking back on my interactions with Rich, the word that came to mind is an old-fashioned one: a gentleman, a kind, good-hearted man with a robust sense of humor and a keen commitment to the ME/CFS Community. He will be missed…

{ 93 comments… add one }

  • redo September 26, 2012, 4:59 pm

    My deepest condolences. We've lost a great man in many respects. Generous, bright and uniquely altruistic.

  • justinreilly September 26, 2012, 5:17 pm

    My deepest condolences to Dr. Van Konynenburg's wife and family. What a tremendous loss to the ME community and to Science. He was truly a Great Man; one in a million. Though very saddened, I thank God for sending us this Angel who helped us so much as a scientist and a friend.

  • HowToEscape? September 26, 2012, 6:27 pm

    A truly fine man. I met him last fall at the Mt Sinai conference, and he seemed to be in 100% health. He's saved a number of people with M.E; anyone in his family reading this should know that you are related to great man.

    RIP

  • john66 September 26, 2012, 7:03 pm

    Wow, condolences to his family. I never met the man, but value his contributions to our plight greatly. Very saddened to hear this news.It makes me want to cry, knowing this man, and all of us suffered so much and didnt get better. J

  • RivkaRivka September 26, 2012, 8:01 pm

    i'm just devastated, as i think we all are. i felt like rich was one of my good friends. but i think many of us felt that way. he just reached out to so many of us. i adored him. i used to tell him i loved him after our conversations, and he would get embarrassed. :-)

    i thought so highly of him. i feel lucky to have had him in my life. his mind, and the amazing access we all had to his mind, was invaluable. a life line. you don't get access to that kind of scientific "big picture" mind usually, do you? not if you are a "lowly" me/cfs patient, isolated in bed or homebound or living in a tent because your chemical sensitivities so bad you can't tolerate a house. but he gave to just these sorts of people. he gave and gave and gave to our community – he gave his intelligence and his compassion. each email/post he sent to us was always framed by words like, "i'm sorry to hear how badly you are doing…" and "I hope you feel better soon." and he expressed outrage to me about the way we have been abandoned by our gov't and the medical community.

    i do think we it would be good to do a memorial service for him for the me/cfs/lyme/mcs community, via conference call, if rich's family thinks this is an appropriate idea, so that everyone who is homebound can attend and share their love and grief, just like we did for our sweet patrick kelly (who took his own life — because 17 yrs with me/cfs was such torture). rich was one of the very first people i asked to speak at patrick's service. once rich said yes, i knew i could pull it off (something i was not sure i could do). but with rich's support, i felt i could. rich was like that: a pillar in our community.

    it is surreal to lose two friends in just a few short months. both gave so compassionately to our community.

  • Mitavec September 26, 2012, 8:29 pm

    I was in correspondence with Rich and met him at the Mount Sinai Conference in November 2011, conversing with and posing questions after the presentations. I can only repeat the things I have read here and elsewhere – he was a gentlemen, even something of a saint, someone generous with his time and mind. At his suggestion, I did a number of tests and he interpreted the results and told me what supplements might help. He did the same for dozens, perhaps hundreds of others. I have improved over the course of 2 years after having come down with CFS, and he certainly figured within that difficult slog. He had a presence and his ideas were imposing. Other specialists I have met showed great respect for him. I wish there were more people out there like him.

  • ggingues September 26, 2012, 8:34 pm

    Thank you for all you did Rich, I agree with all sentiments posted above. This news brings tears to my eyes, his presence on this forum was appreciated and valued by many, and will be for a long, long time. RIP you great soul.

    GG

  • martiz September 26, 2012, 9:13 pm

    A dear friend has gone to be with the Lord. My heart is heavy. In the 13 years I have known him, he showed himself to be brilliant, compassionate, patient, a truly humble servant and a fellow believer so I know he is walking with Jesus. My thoughts are with his wife, Diana, and his family.

    God Bless them and bring comfort to them as they go through this difficult time. We share in their sorrow as we learn how to live without Rich in our lives.

    Heartbroken,
    Marti Zavala

  • RivkaRivka September 26, 2012, 10:16 pm

    Celebration of Life and Memorial Service via telephone

    In addition to the in-person services the family is holding (detailed on Rich's facebook page: https://www.facebook.com/rich.vankonynenburg), we will hold a Celebration of Life and Memorial Service via telephone conference call for our beloved Rich Van K, so that the ME/CFS and Lyme and MCS communities — including those who are bedridden and homebound — have a place to say goodbye, pay our respects, grieve together and heal from this huge loss we feel so very deeply. Rich's wife, Diana, will join us. It will not be scheduled until a few weeks from now. — Rivka

  • MishMash September 26, 2012, 10:20 pm

    The dynamic Rich helped pioneer, glutathione depletion and oxidative stress, is now the basis behind Biogen's newest billion-dollar drug: BG-12. He was trying to develop for treatment of our illness.

    BG-12 is by far the most effective drug for MS to come out so far; and it actually works the way Rich said it would. The drug is based on one of the supplements Rich recommended in his protocol (dimethyl fumurate). There's an absolute straight line, no question.
    http://www.ncbi.nlm.nih.gov/pubmed/22267202

    I don't know how many of his ideas were actually poached by Biogen (the corporation started studying it in 2005; and he came out with demethylation protcol in 2004..hmm). But if it eventually becomes of use to CFS patients, he will have left us a big gift.
    Anyway, a good man and great scientist is gone. Rest in peace, Rich.

  • RivkaRivka September 26, 2012, 11:43 pm

    Hi MishMash:

    can you tell us which of rich's supps is the dimethyl fumurate? i can't find that name in his most recent protocol which was last updated on aug 25, 2012.

    rivka

  • Enid September 27, 2012, 1:19 am

    I've posted on another thread about the sadness of this news but just want to add that I heard from a friend who met him that despite all his knowledge he was the most courteous, gentle, self effacing and kindest of men.

  • justy September 27, 2012, 3:02 am

    Not having been around on PR for as long as others my contact with Rich had been minimal, and yet his death has affected me hugely. I always felt his kind, courteous and compasionate presence here on the forums – a solid defender and helper to many. Watching his presentation in Sweden, when it became available, made me see even more keenly what a fine and approachable man he was.
    Justine.x

  • perrier September 27, 2012, 4:51 am

    Good Morning to all,
    I just now heard about Rich's passing. To his Wife and Family, we extend our deepest condolences. Rich was an exceptional human being: his kindness, his generosity, his brilliance, his integrity, and his compassion touched us so profoundly that I almost couldn't believe at times that such a person was within our reach–and he was. It became so that I began to rely on Rich, because I often didn't know where to turn watching my daughter suffer this horrible disease, which robbed her of a normal life. Rich responded every time I wrote to him. I clung unto him, and felt that there was a raft there, he was the raft, and that I could turn to someone who was not out for money but whose research and patience were directed to save lives. How kind he was to me. How very kind. I remember he once wrote a very lengthy analysis of my daughter's status, and I delivered it to the physician who replied: I agree with every word that Rich has written.

    I wrote to Rich about a week ago again. And he did another big favour: he contacted a doctor and obtained the information that we required. Who would do this sort of thing without money?

    Rich, thank you for everything you did. God Bless You. I will be lost without you to turn to for advice, as I have so often in the past. You exemplify what it means to work for the benefit of mankind. You are a role model for each of us. Rich, may the earth you will lie in be like the softest down. Everlasting Memory Rich.

  • Erica September 27, 2012, 5:31 am

    Rich was a prince among men. His kindness was immeasurable , and his generosity was unstinting. He gave his considerable knowledge and attention freely to anyone who asked. Rich was a true scientist and a great humanitarian. I will never forget him.

    Erica Verrillo

  • LisaGoddard September 27, 2012, 5:40 am

    It is amazing how one person can touch so many lives, many of whom he had never met in person. I am so glad that I took the opportunity a few weeks ago to tell Rich that he was one of the heroes.

  • Overstressed September 27, 2012, 5:57 am

    My deepest condolences to his wife and family. It feels like I have lost a friend, although I never personally met him. Every time I read his posts, it put me at ease. He made me always think this disease can be solved and most importantly: that somebody cared.

    One day, we'll meet,
    OS.

  • Ritto September 27, 2012, 7:28 am

    Dear Diana, I am so very sorry for you and your families loss. And for us here at Phoenix Rising.
    Rich was so very kind and generous to us all.
    Thank you to Rich.

  • scott45242 September 27, 2012, 7:56 am

    A great man. Humble, extremely bright, good sense of humor. Compassionate and overly generous with his time. Just knowing he was out there helping those of us with CFS was a great comfort. He will be missed. So sorry for the families loss and the loss to all others who greatly admired him.

  • LaurelB September 27, 2012, 8:29 am

    I was so very saddened to hear this news. Rich was such a great, kind man. I was always amazed at how much time and passion he devoted not just to understanding and researching this disease, but in connecting with patients individually to help as many as he could. A tragic loss. My deepest sympathies to his friends and family.

  • Arise September 27, 2012, 8:41 am

    Even having joined this forum recently I was shocked and saddened by Richard's death, my deepest condolences to his wife and family.

    I enjoyed his talk on CFS/ME in Sweden that he sent me a link to, he seemed a very generous, humble and genuinely kind person.

    I hope that someone can keep developing upon the work he has done for ME/CFS, so that it will benefit this and other communities as well.

  • Sallysblooms September 27, 2012, 10:26 am

    He made a difference, a very big difference….Thank you Rich.

  • Uno September 27, 2012, 10:27 am

    I cried yesterday and I am crying now. Rich I owe you everything. When I first got sick a doctor in Manchester send me a paper on the Methylation Cycle but I was too scared to try it. I joined this forum and after speaking to a lot of people, including yourself, I trod the waters and slowly began to get a bit better. I am able to walk a few paces, I managed to get to New York, all because of you. I can wash myself on my own and it's all because of you.

    I approached Rich last year and said that my charity, Neuroimmune Alliance, wanted to undertake trials on the protocol in the UK. Rich was happy to help with my applications for funding and was coming over at the first Neuroimmune Alliance event in the summer of 2013. I was due to speak to him next week but that conversation is now lost in time.

    Why God chose to take Rich I cannot say but his work shall not be in vain , I shall make sure no-one forgets it in the UK.

    RIP Rich – I shall miss you more than words can say.

  • anniekim September 27, 2012, 10:39 am

    As I wrote on another thread here on PR, Rich was a remarkable man with the rare combined qualities of keen intellect, kindness, generosity and deep humility. I know he will be greatly missed by so so many and my heart goes out to his family.

    I hope it's ok to ask what prompted Rich to take an interest in M.E? – for which I am of course forever grateful.

  • Sallysblooms September 27, 2012, 11:01 am

    He told me he had a friend that had CFS. They later moved away..

  • Tammy September 27, 2012, 11:28 am

    Shine on Rich……..and thanks again for all your help.

  • Dreambirdie September 27, 2012, 1:21 pm

    Rich was a truly exceptional human being. He was a generous spirit, so patient and compassionate with all of us in the online CFS community. He never turned down a question, and was always willing to take the time to help. I am grateful to have known him, and will miss him a lot, as will so many others whose lives he has touched.

    My condolences go out to his family and all his close friends. RIP Rich. We love you.

  • Tuha September 27, 2012, 1:40 pm

    A death of someone is always sad but now my heart is crying.
    Rich, your effort to try to help the people with our disease was very appreciated in all over the world
    RIP Rich – greeting and sending many thanks from east Europe

  • anniekim September 27, 2012, 1:56 pm
    Sallysblooms

    He told me he had a friend that had CFS. They later moved away..

    Thanks for sharing that

  • Ocean September 27, 2012, 2:05 pm

    I was very shocked to hear about this loss. My sympathies to Rich's loved ones.

  • MDL September 27, 2012, 2:14 pm

    Rich lived his life with passion and a deep sense of purpose; he leaves behind a rich legacy. He was a deeply compassionate and generous soul who never tired of reaching out and trying to help others. Everyone was invited to stand under his umbrella. He will be greatly missed, and his work will live on.

  • ahimsa September 27, 2012, 7:09 pm

    Thank you for passing on this very sad news. I never met Rich but I will miss his thoughtful contributions to the Phoenix Rising forum.

    What a terrible time his wife must be going through right now. My thoughts are with her and with all the rest of Rich's family and friends.

  • Sing September 27, 2012, 7:13 pm

    Rich set us a great example of how to help each other, supporting, respecting, and differing–when he often did–in a clear, un-egotistical way. I feel he exemplified how to draw distinctions in different views, without belittling or putting down others. He always stayed clear of negativity, without staying clear of either people or the essentials of any issue. I hope we take his example of generosity, kindness, honesty and responsibility, because those ethical qualities are key to our working successfully together and finding the answers that work.

    Rich gave us a lot of science education over the years, along with a new approach to treatment which many have found helpful. He pulled up our self esteem with his respectful treatment and encouraged us to think more like scientists. He also left the field of medical understanding of ME/CFS in a better place than he found it. For anyone reading this who has not seen Rich in action, I would highly recommend the videos of his talk in Sweden. There are links to the videos on the bottom of this column:
    http://cfspatientadvocate.blogspot.com/2011/11/mt-sinai-conference-rich-van.html

  • Sallysblooms September 27, 2012, 7:44 pm

    So true Sing. I hope everyone can be more like Rich. He was always a gentleman.

  • avreed September 27, 2012, 7:55 pm

    What a sudden and terrible shock. Rich was a passionate medical detective who never tired of deconstructing the web of biochemical mystery. He was a man with great heart and even greater compassion for all those who suffered with the devastation of CFIDS. I have kept a large file of all our emails which I still refer to frequently and also use to educate the less informed doctors in my community. Rich will be very much missed across the many forums he contributed to and will be remembered for his acuity and dedication to all. Many condolences to his family in their time of loss.
    With love and sadness,
    Alison

  • avreed September 27, 2012, 7:57 pm

    What a sudden and terrible shock. Rich was a passionate medical detective who never tired of deconstructing the web of biochemical mystery. He was a man with great heart and even greater compassion for all those who suffered with the devastation of CFIDS. I have kept a large file of all our emails which I still refer to frequently and also use to educate the less informed doctors in my community. Rich will be very much missed across the many forums he contributed to and will be remembered for his acuity and dedication to all. Many condolences to his family in their time of loss.
    With love and sadness,
    Alison

  • leela September 27, 2012, 8:13 pm

    I posted this on another thread, but thought maybe it belonged better on the Tribute thread:

    In Loving Memory of Rich

    Where once a man stood up for us

    extended hand and mind in trust​
    with ne'er a blighted word to speak​
    and led by heart did wisdom seek;​
    he longed to dredge the mystery from hiding.​
    Where long his shadow once did fall​
    we sense now just his clarion call​
    and what is left behind remains​
    indelible–uncounted gains;​
    his noble heart in memory residing.​
    His counsel many souls did seek​
    those ill and desperate, pale and weak​
    And how his gen'rous steady hand​
    with forthright calm and kindness grand​
    outstretched in patient constancy there guiding.​
    We cannot say what would have come​
    but shall recall what he has done​
    with everlasting heartfelt love​
    as he looks on us from above​
    with wisdom ever potently abiding.​
  • justinreilly September 27, 2012, 8:44 pm
    RivkaRivka

    Celebration of Life and Memorial Service via telephone

    In addition to the in-person services the family is holding (detailed on Rich's facebook page: https://www.facebook.com/rich.vankonynenburg), we will hold a Celebration of Life and Memorial Service via telephone conference call for our beloved Rich Van K, so that the ME/CFS and Lyme and MCS communities — including those who are bedridden and homebound — have a place to say goodbye, pay our respects, grieve together and heal from this huge loss we feel so very deeply. Rich's wife, Diana, will join us. It will not be scheduled until a few weeks from now. — Rivka

    Thank you for this, Rivka.

  • confetti11 September 27, 2012, 10:57 pm

    I heard about Rich's death during a call made to a fellow CFS sufferer on one of my bad days. It wasn't a bad day because of physical suffering but because of another healthy-bodied friend and confidant who turned on me, inferring this illness must be psychologically-based. How ironic that our community lost one of its biggest non-CFS-suffering supporters on that same day. This grieves me…for Rich's family, for his close friends and for a community that is consistently degraded and invalidated. As well as tirelessly trying to help us get better, Rich validated us…and there are so few who are willing to stand up and do that. He will be sorely missed. Much sympathy to those who were close to him.

  • taniaaust1 September 28, 2012, 5:37 am

    Im feeling this news deep. Rich was a friend to us all, I dont think there could be any nicer person. The time he spent helping us while asking nothing in return. He truely was one of the good guys … and someone who had so much wisdom. His passing is a huge loss to all.

    Condolences to his wife and family. We wont be forgetting Rich.

  • taniaaust1 September 28, 2012, 6:02 am

    Cort and others.

    We've been talking about Rich's passing in the chat.. so many of us are very sad about it.

    Wondering if we can dedicate the day of his passing each year as a special memorial day named after him…. to remember all those researchers who have put their hearts and time into trying to find a cure for us. I'd really like to see him and others who also devoted so much time to ME/CFS remembered in this way.

  • Django September 28, 2012, 8:58 am

    We first came into contact with Dr Rich a year ago when we were living in Thailand, our desperate escape from America to try to find an inexpensive place to live as we dealt with MCS. Thanks to his protocol and his wise words of advice and sage analysis we started to get better…and better.

    4 months ago we were well enough to take another big leap and move back to the States. So far it's worked well and our health has improved again.

    We wouldn't be here without Dr Rich.

    Just another two people who owe their life and quality of life to Dr Rich,
    Django & Dorothy

  • Django September 28, 2012, 9:00 am

    We first came into contact with Dr Rich a year ago when we were living in Thailand, our desperate escape from America to try to find an inexpensive place to live as we dealt with MCS. Thanks to his protocol and his wise words of advice and sage analysis we started to get better…and better.

    4 months ago we were well enough to take another big leap and move back to the States. So far it's worked well and our health has improved again.

    We wouldn't be here without Dr Rich.

    Just another two people who owe their life and quality of life to Dr Rich,
    Django & Dorothy

  • Django September 28, 2012, 9:06 am

    By the way, I think what made Rich so rare is that he was very smart, but he was also very humble and honest about what he didn't know. That allowed him to take in new information and synthesize new treatment approaches. I can think of two pretty big names in this area of research and treatment who became very stubborn, even in the face of more evidence, or they became "gurus" and seemed to become more money-focused as they set up their empire – neither describes Dr Rich who was the anti-thesis of that.

    That's why I think one of the best things we could do is endow a scholarship in his name. One that is designed to support a young medical researcher who has a similar mix of humility, intelligence and caring that Dr Rich has.

    Also, we need to continue the research that he started, we need to find other young, talented people who might be interested in entering this field of research and we need to support them as a community if we're to have any hope of finding better treatments for these terrible diseases. Maybe we can combine these two into one scholarship. I'm not sure where would be the best place to do it…but it could make a real difference and seems like a very appropriate way to honor Dr Rich's life.

    Django

  • ellenelle September 28, 2012, 9:12 am

    I was amazed and deeply touched by Rich's tireless dedication to our community.
    His life will continue to inspire me to try to emulate his kindness and generosity.

    Ellen

  • Jimk September 28, 2012, 10:59 am

    My deep condolences to Rich's family and loved ones. When I first read the title on my feed reader I thought that there was some well earned award he was being given. It didn't register until I read further that "tribute" was referring to his death. Even now I have trouble accepting that he is no longer here.
    I've been around the ME/CFS community for a very long time and I have never seen anyone who has been as consistently helpful to others, even tempered in his own arguments and in listening to the arguments of others, and as devoted to following a rationally based path to solve some of our puzzle. How he kept track of all the questions, lists, forums, posts, and discussions, always wiling to respond to requests, has amazed me over the years. His persistence and dedication to the facts, and his willingness to change his mind and his theory as new facts presented themselves has been a model of truly scientific thinking, and his passion for the ideas never became an ego thing in any of the discussions I have been in with him over the years. I will miss his presence in our community very much, and will mourn his passing.

  • Jimk September 28, 2012, 10:59 am

    My deep condolences to Rich's family and loved ones. When I first read the title on my feed reader I thought that there was some well earned award he was being given. It didn't register until I read further that "tribute" was referring to his death. Even now I have trouble accepting that he is no longer here.
    I've been around the ME/CFS community for a very long time and I have never seen anyone who has been as consistently helpful to others, even tempered in his own arguments and in listening to the arguments of others, and as devoted to following a rationally based path to solve some of our puzzle. How he kept track of all the questions, lists, forums, posts, and discussions, always wiling to respond to requests, has amazed me over the years. His persistence and dedication to the facts, and his willingness to change his mind and his theory as new facts presented themselves has been a model of truly scientific thinking, and his passion for the ideas never became an ego thing in any of the discussions I have been in with him over the years. I will miss his presence in our community very much, and will mourn his passing.

  • caledonia September 28, 2012, 11:17 am

    I really like Django's idea of a scholarship in Rich's name for up and coming ME/CFS researchers.

  • Sasha September 28, 2012, 11:47 am

    I'm deeply sorry to hear this. Rich was a lovely man – that came loud and clear through his posts on the forums here and on the videos of the talk he gave in Sweden. He was so generous with his time and his interest in our illness was a great help to so many. My sincere condolences to his family.

  • bertiedog September 28, 2012, 2:00 pm

    I have just read the news and I am so shocked. Rich was a lovely man, I had been in communication with him for many years and he was always so thoughtful and kind and open minded. As new information came to light Rich was always willing to adjust his opinions although of course he didn't ever get away from the role of glutathione and methylation in our illness.

    I do hope that his family know how much we in the ME/CFS community all cared for Rich and how sad we are that we will no longer be able to hear his words of wisdom. I feel like I have lost a very caring friend.

    Pam