≡ Menu

Bob Miller on Hunger Strike: Send This 1-Minute Email to Get FDA Approval for Ampligen

by Sasha

Bob-Miller-2011-Ottawa-ConferenceBob Miller has started a hunger strike to push for FDA approval of Ampligen. He and his wife, Courtney Alexander, who are well-known for drawing President Obama’s attention to the plight of people with ME/CFS, urge us not to do the same.

Instead, they’d like us to send the email below, alerting key decision-makers to his strike, to add pressure to approve Ampligen as a therapy for ME/CFS.

The FDA is expected to announced its decision sometime around Sunday 2nd February – this Sunday – so there’s no time to lose.

Wherever you are in the world, please use Bob’s template to email, and do it right now. It takes less than a minute: I’ve already sent mine.

Bob’s message

Yesterday January 29th, I began a hunger strike seeking FDA approval of Ampligen, the only medication in FDA-approved clinical trials for Chronic Fatigue Syndrome, (ME/CFS).

The FDA Advisory Committee voted Ampligen is safe given the serious nature of CFS and the critical unmet need of patients.

Please support access to Ampligen for ALL ME/CFS PATIENTS by sending a note like the one below to the Secretary of Health Kathleen Sebelius, Assistant Secretary of Health Dr Howard Koh, FDA Commissioner Dr Margaret Hamburg, and FDA CDER Director Dr Janet Woodcock and Deputy Director Dr Sandra Kweder. 

You can just copy and paste the email below.

Please also email or call your Congressional Representatives and Senators (look them up here and just click on your state) and ask them to investigate why the FDA refuses to approve the ONLY medication for CFS despite safe testing for 20 years. This is a health crisis!

The email

Click here to create your email automatically – all you then need to do is add your name, address, and number of years ill, and any personal message you’d like to add, and click Send.

To: kathleen.sebelius@hhs.govmargaret.hamburg@fda.hhs.gov, janet.woodcock@fda.hhs.gov

sandra.kweder@fda.hhs.gov, howard.koh@hhs.govash@hhs.gov

bobmiller42@gmail.com 

Subject: CFS patient starts hunger strike for FDA approval of Ampligen

“Long-time ME/CFS patient Robert Miller from Reno, Nevada began a hunger strike in advance of the FDA’s Feb. 2nd deadline to decide on Ampligen, the ONLY medication in clinical trials for my illness. I support Mr. Miller because my life has been stolen by ME/CFS and I need real treatment options. We have waited 20 years, and we can’t wait any longer. The FDA Advisory Committee voted Ampligen is safe enough to market because CFS is so serious and there are NO medications to treat patients. Please don’t let the FDA reject the only medication CFS patients can hope for any time soon.”

Your Full Name Here: 
Address Here:
Years ill:

  

Support Phoenix Rising

 

{ 69 comments… add one }

  • Sasha February 1, 2013, 2:11 pm

    Dreambirdie posted this message recently with an additional, important, urgent and quick action to take if you're in the US:

    Bob posted this on Facebook today:​
    "Patients who are able can call NBC News at 212-664-4444 and comment on the story below. Be sure to tell the person who answers why you are calling, they will put you through to a comment line where you can request for them to plesae cover this important News story Nationally, be sure to tell them where you are calling from.​
    Many thanks to All who are helping, my wife and I could not do this without your help and support.​
    Kindly, Bob"​
    THIS IS THE STORY he is referring to: http://www.nbcnews.com/id/50666787
  • Sasha February 1, 2013, 2:28 pm

    Finally blundered my way to Bob's Facebook page for those who would like to keep up to date with him:

    http://www.facebook.com/profile.php?id=1158453626

  • SickOfSickness February 1, 2013, 3:43 pm

    Thanks for the template.

  • maryb February 1, 2013, 3:57 pm

    Sent the e-mails – hope something good comes of his efforts.

  • Sasha February 1, 2013, 3:58 pm
    SickOfSickness

    Thanks for the template.

    I think you've got Mark to thank for that! :)

  • Nico February 1, 2013, 4:06 pm

    someone commenting on Bob Miller's FB page said that she has been re-directed to send an email to NBC when she called the phone number. The email is: story@nbcuni.com

  • Sasha February 1, 2013, 5:05 pm
    Nico

    someone commenting on Bob Miller's FB page said that she has been re-directed to send an email to NBC when she called the phone number. The email is: story@nbcuni.com

    Thanks, Nico – I'll post that on the thread I started on the NBC thing.

  • GcMAF Australia February 1, 2013, 5:14 pm

    Done and dusted
    from Australia
    and for K2
    No Worries
    &
    She'll be Apples

  • Sasha February 1, 2013, 5:19 pm
    GcMAF Australia

    She'll be Apples

    No idea what that means but it sounds promising!

  • GcMAF Australia February 1, 2013, 7:10 pm
    Sasha

    No idea what that means but it sounds promising!

    Australian saying
    dont worry things will work out,
    might take a bit of time tho
    dont worry be happy
    i know it is a big call

  • Tally February 1, 2013, 7:26 pm

    Please help non-native speaker to send this e-mail. Should I add "Dear Sirs and Madams" at the beginning?

  • Sasha February 2, 2013, 3:07 am
    Tally

    Please help non-native speaker to send this e-mail. Should I add "Dear Sirs and Madams" at the beginning?

    Hi Tally – I didn't put anything at all at the beginning of mine!

  • Sasha February 2, 2013, 3:11 am

    Bob posted this on his Facebook page a few hours ago:

    A fast thank you for all the support, no matter the decision we must work together just as you all have been doing the past few days. Maybe it's the lack of food, but I have not seen our community this United for some time. You All are Awesome.

    Bob

  • Merry February 2, 2013, 8:41 am

    Last evening I emailed NBC (using the address Nico provided) to ask that the story produced by their Reno affiliate be carried nationally.

  • Research 1st February 2, 2013, 8:55 am

    Hi, am I correct in thinking the second Ampligen FDA meeting is today or is it monday? Thank you.

  • Sasha February 2, 2013, 9:25 am
    Research 1st

    Hi, am I correct in thinking the second Ampligen FDA meeting is today or is it monday? Thank you.

    We've been told for a long time to expect a decision to be announced around Feb 2nd which of course is today and weirdly is a Saturday! That's all I know – anybody know any more?

    Presumably the FDA can push that back if they feel they need more time so let's just keep piling on the pressure until we hear a decision.

  • wdb February 2, 2013, 9:53 am

    Has backing this tactic really been thought through, do we want to be promoting the message that hunger strike is a legitimate campaigning tool. I fully support cause and publicising the supporting evidence but the decision should be based on the strength of the evidence alone not coerced under threat of self harm. It may well even backfire as decision makers would not want to risk it appearing as if such actions are effective.

  • Research 1st February 2, 2013, 10:15 am

    Thanks for the reply Sasha I'm glad I got the right day and yes a Saturday at the weekend, a day when the media are less active and news can be more easily deflected.

    wdb, I think Bob is very ill and probably needs Ampligen to have any function. In that circumstance I can understand why he would go on hunger strike to make a point for the FDA to approve it to himself and others. The drug is probably very hard to get and he likely has to travel a long way if he doesn't live locally to where it can be administered. I expect this is a short term protest as the decision is due any moment…we hope!

  • Sasha February 2, 2013, 11:45 am

    Hi wbd – that's an interesting point. I guess we'll all have our own personal perspective on this.

    For me, I think that what Bob is doing underlines the seriousness of the situation. People don't go on hunger strike for trivial reasons and our big problem with ME has been the perception of our disease as trivial.

    It's easier for organisations to make self-serving and poor decisions when they're not being scrutinised. A hunger strike has a good chance of getting media attention onto this and getting people asking the FDA difficult questions. I think it's going to help to get a big spotlight shining on the FDA.

  • BEG February 2, 2013, 2:01 pm
    Merry

    Last evening I emailed NBC (using the address Nico provided) to ask that the story produced by their Reno affiliate be carried nationally.

    Doing the same, Merry.

  • caledonia February 2, 2013, 2:53 pm
    wdb

    Has backing this tactic really been thought through, do we want to be promoting the message that hunger strike is a legitimate campaigning tool. I fully support cause and publicising the supporting evidence but the decision should be based on the strength of the evidence alone not coerced under threat of self harm. It may well even backfire as decision makers would not want to risk it appearing as if such actions are effective.

    If Bob doesn't get Ampligen, his quality of life will be so poor that he might as well be dead. That's the message. Ampligen is safe and effective for a subset of patients. The FDA is still waffling, for no apparent reason. This battle with getting Ampligen approved has been going on for at least 20 years!

    I'm not a big believer in conspiracy theories, but think about this – if the FDA approves Ampligen, it means the govt. admits that ME/CFS is indeed a real and very serious biologically based disease which can be treated with an approved medicine. It also means that they admit that the last 30 years of psychologically based research from the CDC is a total sham. If you were the govt. wouldn't you waffle?

  • maryb February 2, 2013, 3:08 pm

    People have to do what they feel is right, I couldn't go on a hunger strike but Bob is obviously passionate about what he is doing and I fully support his right to do it. If Ampligen is approved okay it may not be because of Bob but good on him for doing what he believes in, publicity about the seriously ill with ME/CFS is NOT what the government want to see either in the UK or the USA.
    If it is approved watch out Wessley, it means as Caledonia said,

    'if the FDA approves Ampligen, it means the govt. admits that ME/CFS is indeed a real and very serious biologically based disease which can be treated with an approved medicine. It also means that they admit that the last 30 years of psychologically based research from the CDC is a total sham'

    That applies to the UK too.

  • Kati February 2, 2013, 4:04 pm
    caledonia

    If Bob doesn't get Ampligen, his quality of life will be so poor that he might as well be dead. That's the message. Ampligen is safe and effective for a subset of patients. The FDA is still waffling, for no apparent reason. This battle with getting Ampligen approved has been going on for at least 20 years!

    I'm not a big believer in conspiracy theories, but think about this – if the FDA approves Ampligen, it means the govt. admits that ME/CFS is indeed a real and very serious biologically based disease which can be treated with an approved medicine. It also means that they admit that the last 30 years of psychologically based research from the CDC is a total sham. If you were the govt. wouldn't you waffle?

    It makes you wonder, also, why Peter White and his firends managed to publish a paper on CBT and GET hours away from FDA deadline to providing an answer.

  • wdb February 2, 2013, 4:31 pm
    caledonia

    If Bob doesn't get Ampligen, his quality of life will be so poor that he might as well be dead. That's the message. Ampligen is safe and effective for a subset of patients. The FDA is still waffling, for no apparent reason. This battle with getting Ampligen approved has been going on for at least 20 years!

    I'm not a big believer in conspiracy theories, but think about this – if the FDA approves Ampligen, it means the govt. admits that ME/CFS is indeed a real and very serious biologically based disease which can be treated with an approved medicine. It also means that they admit that the last 30 years of psychologically based research from the CDC is a total sham. If you were the govt. wouldn't you waffle?

    I didn't write anything to dispute any of that, like I said I fully support the cause and would love to see Ampligen approved. My concern is over supporting extreme tactics like hunger strike and whether that would actually help or harm the cause. It may help but we should not overlook the harm it could do. Historically extreme action of that nature whether real or perceived has been a disaster for the community, it has reinforced prejudices of us being a crazy irrational and has provided ammunition that has been very successfully and repeatedly used against us. It brings no evidence or rational argument to the table and may even be taken as a sign that we have run out and so are resorting to other strategies.

  • jimells February 2, 2013, 5:00 pm

    Even His Imperial Highness Steven Harper (prime minister of Canada) blinked and agreed to a meeting with First Nations Chiefs when Chief Teresa Spence went on an extended fast. Chief Spence's action received wide coverage in Canada (Canada? Isn't that a U.S. territory??) and stirred up much heated debate on the poor treatment and living conditions of Canada's native peoples.

    There's no guarantee that Bob Miller's action will be successful, but doing nothing is a recipe for failure.

  • Kati February 2, 2013, 5:01 pm

    wdb, I wonder what other extreme tactics can be used?

    I am not aware of any other tactics that have worked in inciting action from the governments and agencies.

    What Robert is doing is definitely extreme- however nothing that's been done before has worked. The truth is that ME or CFS or whatever you want to call it is not a priority for our governments, and is not something governments want to touch either- it doesn't give political parties a better image-

    Status quo sounds so inviting for them.

    It's time that things change.

    Recently there was a hunger strike in Canada by a chief of an aboriginal reserve, she was asking for a meeting with the prime minister. She slept in a tee pee near the Parliament and generated lots of publicity and newscast from all around the country. That lasted 6 weeks. She was not eating but drank tea and fish broth.

    jimells you beat me to it by 1 minute !

  • Nico February 2, 2013, 5:12 pm
    Merry

    Last evening I emailed NBC (using the address Nico provided) to ask that the story produced by their Reno affiliate be carried nationally.

    I have also contacted a local news reporter in our city via email her FB page. She is fully recovered from ME/CFS…works…got married….baby. Anyway…a few years ago she did a 5 day piece on ME/CFS (I didn't get to see it). I don't know if it's too tangential to contact her, but I did anyway. I actually sent her Cort's new link and referred her to PR as well. If anyone cares to know who she is this is her FB page. You can find her private news room email in the about section.
    https://www.facebook.com/pages/Jennifer-Johnson/142415085792722

  • GcMAF Australia February 2, 2013, 5:43 pm

    Well a number of sufferers are very very sick
    some think well what if I collapsed so a hospital had to take me in!
    A lyme person died without treatment
    I dont agree with a hunger strike as such, would not encourage it, but I will support him in any way i can.

  • SOC February 2, 2013, 8:58 pm
    wdb

    I didn't write anything to dispute any of that, like I said I fully support the cause and would love to see Ampligen approved. My concern is over supporting extreme tactics like hunger strike and whether that would actually help or harm the cause. It may help but we should not overlook the harm it could do. Historically extreme action of that nature whether real or perceived has been a disaster for the community, it has reinforced prejudices of us being a crazy irrational and has provided ammunition that has been very successfully and repeatedly used against us. It brings no evidence or rational argument to the table and may even be taken as a sign that we have run out and so are resorting to other strategies.

    I think those of us with mathematical/scientific inclinations sometimes have a hard time understanding the value of not entirely logical techniques. A large part of the problem for us is that it's not logical scientific people making the decisions — it's people that respond to emotional arguments more than logical ones.

    I realize this is not true of all scientific people, but I have learned that I have to leave these kinds of things up to political and public relations types who understand how playing on the emotions affects policy. Journalists are attracted to stories like Bob's hunger strike and we need journalists to start paying attention to us. This is definitely not my area and it confuses the heck out of me. :confused:

  • Sushi February 2, 2013, 10:33 pm

    Update from Bob Miller today:

  • Sasha February 3, 2013, 3:49 am

    That's a worrying update – this is clearly tough on Bob. Let's support him all we can.

  • wdb February 3, 2013, 5:32 am
    SOC

    I think those of us with mathematical/scientific inclinations sometimes have a hard time understanding the value of not entirely logical techniques. A large part of the problem for us is that it's not logical scientific people making the decisions — it's people that respond to emotional arguments more than logical ones.

    I realize this is not true of all scientific people, but I have learned that I have to leave these kinds of things up to political and public relations types who understand how playing on the emotions affects policy. Journalists are attracted to stories like Bob's hunger strike and we need journalists to start paying attention to us. This is definitely not my area and it confuses the heck out of me. :confused:

    Well lets hope there was a public relations expert behind this who has done their research and knows what they are doing and that Bob is seen as someone that needs Ampligen more than someone that needs psychological intervention. I won't say any more other than to wish Bob and the campaign good luck.

  • Merry February 3, 2013, 9:50 am

    The issue of treatment for ME/CFS patients is a social justice issue, first and foremost, rather than a scientific one. To address the neglect of ME/CFS patients by governments around the world, political, nonviolent action is called for.

    Dr. Gene Sharp listed the methods of nonviolent protest and persuasion in his book The Politics of Nonviolent Action, Volume 2, published in 1973. Hunger strike is number 159b on the list, compiled from Dr. Sharp's book, at the Albert Einstein Institute's website:

    http://www.aeinstein.org/organizations103a.html

  • snowathlete February 3, 2013, 10:29 am
    wdb

    I didn't write anything to dispute any of that, like I said I fully support the cause and would love to see Ampligen approved. My concern is over supporting extreme tactics like hunger strike and whether that would actually help or harm the cause. It may help but we should not overlook the harm it could do. Historically extreme action of that nature whether real or perceived has been a disaster for the community, it has reinforced prejudices of us being a crazy irrational and has provided ammunition that has been very successfully and repeatedly used against us. It brings no evidence or rational argument to the table and may even be taken as a sign that we have run out and so are resorting to other strategies.

    Extreme action in the ME/CFS community has been about a minority of people adopting an extreme but also stupid approach. Taking extreme action against the opposition is not going to win you any fans, but taking extreme action against yourself as a demonstration is good because it puts the focus on you, not the opposition. Extreme but appropiate action can be very positive. Think Gandi and The Suffragettes. Personally, I think extreme action like Bob's (note, I am not condoning all extreme actions) is all that is left to a group like ours that is so repeatedly downtrodden. I think we should do more of it. We have tried making rational arguments and it doesnt work because there is a group of people that act against that rationality with false information and propoganda. Bob's strategy escallates above that business and forces people to take a serious look at the real problems instead of just ignoring them. To date, we generally make a little noise, but ultimately go away into the shadows. Bob is doing something noticable.

  • Nico February 3, 2013, 10:46 am
    Merry

    The issue of treatment for ME/CFS patients is a social justice issue, first and foremost, rather than a scientific one. To address the neglect of ME/CFS patients by governments around the world, political, nonviolent action is called for.

    Dr. Gene Sharp listed the methods of nonviolent protest and persuasion in his book The Politics of Nonviolent Action, Volume 2, published in 1973. Hunger strike is number 159b on the list, compiled from Dr. Sharp's book, at the Albert Einstein Institute's website:

    http://www.aeinstein.org/organizations103a.html

    AGREE! I was thinking of contacting Human Rights Watch about this. Also, in my daydreaming about this…. can we sue (class action) the FDA for some kind of human rights violation? I guess the verdict may be in on Monday, 2/4.

    Ok, adding an edit here. I just contacted Human Rights Watch through their Facebook message function. I added this link/thread.

  • BEG February 3, 2013, 10:56 am
    Merry

    The issue of treatment for ME/CFS patients is a social justice issue, first and foremost, rather than a scientific one. To address the neglect of ME/CFS patients by governments around the world, political, nonviolent action is called for.

    Dr. Gene Sharp listed the methods of nonviolent protest and persuasion in his book The Politics of Nonviolent Action, Volume 2, published in 1973. Hunger strike is number 159b on the list, compiled from Dr. Sharp's book, at the Albert Einstein Institute's website:

    http://www.aeinstein.org/organizations103a.html

    (The book Merry mentioned by Gene Sharp is available for Kindle rather cheaply.

    When the Syrian revolutionaries were just beginning, they consulted with Gene Sharp, who, of course, recommended nonviolence, and told them they needed to change the system by working within its institutions. Haven't we tried that with the CFSAC? Merry's post reminds me of Henry David Thoreau's, Civil Disobedience, who also advocated nonviolence. Aren't we doing that with all our emails?

    IMHO, I think that maybe Bob thought it was time to notch it up just a tad. Certainly his actions are nonviolent. I believe the only disappointment is that more aren't joining the hunger strike and being very vocal about it.

    In the meantime, the rest of us need to keep up the email campaign. Do it NOW! (see Sasha's signature below.)

  • Nico February 3, 2013, 11:01 am

    I am going to forward my email to NBC news to Human Rights Watch NYC.
    http://www.hrw.org/contact-us#NewYork

  • SpecialK82 February 3, 2013, 11:16 am

    Does anyone remember the name of the man that is a reporter for Huffington Post, he has ME/CFS and did a story on it within the past year or so? I'm sure he would love to pick up this story.

    Also, I wonder if we should start writing ABC, CBS, and maybe some cable news channels – we could link to the local news show. Probably need to write that what is going on with Robert is just the tip of the iceburg – that there is a HUGE story here, if they want to investigate.

  • Nico February 3, 2013, 11:18 am

    I have also cc'd into my message to Human Rights Watch this org.
    https://www.facebook.com/DREDF.org?ref=ts&fref=ts

    OK, I better slow down my posts. :sluggish:

  • caledonia February 3, 2013, 12:21 pm
    wdb

    I didn't write anything to dispute any of that, like I said I fully support the cause and would love to see Ampligen approved. My concern is over supporting extreme tactics like hunger strike and whether that would actually help or harm the cause. It may help but we should not overlook the harm it could do. Historically extreme action of that nature whether real or perceived has been a disaster for the community, it has reinforced prejudices of us being a crazy irrational and has provided ammunition that has been very successfully and repeatedly used against us. It brings no evidence or rational argument to the table and may even be taken as a sign that we have run out and so are resorting to other strategies.

    Was Ghandi perceived as nuts? No, he was perceived as an annoyance by the British and a hero by the people. Either way, he got what he wanted, which was to get India independent of British rule.

  • BEG February 3, 2013, 12:36 pm
    Nico

    I am going to forward my email to NBC news to Human Rights Watch NYC.
    http://www.hrw.org/contact-us#NewYork

    Done. Here is my submission to the Human Rights organization. It can also be tweaked to send to NBC, CBS, and ABC. Copy if you would like.

    An NBC affiliate in Reno, NV, ran a story about a CFS (Chronic Fatigue Syndrome) patient, Robert Miller, who is speaking out concerning the FDA's possible disapproval of Ampligen, the first and only drug with proven safety, and effectiveness for a subset of the 1 million U.S. CFS patient population.

    The patient community's need for treatment is so urgent that Bob is using a hunger strike as a tactic to attract attention to the forthcoming approval/disapproval of Ampligen. Ampligen is the first and only drug in the pipeline for CFS patients, and it’s been in the pipeline for twenty years. Ampligen has improved lives for so many. Ampligen patients were able to go back to prior employment. They rejoiced in the ability to live their lives again, but without Ampligen they will backslide right into their beds and remain there until another treatment comes around. With Ampligen’s disapproval, it is unlikely that CFS will see new drugs in the near future.

    I would ask you to bring this newsworthy event to a broader audience, national if you will, so the public will know the plight of CFS patients with regard to Ampligen, a drug which the patient population has waited 20 years to hear "Approved!" by the FDA..

    Respectfully,

    YOUR NAME
    YOUR CITY, STATE

  • Nico February 3, 2013, 12:42 pm

    I also emailed Bill Moyers, but it has to be done through his web site. I didn't write too much, and attached Health Rising link (because it has some video testimonies).

  • BobM February 3, 2013, 2:52 pm
    caledonia
    wdb

    Has backing this tactic really been thought through, do we want to be promoting the message that hunger strike is a legitimate campaigning tool. I fully support cause and publicising the supporting evidence but the decision should be based on the strength of the evidence alone not coerced under threat of self harm. It may well even backfire as decision makers would not want to risk it appearing as if such actions are effective.

    If Bob doesn't get Ampligen, his quality of life will be so poor that he might as well be dead. That's the message. Ampligen is safe and effective for a subset of patients. The FDA is still waffling, for no apparent reason. This battle with getting Ampligen approved has been going on for at least 20 years!

    I'm not a big believer in conspiracy theories, but think about this – if the FDA approves Ampligen, it means the govt. admits that ME/CFS is indeed a real and very serious biologically based disease which can be treated with an approved medicine. It also means that they admit that the last 30 years of psychologically based research from the CDC is a total sham. If you were the govt. wouldn't you waffle?

    Hi all, Day 6… I am low on energy, but I would like to make a few thing clear:
    1. I am not doing this only for the approval of Ampligen, that is only a heavy straw FDA has placed on our illness, I do this for the patients suffering daily, and yes that includes me, but I have children and what if one day they get ill, I must do whatever it takes to Awaken our federal health agencies.
    2.As far as what will the medical establishment think, I can only tell you what the experts in the field think including CFSAC, they know me and know I am of sound mind and that includes FDA and HHS.
    3.The evidence, if one is unwilling to hear the evidence, it does not matter what one says. At the FDA panel meeting, the Sponsor tried to address concerns of FDA several time, but the chair would not recognize the Sponsor to respond. You will need to watch the Webcast.

    Thank you all for the support,
    Bob Miller

  • Rooney February 3, 2013, 2:54 pm

    I'm going to call the Wall Street Journal, 212.416.2000 and the Washington Post, 212.334.6000 and USA Today,
    703.276.3400 about our campaign and the interesting delay. I read it's best to call directly to get a news story in a paper. Perhaps our efforts are having some effect as I imagine it's strange for the FDA to overshoot a due date.

    Good luck to us all. Take care Bob.

  • Sasha February 3, 2013, 3:30 pm
    BobM

    Hi all, Day 6… I am low on energy, but I would like to make a few thing clear:
    1. I am not doing this only for the approval of Ampligen, that is only a heavy straw FDA has placed on our illness, I do this for the patients suffering daily, and yes that includes me, but I have children and what if one day they get ill, I must do whatever it takes to Awaken our federal health agencies.
    2.As far as what will the medical establishment think, I can only tell you what the experts in the field think including CFSAC, they know me and know I am of sound mind and that includes FDA and HHS.
    3.The evidence, if one is unwilling to hear the evidence, it does not matter what one says. At the FDA panel meeting, the Sponsor tried to address concerns of FDA several time, but the chair would not recognize the Sponsor to respond. You will need to watch the Webcast.

    Thank you all for the support,
    Bob Miller

    Thanks, Bob – you clearly have not only a sound mind but an exceptionally strong one! I hope you're taking very good care of yourself.

  • Kati February 3, 2013, 4:50 pm

    Bob has an update for Day 6.

  • Kati February 3, 2013, 5:44 pm

    Mindy Kitei blogs again today about Bob's hungerstrike

    http://www.cfscentral.com/2013/02/hamlet-without-hamlet.html?m=1

  • Sasha February 4, 2013, 4:01 am
    Kati

    Bob has an update for Day 6.

    Thanks, Kati – Bob says in this video (in which he really doesn't appear well at all and says he was going into kidney failure so is now on a saline drip) that he wants us to keep emailing and (for US people) writing to our representatives, use our media contacts and send any contacts to him at bobmiller42 [a] gmail.com.

    He says it's looking unlikely that Ampligen will be approved by the FDA and that the decision might come today – but he's clearly got some plans for what to do if the decision goes against us.

  • Sasha February 4, 2013, 4:14 am
    Rooney

    I'm going to call the Wall Street Journal, 212.416.2000 and the Washington Post, 212.334.6000 and USA Today,
    703.276.3400 about our campaign and the interesting delay. I read it's best to call directly to get a news story in a paper. Perhaps our efforts are having some effect as I imagine it's strange for the FDA to overshoot a due date.

    Good luck to us all. Take care Bob.

    Great stuff!

    There's a press release out now:

    http://forums.phoenixrising.me/inde…ess-release-do-you-have-media-contacts.21669/

  • Sasha February 4, 2013, 4:21 am

    Just sent another email telling them it's day 6 of Bob's hunger strike…