The RMCFA is one of six CFS organizations in the running for from 25K in the Chase Community Giving Contest running until Aug 22nd. Chances are,though, that after being in contention for 2 weeks, on the last day of being in the Chase Community Giving contest, the RMCFA will drop out of the top 100 and come up penniless.
We don’t want this to happen. We have 22 hours to make sure that it doesn’t happen.
Incorporated in 1991, the RMCFA provides regular speakers, a monthly email newsletter and an Action Center. It’s Executive Director, Mike Munoz, was a co-founder of the Coaltion4ME/CFS – a national group of ME/CFS non-profits dedicated to improving conditions for people with ME/CFS. The Coalition4ME/CFS is currently working to reclassify CFS as neurological condition under the ICD 9 and 10-CM.
Check out an interview with Executive Director, Mike Munoz – http://aboutmecfs.org/Adv/RMCFSA.aspx
THE RMCFA RESPONDS
Check out some reasons why the CFS Community would benefit from the RMFCA winning the Chase Contest in this interview from the Facebook ME/CFS Fundraising group. https://www.facebook.com/groups/221024774616166/,
What is the focus/purpose of your nonprofit–research, advocacy, support? Please describe briefly.
About RMCFA: We are celebrating our 25th year and been a 501(c)3 since 1991. RMCFA is a charter member of both the Coalition 4 ME/CFS and Fibromyalgia. Our mission is Advocate for research, Awareness for understanding, Educate for patient care, Support for hope for patients with ME/CFS and fibromyalgia and their families.
- Website: http://www.rmcfa.org/index.
- Facebook: https://www.facebook.com/
- Twitter: http://twitter.com/#!/RMCFAorg YouTube: http://www.youtube.com/user/
What projects/areas has your organization funded?
We have many programs but here are a few
We put out a monthly/semi monthly newsletter (enews) – http://www.rmcfa.org/2011_9_22_enews.html and archives – http://www.rmcfa.org/enews.html which outlines rmcfa programs, research, activities and community news.
We have monthly meetings that vary from support to educational – archive – http://www.rmcfa.org/eventarchive.html We have a patient support line – http://www.rmcfa.org/contactus.html and patient support through email – email@example.com
About how many members does your group have?
RMCFA is involved in patient support locally, nationally and internationally through the above various programs. We do not have “memberships” but we have 500+ on our email list and draw around 20-50 people to our events. Our programs serve patients and their families throughout the world (website, social media and email/phone) We have been instrumental in both the DSM-5 and ICD-10-CM initiatives brought by the coalition 4 ME/CFS – http://coalition4mecfs.org/News.html. and current petition – http://www.change.org/petitions/donn…-the-icd-10-cm.
Just this year we have also teamed up with Pandora (and many other orgs) on the CDC initiative and petition – http://www.change.org/petitions/tell…mecfs-research and MCWPA activities including the Washington post ad and 30 second PSA (see on RMCFA youtube) and a sponsor of “Speak up about ME” (young people with ME) http://www.speakupaboutme.org/thanks just to name a few
How would you plan to use prize money?
We are all volunteer and 98% of donations proceeds go to programs. Use of donations, grants and giving contests are mandated by the board of directors. It is safe to say that Chase giving proceeds will go to the above programs and allow us to open a few new ones over many years to come We work with many in the ME/CFS and Fibromyalgia medical community to improve the quality of life for patients.
Vote for the RMCFA (under Rocky Mountain CFS Association Inc) on the Chase Community – here http://bit.ly/s5fAJh
For more on CFS non-profits and the Chase Community Giving contest –http://forums.phoenixrising.me/content.php?499-Two-Weeks-for-250-000-(or-more)-for-ME-CFS-Supports-with-Chase-Community-Giving-(Nov-8th-22nd)