Action for M.E. – the UK’s largest CFS/ME charity – launched a new research strategy in November based on the priorities identified by patients. We asked the Charity’s Chief Executive, Sonya Chowdhury, about the new strategy and also about the commitment to greater patient involvement. By Russell Fleming and Simon McGrath. Charities have always connected with patients – many were
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Your help ensured the National ME/FM Action Network of Canada romped through to the Semi-Finals of the Aviva Community Fund competition. Now we need to vote again and see them through to the Finals and a chance at that all important $100,000! Vote online, each and every day from 02 – 11 December 2013! You did it! Your online votes
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Tom Kindlon has been nominated in two categories for his herculean efforts with regard to health activism on the internet and in particular his work in disseminating the reality of the PACE Trial and GET/CBT as ‘effective’ treatments for ME/CFS. By Firestormm. The other day, I happened to notice a link posted on the Phoenix Rising Facebook page to the
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Astrid13 recalls the alarming mental confusion associated with her life of chronic illness and explains how her own search for answers may finally be yielding results – though she still has a long road to travel… In 2006, following a miscarriage, I began to suffer the most horrible cognitive decline. A D&C had been performed under general anesthesia and after
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Janis Bell (JanisB) reviews her personal journey of chronic illness after being inspired by a new article written by Jill Neimark and appearing online today in Discover magazine. It highlights the work of Dr Claudia Miller (pictured) and her theories relating to extreme chemical sensitivity and toxicants, a condition she terms, Toxicant-induced Loss of Tolerance or TILT. By the time
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Filmmaker Jennifer Brea launches the Kickstarter campaign today with the trailer of her forthcoming documentary Canary in a Coal Mine – a film that will help change the face of ME. Interview and article by Russell Fleming (Firestormm). When did you first get sick and why did you decide to make a film? “It started with the worst flu of
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by the Phoenix Rising Content Team Do you ever read a Phoenix Rising article and think, ‘I could write something like that’? Or do you fancy helping articles through the publication process, onto the front page and beyond? Then maybe you’d like to join our Content Team of writers and editors and help produce articles that will be seen here,
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It will cost you nothing more than an online vote to help see the National ME/FM Action Network enter the second round of the Aviva community competition to win $100,000. Voting in this round closes 14th October and you can vote every single day until then – so please join us and cast your vote now! By Firestormm. Join us
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TheChronicSituation writes about how choosing to live hidden behind even a partial mask can seem easier, especially when it saves on bothersome explanations. But, at the end of the day, pretense can come at a cost – nobody really knowing who you are… The majority of people I know, don’t know that I have CFS/ME. In a way, I feel
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