There are a number of excellent support groups for ME/CFS patients, and many also have good information resources about the disease.
One of the very best is, of course, us! Phoenix Rising is run by and for patients, and as well as our information pages (accessed via our home page menu), you can find information and support on our very active and friendly forum, which is the largest ME/CFS forum in the world.
Below are listed the main international ME/CFS forums (and, like ours, some have information pages), and the charities and groups who offer information and support.
Research charities are listed on a separate page.
Support & information charities
Only international, national and state-level groups are listed below. For groups at a more local level, either search the web or ask on our forums.
International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME)
Solve ME/CFS Initiative
New Jersey CFIDS Association
Rocky Mountain CFIDS/FMS Association
Wisconsin Chronic Fatigue Syndrome Association
Invest in ME
ME Research UK (MERUK)
Action for ME
Tymes Trust (for children and young people with ME and their families)
25% ME Group (for severe sufferers)
ME/CFS Australia (SA) Inc
National ME/FM Action Network
Myalgic Encephalomyelitis Association of Ontario (MEAO)
Irish ME Trust
Irish ME/CFS Association
Associated New Zealand ME Society (ANZMES)