The Fable known as The PACE Trial

Graham, Janelle and Bob, have once again excelled themselves with their latest take on the ‘poisoned apple’ that was the PACE Trial… Once upon a time, long, long ago a king and queen ruled over a distant land. The queen was kind and…. Whoops, sorry there! I got confused for a moment. Wrong fantasy tale… Several years ago a team

Continue

Science to Patients: Talking ME, Exercise and the Mitochondria – with Dr Charles Shepherd

The latest video release from the Dutch group ME/cvs Vereniging, with Dr Charles Shepherd from the UK ME Association, and announcing a live chat session to be held Thursday, April 10, 2014… ME/cvs Vereniging launched a series of broadcasts from expert clinicians and researchers in January 2013, as part of a government subsidized project called, “Science to Patients”. Each expert

Continue

California 2014: IACFS/ME Day Three: Translating Science into Clinical Care: 22 March 2014

Day Three, and Searcher continued to deliver the goods. We hear about the PANDORA national survey results, a very big familial case study from Spain, results from the Canadian Community Health Survey, more results from epidemiological studies (and a look at treatments and comorbidities), then perhaps the key section of the day: the science of exercise testing and post-exertional malaise… It’s Day Three

Continue

California Conference Season 2014: Stanford Presents – Advances in Clinical Care and Translational Research

The 2014 conference season began yesterday at Stanford, home of Dr. Jose Montoya and his team, and searcher was there to provide a live commentary on the presentations from an all-star line-up of clinicians and scientists and which featured some exciting new developments on the research front… Stanford plays host to the first of five conferences over coming days, and,

Continue

Embracing Change – ME and the International Classification of Diseases

The WHO ICD featured recently in an online article (since withdrawn), which heightened patient concern over what might happen when the current ICD-10 is finally revised. N.A.Wright provides a timely summary of this international classification system, considers some of the issues surrounding the existing and proposed listing, and calls on our advocacy organisations to get involved… The World Health Organization

Continue

Blood Tests: Why Test the Blood? Dr Charles Shepherd

The Medical Advisor to the ME Association, Dr Charles Shepherd, writes about the importance of blood testing prior to receiving a diagnosis, explains what each test means including for children, and considers when new tests might be necessary… Human blood contains red cells, white cells, platelets and plasma. Red blood cells carry oxygen around the body – so a deficiency

Continue

CDC Multi-site Study – An interview with Beth Unger

The CDC multi-site clinical assessment of CFS/ME is now underway, and Bob took the opportunity to interview Dr Beth Unger, the lead scientist in charge. The outcomes of this significant study are likely to be widely influential and the means by which the CDC employ objective measures has become something of a hot potato, especially in relation to exercise testing…

Continue