By Bronc Dr. Nina Muirhead is a dermatology surgeon and founding member of Doctors for ME in the UK. Since developing ME in 2016 she has done a lot to promote awareness of the disease writing and speaking to various health bodies across the world including a presentation shown at the 71st World Health Assembly. She is Chair of the
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For over 25 years, Dr. Suzanne Vernon has been trying to crack the case of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). Image courtesy of Dr. Suzanne Vernon. by Bronc I first fell ill with terrible fatigue-like symptoms in the summer of 2010. Besides the bone-crushing fatigue, I felt fearful, confused, perplexed and demoralised by this mysterious illness that had reduced
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By Bronc and Eric Pyrrhus For many decades now, people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) across the world have had to deal with medical establishments wedded to inaccurate scientific dogma regarding their illness. Alongside this, there has been a disastrous lack of funding for biomedical research into the illness. Thankfully, there is a growing body of open-minded scientists
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By Bronc In the world we live in people are suffering from all kinds of illnesses, which require a variety of different medications to treat them. Often, the road to finding a novel medication for a particular illness can take many years, as the money for medical trials usually comes from drug companies who have to spend large amounts of
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By Bronc People living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) are definitely not “just a little tired.” But they are indeed tired of some things — such as dealing with medical ignorance, the very slow pace of research, and seemingly endless discussions over terminology and definitions. But in science, precise terminology and precise definitions are absolutely essential in order
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By Bronc Dr. Amy Proal, of the PolyBio Research Foundation, is a microbiologist interested in the molecular mechanisms by which bacterial, fungal and viral pathogens dysregulate human gene expression, immunity and metabolism. She is especially interested in how dysfunction of the human microbiome and/or the human virome can contribute to chronic inflammatory disease processes. We sat down with Dr. Amy
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By Bronc It was a warm summer evening and I was looking forward to watching one of my favourite films, when I received a text from my best friend. I expected the text to be a question asking me what film I was going to watch. Instead, he informed me that the night before he had attempted to kill himself.
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By Bronc Late last year Dr. Dane Cook, along with Dr. Jacob Lindheimer and colleagues, published a systematic review of research looking at pain as a component of post-exertional malaise (PEM) — which is also known as post-exertional symptom exacerbation (PESE). As seen with other components of PEM/PESE, any pain seemed to be delayed by 8-72 hours after exertion. Interestingly,
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Dr. William Weir is a retired physician who has treated ME/CFS patients for many years. He has spent the last few years advising the U.K. government’s National Institute for Health and Care Excellence (NICE) and has recently authored an article about dogma and science. Image courtesy of Dr. William Weir. by Bronc Dr. William Weir is a retired infectious disease
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by Bronc Dr. Mark Zinn and his late wife Dr. Marcie Zinn co-founded the NeuroCognitive Research Institute. He has expertise in quantitative and tomographic methods of electro-encephalographic analysis, in order to test theoretical premises in research involving neurocognitive disorders. From 2011-2014 he served as research consultant at the Stanford University School of Medicine, where he studied cognitive impairment in infection-associated chronic
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From the central nervous system to Long COVID to energy impairment, Dr. Anthony Komaroff provides his perspective on over 30 years of scientific research into myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) and post-acute viral illnesses. Versión en español • Version française • Nederlandse versie • Deutsche Version By Bronc and Eric Pyrrhus Dr. Anthony Komaroff is really on a roll. For a sometimes
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On August 8th our ME community honours Severe ME Understanding and Remembrance Day, this year and every year. Rachel M. shares her thoughts on living with Very Severe ME … By Rachel M. Hello. I’m Rachel from Queensland, Australia. I live with Very Severe ME. My Very Severe ME is clinically confirmed, according to Myalgic Encephalomyelitis International Consensus Primer for Medical
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