Posted by Cort Johnson American Red Cross Says No to Possibly Dangerous ME/CFS Blood – Citing recent studies suggesting that XMRV may, in fact, really be present in CFS, the American Red Cross banned people with ME/CFS from donating blood. Why does a Red Cross ban of CFS blood make the newspapers? Because, as the Red Cross website puts it
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Lannie at the Pacific Fatigue Lab: Part IV The Report is In – Implementing the Results
Discuss this article on the forums (Lannie goes over the report from the Pacific Fatigue Lab and creates a ‘a plan of attack’ to implement what she’s learned about her body. Thanks again to Lannie for providing us our first in depth look at the Pacific Fatigue Lab’s innovative technology. You can find her blog here) Check out Part I
ContinueNot One Alone: CFIDS Association Board of Directors Take a Stand For the Power Of ‘We’
Posted by Cort Johnson Discuss this article on the forums (The CAA Board of Directors takes a stand for we, asserting and recognizing that no one group has the answer or ‘the’ right approach and that there are many types of ME/CFS and therefore many speakers for it. Can a community of ‘We’ take hold in ME/CFS? Can we agree
ContinueXMRV Buzz (11/28) – Dr. Cheney, BWG Meeting, Newsweek….
Posted by Cort Johnson Dr. Cheney Reports – in his latest newsletter – or at least that part of which is available for free – Dr. Cheney reports news on the serology tests emanating from VIP Dx. Earlier Dr. Mikovits noted that antibody tests picked up more positives than PCR tests.Dr. Cheney noted that 2 out of the three people
ContinueLetter to Fred Friedberg and All CFSAC and IACFS/ME Officers
Posted by Cort Johnson Discuss this article on the forums (This letter was sent to me by someone who wishes to remain anonymous. He advocated for CFS 20 or so years ago and, like so many others, re-emerged with the XMRV announcement. Looking at the CFSAC meeting was like deja vu for him in too many ways. He is certainly
ContinueXMRV Buzz (11/24) – The Singh XMRV Patent – The Next Cancer for XMRV? Prostate Cancer Results…
Posted by Cort Johnson The Next Cancer for XMRV? – JMK on the MECFS Forums snuffed out Dr. Singh’s XMRV patent application and then XMRV Global Action highlighted the most relevant sections and here we are with what is easily the most exciting news for XMRV since the Science paper was published in October of last year. The patent application
ContinueA Man From Whom Viruses Can’t Hide – Chang Lee/The New York Times on Dr. Ian Lipkin…
Posted by Cort Johnson Discuss this article on the forums (The New York Times article on Dr. Ian Lipkin – the man chosen by the NIH to lead their hunt for XMRV in CFS – portrays a man at the top of his field.) https://www.nytimes.com/2010/11/23/science/23prof.html?emc=tnt&tntemail0=y Dr. W. Ian Lipkin was spending the afternoon prowling his empire of viruses. The Center
ContinueXMRV Buzz Nov 21st – Mice, Dr. Enlander and being ‘Undefeated’
Posted by Cort Johnson The XMRV Buzz -short takes on the world of XMRV – will now be appearing regularly on the “Bringing the Heat” Blog Unbroken – the Louis Zamperini and Laura Hillenbrand Story – no it’s not about XMRV but it is about Lauren Hillenbrand and that means CFS. She is a great spokeswoman for CFS and Louis
ContinueLannie at the Pacific Fatigue Lab: Part III – The Test Results!
Posted by Cort Johnson Discuss this article on the forums (Now to the meat of it – Lannie finds out her test results and explains what they mean. Are we getting to the heart of the exertional problems in ME/CFS? At least for Lannie we appear to be. Read deeply – this is important stuff. Thanks again to Lannie for
ContinueDr. Friedberg Interview – Living Skillfully To Impact ME/CFS
Posted by Cort Johnson (Dr. Friedberg is an intriguing figure; a psychologist questions the effectiveness of CBT and who, as President of the IACFS/ME, has taken the CDC to task for beginning CBT trials yet someone who is also believes that pacing and ‘stress management’ can pay real dividends for some people with ME/CFS. In this long interview he talks
ContinueOne Agent For Change: I Cannot Imagine Our Community Without… by Marly Silverman
Discuss this article on the forums Written by Cort (Marly Silverman is the co-founder of PANDORA, a Florida organization devoted to improving the lives of people with ME/CFS and other NEID’s (neuroendocrineimmune disorders). Marly granted permission to post her blog here.)) I haven’t been blogging lately. Because of the time, stamina and physical efforts allocated for personal medical issues, it
ContinueLannie at the Pacific Fatigue Lab: the Repeat Exercise Testing Pt II – the Tests!
Discuss this article on the forums (People with ME/CFS often return back from a doctor’s office with a handful of negative and unhelpful test results. There are a few tests, though, that often do show abnormalities for the doctors experienced enough to use them and the Steven’s protocol is one of them. Thanks to Lannie for allowing us to publish
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