Posted by Cort Johnson Discuss this article on the forums The Dr. Jekyll/Mr Hyde Virus – The more we learn about XMRV the more we can see how it could excite retrovirologists; it doesn’t appear to be like anything they’ve come across. XMRV is clearly not HIV; HIV is a lentivirus (not a gamma-retrovirus); HIV replicates well in immune cells
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The XMRV Files: The Mystery Continues
The inability of anyone other than the WPI (and the NCI and Cleveland Clinic) to find XMRV is mysterious. In the face of three failed attempts to find any trace of XMRV in several hundred chronic fatigue syndrome patients questions are, of course, growing about the WPI’s find. Yes, questions have been raised about the efficacy of each of the
ContinueGood Times, Clarithomycin, Spring, Good Friends & Family
Discuss this article on the forums Written by flybro By Flybro I’m now on day 14 or 15, of feeling really well. Back in January I started to take 50mg of clarithomycin twice a day. My partner crushes a 500mg tab and fills 10 small capsules with equal amounts, and increases the dose to my ‘wellness/symptoms’, the most it is
ContinueBeing "Pushy" with Your Doctor
Discuss this article on the forums Written by Kelvin Lord Kelvin’s Continuing Blog on his Ampligen and other Treatments My blog today includes my top 5 Treatment Recommendations outside of Ampligen – things you may need to “push” your Doctor to give you. Someone asked me recently: “But what can I do if I am not on Ampligen? My Doctor
ContinueLiving Outside the Camp
Discuss this article on the forums Written by Jody It is a fearsome thing to find oneself living outside the camp. As the sickness of Chronic Fatigue Syndrome causes the circle of life to shrink, as the chronic element reduces our contacts with other people, we find ourselves moving (or being moved) further and further away from the campfire. And
ContinueSome Bugs in the Forum Following A Recent ‘Upgrade’
Posted by Cort Johnson A recent security issue has forced us to upgrade to a new version of Vbulletin. This brings along lot’s of problems at the moment: being logged out constantly home page messed up trouble with PM’s Cort is currently communicating with VBulletin to solve these problems. This can take days, but we don’t want to close down
ContinueLightning Strikes A CFS Patient
Posted by Cort Johnson The Recovery/Recovering Stories : ME/CFS is heterogeneous disorder with many different subsets. None of the treatments in the Recovery/Recovering stories will fit all or even most patients. In May of last year I received an e-mail from Berit Frivold a chronic fatigue syndrome (ME/CFS) patient who’d been ill for 13 years. Like many people she’d tried
ContinueFeels Like Victory! (the Ampligen Chronicles Trt #12 )
Discuss this article on the forums Written by Kelvin Lord Treatment #12 : by Kelvin Lord I hope this doesn’t gross you out, but yesterday I ran to the toilet 9 times and had nothing to show for it. Yes, another surprise, yet not altogether bad result of my Ampligen treatment. But one I actually was happy about. Let me
ContinueEven a 1% Change Makes a Difference (Ampligen Chronicles Trt #11)
Discuss this article on the forums Written by Kelvin Lord Treatment #11 by Kelvin Lord I made three very small changes in my protocol today, and although I really can’t determine scientifically their effect, experientially I can say that while all three were very minor, percentage-wise, collectively they added up to a big difference in how I felt. As usual,
ContinueHammering CFS: A Vistide Success
Posted by Cort Johnson A Recovering/Recovering Story – The wide range of recovering stories demonstrate how varied the ME/CFS population is; each story will only apply to a subset of people with ME/CFS (Vistide is a very strong drug that Dr. Peterson has been using in select patients for several years now. HVS has been telling about his experiences with
ContinueThird Time is Not the Charm: Dutch Study Finds No XMRV in CFS
Posted by Cort Johnson A small Dutch study found zero evidence of XMRV in chronic fatigue syndrome patients. In some ways it was the weakest study of the bunch; it used quite old samples and a watered down criteria but it did use the same primers and a similar amount of nucleic acid as the original study. They searched for
ContinueFighting the Insensitivity of Others: Ampligen Chronicles ( Trt #10)
Discuss this article on the forums Written by Kelvin Lord By Kelvin Lord Treatment #10 Of all the things we have to deal with internally fighting this hideous disease, to me, the things that we fight externally are sometimes more debilitating. This week I came face to face with one of the biggest enemies to recovery, the ignorance and insensitivity
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