Posted by Cort Johnson “PLEASE REPOST PUBLICLY” In a recent post, (marked “Please do not repost publicly”) Jodi Bassett noted her ‘outrage’ at Mike’s story of his recovery and declared herself ‘absolutely disgusted’ by Mike’s attempt to spread it. After only the most superficial acquaintance with the treatment procedures she declared it ‘harmful’ We were rather astonished. We’d offered the
ContinueCategory: Treatment
Listen To M.E. – An ME/CFS Recovery Story III: Renewal
Posted by Cort Johnson Click Here for Part I/ Part II When we last left ‘patient X’ he was in a semi-coherent state and had trouble tolerating even mild stimuli without pain. Emaciated and in pain he had essentially resigned himself to dying. Then, remarkably enough, he heard of doctor in his own area whom, he was told, was successfully
ContinueListen To M.E.-An ME/CFS Recovery Story: Part II – Implosion
Posted by Cort Johnson To Read Part I Click Here When last we left ‘patient X’ he had spent a night in a New York mental facility after collapsing with exhaustion and telling medical personnel that he had myalgic encephalomyelitis/chronic fatigue syndrome. Now back in California, with his health failing he’s going from clinic to clinic trying to find some
ContinueListen To M.E. – An ME/CFS Recovery Story: Part I
Posted by Cort Johnson This is the most extroardinary recovery story I’ve ever heard. I’d known this person before his health had completely fallen apart. He’d participated heavily in the ME/CFS forums and had obviously studied this disease intensely but he’d basically slid off a cliff. His case of ME/CFS had progressed far, far beyond what most people face,
ContinueWarming Up to Health at Ncubator
Posted by Cort Johnson The Recovery(ing) Stories #1 (Occasional stories from recovered or recoverying patients) A new website/blog called Ncubator recently caught my eye. Jody Smith, the websites creator, has an unusual talent for explaining issues in a very personal, down to earth and clear way. The articles were just a delight to read and at times touched me deeply. (see
ContinueDr. Logan on H2S, Fiber and the Gut
Posted by Cort Johnson Dr. Logan is a board certified naturopathic physician who graduated magna cum laude from the State University of New York. An invited faculty member at the Harvard School of Continuing Medical Education and published researcher he is the author of “The Brain Diet” and the co-author with Dr. Alison Bested of a recently updated book on
ContinueOriginator of H2S Theory Speaks
Posted by Cort Johnson Dr. DeMeirleir made a big splash when he announced at a press conference that he had uncovered a new and important factor in chronic fatigue syndrome (ME/CFS) called hydrogen sulfide. What was lost in the flurry that followed was the fact that if it was not for an inquisitive mother of a daughter with chronic fatigue
ContinueAnnette Whittemore’s Next Big (BIG) Project
Posted by Cort Johnson Annette and Harvey Whittemore pulled off something of a miracle when they convinced the state of Nevada to help them build the first chronic fatigue syndrome (ME/CFS) research, treatment and eductation facility in the world. The medical establishment, after all, has been almost as hostile to ME/CFS patients as the disease itself. The Whittemore-Peterson Neuro-immune Institute
ContinueThe Big Breakthrough (!)(?)
Posted by Cort Johnson Some bloggers have jumped all over the announcement by Dr. De Meirleir that an important cause of ME/CFS has been found. This is, they say, the ‘big breakthrough’. But is it? With just the abstract in hand let’s take a look at what little we know. The Announcement – Dr. De Meirleir has been in this business
ContinueThe Next Step? Ashok Gupta at the IACFS/ME Conference
Posted by Cort Johnson Ashok Gupta recovered from chronic fatigue syndrome (ME/CFS) patient almost ten years ago. His research into his condition lead him to develop a new theory of the disease and novel techniques for treating it. He believes that the fear center of the brain – the amygdala – has become chronically activated – causing the body to
ContinueDr. Cheney Goes His Own Way: the Virginia 2009 Lecture
Posted by Cort Johnson Dr. Cheney gave a lecture on ME/CFS (chronic fatigue syndrome) on April 25th, courtesy of the Northern Virginia CFS/ME/FM and OI Support group. According to a report of the talk posted by Chris on CFSFMExperimental Yahoogroup on April 27th, Dr. Cheney, a creative physician and provocative speaker, did not disappoint. In a three hour non-stop, often
ContinueThe Best, Worst, Biggest, Least…2008 in a Nutshell
Posted by Cort Johnson Most Remarkable Achievement (of the Decade) – As funding at the NIH and CDC plummets a major research/treatment center, the Whittemore-Peterson Neuro-Immune Institute – begins to rise out of the deserts of Nevada just over the hill from Incline Village. The WPI is a testament to the tenacious commitment of three people; Annette and Harvey Whittemore
Continue