Posted by Cort Johnson The first ‘Official’ Phoenix Fundraiser will provide essential information infrastructure elements to Dr. Bateman that will assist her in her studies on XMRV with Dr. Light/Singh, on XMRV with Glaxo-Smith Kline, on muscle and other receptors with Dr. Light, on Ampligen with Hemispherx and other studies. etc. – from CBS, Cort Why Should We Help? Reason
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What I Look Like Just Doesn’t Matter
Discuss this article on the forums Written by Kelvin Lord Kelvin Lords Continuing Experiences with Ampligen (ed) I admit it. I now have a pot-belly. And it bothered me. After being underweight for the past 2+ years, struggling with a lack of appetite and the associated difficulties in maintaining weight, since being on Ampligen for 2 1/2 months, hunger has
ContinueGarlic: Virus-Killer; Libido-Booster
Discuss this article on the forums Written by Kelvin Lord Yes, I’m going to talk about sex in this post, because one of our challenges is that this hideous virus not only diminishes our libido, but sometimes completely wipes it out. But I’m also going to discuss what I’ve found to be one of the best remedies for that part
ContinueBeing "Pushy" with Your Doctor
Discuss this article on the forums Written by Kelvin Lord Kelvin’s Continuing Blog on his Ampligen and other Treatments My blog today includes my top 5 Treatment Recommendations outside of Ampligen – things you may need to “push” your Doctor to give you. Someone asked me recently: “But what can I do if I am not on Ampligen? My Doctor
ContinueXMRV in the Spotlight
Posted by Cort Johnson XMRV was next up at the mike at the CFSAC meeting. First Dr. Peterson went over the published research one more time. Hearing it again simply reinforced what an extraordinary discovery XMRV may be. His presentation was, in some ways, though, really just a prelude to Dr. Coffin’s presentation. The co-author of the major text in
ContinueXMRV – the Potential For Change
Posted by Cort Johnson “A supernova (pl. supernovae) is a stellar explosion. Supernovae are extremely luminous and cause a burst of radiation that often briefly outshines an entire galaxy” This discovery has the potential for being a world changing event in every way for chronic fatigue syndrome patients. If it really works out – still an if – one almost
ContinueLast Chance at the CDC: the CFID’S Association’s Critique of the Five Year Plan
Posted by Cort Johnson <! Our opportunity to impact the CDC’s CFS research program ends after tomorrow (June 30th) The CFID’s Association of America has just released a critique of the five year review that’s longer than the draft plan itself. It’s a very impressive forward thinking document that’s also a great resource for building your own critique of the
ContinueDr. Reeves at the CFSAC: Too Little Too Late?
Posted by Cort Johnson Dr. Reeves produced the five year plan for the CDC’s CFS research team. He was in his element. He seemed sincere and open; patients think of him as something of an ogre but you’d never get sight of that in his presentations. Kim McCleary later noted that he’s a master at the art of presentation. But one suspects
ContinuePatients Blast the CDC
Posted by Cort Johnson The public review session on Monday in Atlanta was part of the CDC’s ten-year review of the program. Thus far the research program has received several internal reviews and an external review and is now in the process of creating a Five-Year Strategic Plan. The public review session Atlanta was focused on suggestions regarding the CDC’s
ContinueThe Best, Worst, Biggest, Least…2008 in a Nutshell
Posted by Cort Johnson Most Remarkable Achievement (of the Decade) – As funding at the NIH and CDC plummets a major research/treatment center, the Whittemore-Peterson Neuro-Immune Institute – begins to rise out of the deserts of Nevada just over the hill from Incline Village. The WPI is a testament to the tenacious commitment of three people; Annette and Harvey Whittemore
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