As the 16 January, 2015 deadline for responding to the controversial P2P draft report draws near, and in the interests of balance and representing the whole community, Phoenix Rising presents two differing views on how to react. Today, Clark Ellis flags up important content to critique and to praise in the report. In her article, Gabby Klein makes the case for protestingContinue
Author: Phoenix Rising Team
Dr. Kerr, I presume?
Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia. Dr. Jonathan Kerr is regarded as one of Britain’s foremost myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) researchers, and an expert in microbiology, inflammation and genetics.Formerly of St. George’s University of London, he is now working at the Escuela de Medicina y Ciencias de la Salud,Continue
Feds Under Review: CFSAC Live Webcast Oct 3rd and 4th
The bi-annual federal advisory committee (CFSAC) meeting for chronic fatigue syndrome is upon us. It’s intriguing to note that ME/CFS is one of the few disorders to have a federal advisory panel all to itself. CFSAC contains ex-officio officials who represent a variety of federal agencies (CDC, NIH, FDA, Social Security Administration and others), and ME/CFS professionals who provide recommendationsContinue
Immune Problems May Leave Chronic Fatigue Syndrome Adolescents Open To Infections
Cytokine expression profiles of immune imbalance in post-mononucleosis chronic fatigue. Broderick G, Katz BZ, Fernandes H, Fletcher MA, Klimas NG, Smith FA, O’Gorman MR, Vernon SD, Taylor R. J Transl Med. 2012 Sep 13;10(1):191. [Epub ahead of print] Broderick, Fletcher, Klimas, Vernon, Taylor… this big NIH funded study was loaded with top ME/CFS researchers. Similar to the Dubbo studies in Australia, theContinue
CFIDS Association Aces First Round of Sanofi Challenge
The CFIDS Association of America’s research efforts have been nothing if not innovative since Suzanne Vernon took over the organizations research helm about five years ago. Dr. Vernon has ‘smushed’ (:)) separate research projects together to form multi-layered ones, funded efforts on Drug repurposing and cajoled researchers somehow into doing complete metabiome and epigenetic analyses all on quite limited funding.Continue
A Tribute To Rich Van Konynenburg
Long time chronic fatigue syndrome supporter and theorist, Rich Van Konynenburg died last night in his sleep. His wife Diana reported: “There is no easy way to say this, and this message is very difficult for me to write. Rich died early this morning. It appears that he suffered a massive heart attack in his sleep. He did not have aContinue
Triumph! ME/CFS Community Propels Phoenix Rising and NIDA to Win in Chase!
It looked like Phoenix Rising was toast; we had dropped from 86th on Sept 10th to 136th and then all the way to 174th and had a meager 40 vote cushion with a day and a half to go……and then the ME/CFS Community erupted – propelling us all the way up to 133rd and allowing us to win $10,000. ItContinue
Bringing It Home For NIDA and Phoenix Rising: Four Hours To Go!
We can’t thank you enough for the support you’ve given Phoenix Rising. In one day we’ve rocketed up to 136th from 179th – a rise we suspect is rather unprecedented :) :). We’re tremendously honored by your support. The big concern now is keeping the Neuro Immune Disease Alliance (NIDA) in the $20,000 category. NIDA needs to be in theContinue
Phoenix Rising Hanging on For Dear Life with 15 Hours to Go in Chase Contest
Hanging On For Dear Life…. Phoenix Rising is hanging on by its fingers and toes in the Chase Community Giving Contest. Right now we’re at 163rd place and we need to place in the top 196 to win $10,000. With about 15 hours to go we’re about 100 votes ahead of last place and we expect hundreds of votes to beContinue
Phoenix Rising on the Brink at the Chase Contest: One Day Left
On the Brink! Ever feel like you’re hanging on by your fingers and toes? That’s where Phoenix Rising is right now in the Chase Community Giving Contest. The good news is that we’re in 179th place and would win $10,000 if the contest ended right now. The bad news is that the contest ends tomorrow night at midnight and we’veContinue
Phoenix Rising close to winning $10,000 – Last few days. Vote now!
Chase is giving lots of money away in their Facebook vote off extravaganza Phoenix Rising is currently 155 on the Leaderboard with 913 votes, and any organisation in the top 196 wins $10,000. Yes, that’s a lot of money for relatively few votes. Voting ends in a few days – this Weds 19th at Midnight (EST) PR is hovering just 107 votes aboveContinue
Projecting a Win: Phoenix Rising After the Chase Contest
Posted by Cort Johnson In this series of blogs we’re going to focus on what ME/CFS organizations would do with their Chase winnings and we’re going to start with (naturally :)) Phoenix Rising. Phoenix Rising has many projects it could spend the Chase winnings on; it could make the Forum more accessible to the visually impaired, hire a crisis counselorContinue