Posted by Cort Johnson The patient community and the CFIDs Association of America showed up for the comment session on the CDC’s CFS research effort but the research community didn’t. Except for Staci Stevens and Dr. Klimas and a brief statement on behalf of the IACFS/ME no other researchers spoke. Time for the IACFS/ME To Step Up – The review
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Systemic Change Needed: CAA Hits CDC Again
Posted by Cort Johnson “The CDC’s CFS research group has lost it’s mojo” Kim McCleary Patient anger towards the CDC’s CFS research effort has been high for many years and the patient comments provided many heartfelt and cogent critiques of the group at the public comments meeting but the CFID’s Association of America is in a different position. For one,
ContinuePatients Blast the CDC
Posted by Cort Johnson The public review session on Monday in Atlanta was part of the CDC’s ten-year review of the program. Thus far the research program has received several internal reviews and an external review and is now in the process of creating a Five-Year Strategic Plan. The public review session Atlanta was focused on suggestions regarding the CDC’s
ContinueThe NIH On the Clock Pt. III: It’s Raining Money
Posted by Cort Johnson That’s right – in the midst of the greatest economic contraction since the depression the NIH has, all of sudden, found itself in the greatest single expansion in its history. How and why demonstrates how much influence one Senator can have. Desperate to get Arlen Spectors vote on the stimulus package, the Obama administion acceded to
ContinueFrom the Wastebasket to the Inbox; Progress in Chronic Fatigue Syndrome (ME/CFS)
Posted by Cort Johnson Dan Moricoli, the creator of the CFSKnowledge and the me-cfsCommunityCenter has just posted a fascinating account of his recent discussion with Dr. Nancy Klimas, a prominent ME/CFS researcher and physician. It seems that researchers are much closer to cracking some significant problems than we know.
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