Posted by Cort Johnson CDC/CFSAC BLOGS #2 International Workshop – Clinical Management of CFS The aim of this workshop (to be held summer 2009) is to establish a collaborative international consortium of investigators who will present and discuss evidence- and practice-based findings related to the treatment, and management of CFS. CDC’s Five Year Strategic Draft Plan – May 2009
ContinueDr. Chia On Oxymatrine, Autoimmunity, ME/CFS and FM
Posted by Cort Johnson Dr. Chia posted a lengthy response to some of the questions asked regarding the last Oxymatrine post. (I added the headers) Dr. John Chia: Interferon and Oxymatrine: First of all, oxymatrine or equilibrant is used alone without interferon in almost all of the patients. I only used interferon-alpha 2a to help reducing the muscles pain often
ContinueDr. Cheney Goes His Own Way – Again
Posted by Cort Johnson In April Dr. Cheney startled ME/CFS patients he announced that based on echocardiographic testing, that several commonly used supplements, some of which he had previously championed , were actually bad for ME/CFS patients. They included glutathione/whey protein, coenzyme Q. 10, D-Ribose and Vit D. Now he’s casting doubt on another core treatment; omega-3 fatty acids (fish
ContinueThe Wave Begins? Swine Flu, ME/CFS and the CDC
Posted by Cort Johnson THE CDC/CFSAC BLOGS #1 Dr. Ken Friedman, board member of the IACFS/ME, just reported the first documented case of a person coming down with chronic fatigue syndrome (ME/CFS) as a result of getting the swine flu virus. This is what he said: Regrettably I must inform you that the first case of post-swine flu CFS has
ContinueDr. Chia Produces Herbal Immunodulator – Oxymatrine
Posted by Cort Johnson Dr. Chia, an infectious disease specialist focusing on chronic fatigue syndrome (ME/CFS), has finished the production of a pure form of Oxymatrine, an alkaloid derived from the Sophora plant in China. Oxymatrine is used to treat many diseases including hepatitis and cancer there. Oxymatrine has been an important part of Dr. Chia’s protocol for several years
ContinueLooking Back – At the CFID’s Association
Posted by Cort Johnson John Herd’s recent post on the past and future of ME/CFS advocacy provided a welcome change in tone from many of the strident posts we’ve seen lately and provided much room for thought. An important part of the post, however, was more of the same; while the post’s tone was mild the post itself too often
ContinueHeadhunter On the Prowl
Posted by Cort Johnson Hachet Woman – Hilary Johnson is doing what she does so well-she’s taking heads. She’s never been about ‘support’, she was an investigative journalist after all. Her metier has always been holding up a bogeyman and then cutting it’s head off. Born with a golden pen her darting, evocative and often voluptuous prose engulfed a community
ContinueThe Tortoise and the Hare: Lessons From an Incorrigible Overachiever
A Guest Blog From Lisa Johnson (Lisa Johnson, a former marathon runner, first came down with chronic fatigue syndrome (ME/CFS) in 2003. She temporaily recovered and returned to her ‘hare-like’ existence only to suffer a severe relapse in 2004. She has been unable to work since then). Aesop’s fables date from the 6th century BC. He published in excess of
ContinueRecovery…..and Reaction
Posted by Cort Johnson “PLEASE REPOST PUBLICLY” In a recent post, (marked “Please do not repost publicly”) Jodi Bassett noted her ‘outrage’ at Mike’s story of his recovery and declared herself ‘absolutely disgusted’ by Mike’s attempt to spread it. After only the most superficial acquaintance with the treatment procedures she declared it ‘harmful’ We were rather astonished. We’d offered the
ContinueListen To M.E. – An ME/CFS Recovery Story III: Renewal
Posted by Cort Johnson Click Here for Part I/ Part II When we last left ‘patient X’ he was in a semi-coherent state and had trouble tolerating even mild stimuli without pain. Emaciated and in pain he had essentially resigned himself to dying. Then, remarkably enough, he heard of doctor in his own area whom, he was told, was successfully
ContinueListen To M.E.-An ME/CFS Recovery Story: Part II – Implosion
Posted by Cort Johnson To Read Part I Click Here When last we left ‘patient X’ he had spent a night in a New York mental facility after collapsing with exhaustion and telling medical personnel that he had myalgic encephalomyelitis/chronic fatigue syndrome. Now back in California, with his health failing he’s going from clinic to clinic trying to find some
ContinueListen To M.E. – An ME/CFS Recovery Story: Part I
Posted by Cort Johnson This is the most extroardinary recovery story I’ve ever heard. I’d known this person before his health had completely fallen apart. He’d participated heavily in the ME/CFS forums and had obviously studied this disease intensely but he’d basically slid off a cliff. His case of ME/CFS had progressed far, far beyond what most people face,
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