Posted by Cort Johnson The Recovery(ing) Stories #1 (Occasional stories from recovered or recoverying patients) A new website/blog called Ncubator recently caught my eye. Jody Smith, the websites creator, has an unusual talent for explaining issues in a very personal, down to earth and clear way. The articles were just a delight to read and at times touched me deeply. (see
ContinueDr. Logan on H2S, Fiber and the Gut
Posted by Cort Johnson Dr. Logan is a board certified naturopathic physician who graduated magna cum laude from the State University of New York. An invited faculty member at the Harvard School of Continuing Medical Education and published researcher he is the author of “The Brain Diet” and the co-author with Dr. Alison Bested of a recently updated book on
ContinueMy CDC
Posted by Cort Johnson My CDC team is very different from the present one. My CDC is a true leader in this field; my CDC is at the hub of the ME/CFS research effort, my CDC interacts extensively to benefit all. My CDC is a lean and mean and innovative team that we can all be proud of. What exactly
ContinueLast Chance at the CDC: the CFID’S Association’s Critique of the Five Year Plan
Posted by Cort Johnson <! Our opportunity to impact the CDC’s CFS research program ends after tomorrow (June 30th) The CFID’s Association of America has just released a critique of the five year review that’s longer than the draft plan itself. It’s a very impressive forward thinking document that’s also a great resource for building your own critique of the
ContinueOriginator of H2S Theory Speaks
Posted by Cort Johnson Dr. DeMeirleir made a big splash when he announced at a press conference that he had uncovered a new and important factor in chronic fatigue syndrome (ME/CFS) called hydrogen sulfide. What was lost in the flurry that followed was the fact that if it was not for an inquisitive mother of a daughter with chronic fatigue
ContinueRegistering Dismay: the CDC’s (Platinum) Patient Registry
Posted by Cort Johnson CFS has a long and twisted history with the CDC but perhaps nothing in it has been odder than the strange story of their Patient Registry. This project involves contacting physicians in a small county in rural Georgia (Bibb County, population 150,000) and having them refer patients to the CDC. The patient is then screened by telephone
ContinueA Fibromyalgia Cancer Connection?
Posted by Cort Johnson Whittemore -Peterson Neuro- Immune Institute researchers have uncovered a possible cancer subset in chronic fatigue syndrome (ME/CFS) (See The Hit of the Conference: IACFS/ME Conference II). In this guest blog Yvonne Kenney, the founder of the Fibromyalgia Coalition International, reports on some preliminary evidence suggesting that the cancer problem may not be limited to ME/CFS. More
ContinueAnnette Whittemore’s Next Big (BIG) Project
Posted by Cort Johnson Annette and Harvey Whittemore pulled off something of a miracle when they convinced the state of Nevada to help them build the first chronic fatigue syndrome (ME/CFS) research, treatment and eductation facility in the world. The medical establishment, after all, has been almost as hostile to ME/CFS patients as the disease itself. The Whittemore-Peterson Neuro-immune Institute
ContinueKim McCleary On the CDC’s Five Year Plan
Posted by Cort Johnson “I was sitting there yesterday (during the CDC presentation) feeling like my head was going to blow off my shoulders” The CFID’s Association of America has been leading the way on the CDC review. Kim McCleary sits through every CFSAC meeting – not an easy task in that often mostly empty room – and takes notes.
ContinueThe Roar Mounts: Professionals Call For New Leadership at CDC
Posted by Cort Johnson They came one after another. First came the call from IACFS/ME President Fred Friedberg. Their first recommendation – Dr. Reeves should go. Then came the CFSAC , after virtually no discussion ( a real rarity in this group) – new leadership is needed at the CDC. My mouth gaped open. I heard Robert Millers wife Courtney softly
ContinueThe Big Breakthrough (!)(?)
Posted by Cort Johnson Some bloggers have jumped all over the announcement by Dr. De Meirleir that an important cause of ME/CFS has been found. This is, they say, the ‘big breakthrough’. But is it? With just the abstract in hand let’s take a look at what little we know. The Announcement – Dr. De Meirleir has been in this business
ContinueDr. Reeves at the CFSAC: Too Little Too Late?
Posted by Cort Johnson Dr. Reeves produced the five year plan for the CDC’s CFS research team. He was in his element. He seemed sincere and open; patients think of him as something of an ogre but you’d never get sight of that in his presentations. Kim McCleary later noted that he’s a master at the art of presentation. But one suspects
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