An Interview with Pat Fero of the Wisconsin Chronic Fatigue Syndrome Association The CFS/FM support groups perform a lot of vital functions for CFS/FM patients; they provide advice, physician and legal referrals, emotional support and they advocate for change usually on a bare bones budget. Often run by people who themselves have CFS/FM they are the bread and butter
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A Report on the 8th IACFS Conference in Fort Lauderdale, Florida, 2007 by Rosamund Vallings, M.D.
A Report on the 8th IACFS Conference in Fort Lauderdale, Florida, 2007 by Rosamund Vallings, M.D. I was privileged to attend the 8thIACFS conference in Fort Lauderdale, Florida from 10-14thJanuary 2007. There was a larger number of presentations and attendees than at any previous CFS conference, and the quality of presentations and research achieved in the past 2 years was
The 2007 PANDORA Patient’s Conference: PART I: Politics, Advocacy and the Media, Dr. Teitlebaum and D-ribose, Ask the Experts by Cort Johnson
The 2007 PANDORA Patient’s Conference: PART I: Politics, Advocacy and the Media, Dr. Teitlebaum and D-ribose, Ask the Experts by Cort Johnson The patient conference was an overwhelming success. It has always been a kind of poor sister to the professional conference but this time with its strong program and top-notch speakers the patient conference was a success in
8th International IACFS Conference on CFS, FM, and Related Illnesses by Charles Lappe, M.D., Director of the Hunter-Hopkins Medical Center
8th International IACFS Conference on CFS, FM, and Related Illnesses by Charles Lappe, M.D., Director of the Hunter-Hopkins Medical Center The 2007 meeting of the IACFS (formerly AACFS) has set new records for attendance, including more than 250 professionals and over 300 patients. An effort has been made to expand internationally, and over 21 countries were represented at this meeting!
AACFS Conference Oct. 8-10th, Madison Wisconsin Report by Dr. Rosamund Vallings
AACFS Conference Oct. 8-10th, Madison Wisconsin Report by Dr. Rosamund Vallings A day of research presentations was followed by two clinical days with a patient conference running alongside. I felt privileged to attend the research and clinical segment RESEARCH CONFERENCE RESEARCH OVERVIEW, by A.Komaroff (Boston) – In Chronic Fatigue Syndrome, functional status is much reduced in all areas and $9
A REPORT FROM THE FIFTH INTERNATIONAL AACFS CONFERENCE by Dr. Rosamund Vallings
A REPORT FROM THE FIFTH INTERNATIONAL AACFS CONFERENCE by Dr. Rosamund Vallings From January 26-29, 2001, I was privileged to attend the AACFS 5th International conference for Chronic Fatigue Syndrome hosted by Sudhir Gupta, the President of AACFS. It was an exciting experience to once again learn of the great wealth of research currently taking place, and to meet with
A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No …
Posted by Cort Johnson The biggest and the baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program alone was hundreds of pages
ContinueA Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No…
Posted by Cort Johnson Discuss this article on the forums The biggest and baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it’s program
ContinueTime to Make a Difference Together by Marly Silverman
Discuss this article on the forums “For having lived long, I have experienced many instances of being obliged, by better information or fuller consideration, to change opinions, even on important subjects, which I once though right but found to be otherwise.” Benjamin Franklin Once again I am excited about what is to come in the months ahead in the NeuroEndocrineImmune
ContinueCFIDS Association Of America Interview with Jennifer Spotila
Posted by Cort Johnson Discuss this article on the forums Jennifer Spotila was Chairman of the Board of the CFIDS Association of America from 2008-2009 and is a Board member today. Companion Articles CFIDS Association: the Last Ten Years – An Overview CFIDS Association: a 2000-2010 Timeline Can you briefly tell us your story with chronic fatigue syndrome (ME/CFS)? Jennie’s
ContinueLannie at the Pacific Fatigue Lab: Part IV The Report is In – Implementing the Results
Discuss this article on the forums (Lannie goes over the report from the Pacific Fatigue Lab and creates a ‘a plan of attack’ to implement what she’s learned about her body. Thanks again to Lannie for providing us our first in depth look at the Pacific Fatigue Lab’s innovative technology. You can find her blog here) Check out Part I
ContinueNo Money For ME/CFS? Think Again
Posted by Cort Johnson Oct 13 Testimony to the CFSAC Whenever the CFS community asks for funding we always hear are that ‘money is tight’ – too tight to help out with CFS – as if doing so would somehow break the budget. The truth is there’s always money for the NIH to do what it wants to do. Every
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